Dr Simka (Poland)

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby ozarkcanoer » Thu Dec 10, 2009 6:48 pm

:oops: :oops: Sorry, Dr Ludyga is very handsome. I am sure Dr Simka is very handsome too, LOLOL :D :D
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Postby ozarkcanoer » Fri Dec 11, 2009 1:47 pm

Does it make you happy that Dr Simka actually found something wrong with your veins ? When you return to Poland will you ask him if he has ever tested someone with MS who does NOT have any venous agenesis or malformations ??

Good luck with your procedure !!!! :D :D
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Postby sunlounger » Fri Dec 11, 2009 1:56 pm

Glad to hear your back with good news :D
I am also booked to have procedure on the 13th Jan.
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Postby LR1234 » Fri Dec 11, 2009 1:58 pm

.......
Last edited by LR1234 on Tue Mar 06, 2012 1:40 am, edited 5 times in total.
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Postby wonky1 » Fri Dec 11, 2009 2:01 pm

Hi LR
Congratulations on having a problem. That sounds kind of contrary but it must be viewed as good news.
Happy for you :D
Wonky
:D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D
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Postby LR1234 » Fri Dec 11, 2009 2:02 pm

......
Last edited by LR1234 on Tue Mar 06, 2012 1:40 am, edited 1 time in total.
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CCSVI

Postby ostrich » Fri Dec 11, 2009 2:43 pm

Good evening
Well done LR1234
Anna & Edser
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I'm on the list!

Postby fiddler » Fri Dec 11, 2009 4:33 pm

I don't have a specific date yet, but I'm one of 25 people scheduled for some time in April.
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
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Re: I'm on the list!

Postby Johnson » Sat Dec 12, 2009 2:22 am

fiddler wrote:I don't have a specific date yet, but I'm one of 25 people scheduled for some time in April.


Hey! How did you get in front of me? Laugh.
My name is not really Johnson. MSed up since 1993
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Sorry to our canadian friends

Postby Dovechick » Sat Dec 12, 2009 3:31 am

Sorry Johnson and Fiddler, but we seem to have slipped in ahead of you both. Not sure how but we have an appointment in Feb with Dr Simka et al. Maybe it is because Ella is at a turning point in her disease or maybe he had a cancellation or maybe even he is doing it according to where you come from. Who knows...
But one thing I know I am extatic, you have no idea what a relief it is to know that my daughter has a chance of halting the progress of the disease and maybe recover a bit of physical ability. Ella often says it is harder for those who watch than for herself.
Thank you to all you people who have gone before us and posted images, links to TV programs, and details about accommodation and transport. Now all I have to do is learn a bit of Polish. Ella has the advantage on me here as she has been to Poland a number of time when she worked in the glass industry.
When I know more I will post information and feed back.
Yipee!!! :P :P :P
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
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Postby wonky1 » Sat Dec 12, 2009 4:12 am

Well done Dovechick :D
Welcome to the Poland club.
Now just a small but agonising wait.
Happy new year, that's not just a wish, it's a prediction.

:D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D
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Postby Edser » Sat Dec 12, 2009 4:24 am

wonky1 wrote:Well done Dovechick :D
Welcome to the Poland club.
Now just a small but agonising wait.
Happy new year, that's not just a wish, it's a prediction.

:D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D

I hope everything goes well for everyone
Slainte Mo Chara
Edser & Anna
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
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Postby Edser » Sat Dec 12, 2009 4:35 am

ErikaSlovakia wrote:Hi,
last time I stayed in Hotel Franz Josef - it is only 1 minute slow walking from the hospital. The price is around 42 Euro.
Mikołowska 44 (street)
40-065 Katowice
32 204 52 08 - phone number

The waiter speaks English. Rooms are upstairs - no lift.
I made my reservation in English with Mr. Krzysztof Bukowiec:
KrzysztofBukowiec@maestral.pl
In case I go there next time, I will also go to this hotel.

Erika

I would NOT stay there again( Hotel Franz Josef)They dont accept credit cards,even dough it states different on it's web page.The boss said it was broken & the staff say different.Lot's of other thing's also.
Slainte Mo Chara
Edser & Anna
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
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Hotel

Postby Dovechick » Sat Dec 12, 2009 4:49 am

Tapadh leat, Edser, for the heads up... Ella can't manage stairs very well so it might not be the best place for us.

Wonky Thanks for the prediction. It will make all the difference to our Christmas celebrations and hopefully Ella can stay well for the time we have to wait.
I think you stayed at the hospital? So it is no good asking you where to stay.
Any other prior knowledge of hotels would be useful. Thanks in advance.

This will be the second time in three months that I have been practicing the skills of a travel agent. I organised myself a trip to Germany in October to go on a course (given in English), so I am getting the hang of finding information out in foreign languages. Luckily most tourist information offices have English speaking staff these days.
The most difficult thing to work out are locations and distances. Anyone know whether hiring a car would be a good idea, we have to transport a wheelchair and there will be three of us... Might be a bit of a squeeze in a taxi.
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
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Re: Sorry to our canadian friends

Postby Johnson » Sat Dec 12, 2009 5:01 am

Dovechick wrote:Sorry Johnson and Fiddler, but we seem to have slipped in ahead of you both. Not sure how but we have an appointment in Feb with Dr Simka et al. Maybe it is because Ella is at a turning point in her disease or maybe he had a cancellation or maybe even he is doing it according to where you come from. Who knows...
But one thing I know I am extatic, you have no idea what a relief it is to know that my daughter has a chance of halting the progress of the disease and maybe recover a bit of physical ability. Ella often says it is harder for those who watch than for herself.
Thank you to all you people who have gone before us and posted images, links to TV programs, and details about accommodation and transport. Now all I have to do is learn a bit of Polish. Ella has the advantage on me here as she has been to Poland a number of time when she worked in the glass industry.
When I know more I will post information and feed back.
Yipee!!! :P :P :P


Oh no, please don't be sorry. I am ecstatic for everyone. I was just joking. I don't know anybody else with MS, and have never had anyone to talk about it with without paying $100/hr, or the neuro?.... until I came here a couple of weeks ago. I laugh at things that aren't funny, and don't take too much seriously. That is my coping mechanism.

I'm actually well pleased with not going until May. I've always wanted to go to Eastern Europe, but not so much in the winter. I don't do well in the cold. I need warmth, so spring sounds nice. I'm just thankful that I have the opportunity and the wherewithal.

I am also quite mobile. I do bounce off the walls and clutch furniture for the first few hours of the day, but once that passes, I can still drive, and can walk a long way. The fog and fatigue are the killer for me.

I agree with Ella though, I honestly would rather have these problems than to watch someone I love go through it. I have often said that. I have also thought that in so many ways, it was a gift, and now that it might well be over, I feel that more so. I learned patience, and calm, and compassion, and empathy, and so much more. I often go to sleep with the thought that "I have learned, and I am ready to be well again. I won't forget".

I feel that we will all be freed soon, and I am grateful to those that went and go before me. It gives me that much more confidence and enthusiasm. All the best in Poland, to everyone. I look forward to your reports.
My name is not really Johnson. MSed up since 1993
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