This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi
I also recieved my dates for April, - 7/8 - I'm so excited and wish time would just hurry up and pass quickly between now and then.
I also wish to extend my thanks to those on this forum who inspired me to to contact Dr Simka - particularly to Ericka - who has been an inspiration to so many of us.
Of course, I will keep everyone on here informed after my visit.

I emailed Dr Simka in late November.

Good evening TiMS,
Major News breaking NOW! CCSVI, in which the veins in the neck and chest do not allow blood to flow properly has just been ratified by 47 experts in different countries worldwide, as being CONGENITAL This means that the medical arena are unamiously that CCSVI is a legitimate condition from birth, and as such, enters the medical field as "Something wrong that needs fixing" I cannot describe how important this is...
Slainte Mo Chara
Edser & Anna

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4

Thanks. Do you know if they are performing any clinical trial of the stents? It could be very interesting for europeans.

Hello to all

Here is a link to a nurse who had the procedure in US stuff about cell growth in the vains possibly creating re-stenosis above and below stents.

Any info you can gleem from this I would love to hear.

Thanks
Pam

http://healingpowernow.com

I think she has a audio on the site where she talks about it

Hi AllyCanada

So happy for you

Pam

Edser (or anyone) could you please post the link to the source for the expert opinions you mention? Thanks.
...Ted

_________________
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com

Good going, Ally. Best of luck for your trip and recovery.

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My name is not really Johnson. MSed up since 1993

It's OK, Edser, I think this must be it from another thread:
<shortened url>

Although you can't actually get the publications themselves through that page... one requires registration/payment while the other is in process.
...Ted

_________________
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com

Edser, that is fantastic, exciting news! Goes to show the powerful voice of the people to get them to listen, sooner rather than later! Brynn

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41 years old, dx 1998, current EDSS 6.5

Hello,

A little bit ago I called the US branch of Abbott Laboratories and asked them about a new stent specifically designed for veins being released but the lady I spoke with had no idea what I am talking about. Do you think the stents that are used now to correct CCSVI safe enough given that they are not designed for veins? Just wondering...
Thanks!

Good Morning TiMS,
A Polish(MS) suffer who is now living in IRELAND contacted Anna yesterday evening,true the Polish MS forum(PM) stating that they are visiting Dr Simka very soon.
I will be putting my 2 Mounth update 02/02/2010 on TiMS after i return from my NEURO'S appointment on the same date.All is +++Positive+++ with me.
Slainte Mo Chara
Edser & Anna

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4

Good afternoon TiMS...."OVER & OUT" .....

This is a Positive step on my behalf I need a break from Electrical Devices i.e. PC,Phones, & i need to concentrate on getting my life back.For my sake & Anna's.I'm trying to fight the world & the WORLD has no ear's.
Slainte Mo Chara
Edser & Anna

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4

Best of luck to all who have received dates for Poland. You are all an inspiration!

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Diagnosed 1994, Self EDSS is 6.5

Hi new on this site . I'm reading a lot abot ccsvi on this site and it all encouraging .I myself have sent a e-mail to Dr simika in Poland and he's going to send me the info and a date as he is all booked up for 2010 but it gives me time to do my research . What i would like to ask on ere who has had the procedure done and what has it done for them, and is it worth having done ?

Snoop, some patient experiences are found in the sticky thread at http://www.thisisms.com/ftopict-8346.html. Other, more detailed ones can be found in other individual threads here on TiMS, some of which can be identified by their titles (like "Mutley Goes to Poland" etc). There are also some in individual blogs as well as the CCSVI facebook site.
...Ted

_________________
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com