Dr Simka (Poland)

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

I have April date for Dr Simka too

Postby crocky » Tue Jan 26, 2010 9:47 am

Hi
I also recieved my dates for April, - 7/8 - I'm so excited and wish time would just hurry up and pass quickly between now and then.
I also wish to extend my thanks to those on this forum who inspired me to to contact Dr Simka - particularly to Ericka - who has been an inspiration to so many of us.
Of course, I will keep everyone on here informed after my visit.

I emailed Dr Simka in late November.
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CCSVI

Postby Edser » Tue Jan 26, 2010 10:33 am

Good evening TiMS,
Major News breaking NOW! CCSVI, in which the veins in the neck and chest do not allow blood to flow properly has just been ratified by 47 experts in different countries worldwide, as being CONGENITAL This means that the medical arena are unamiously that CCSVI is a legitimate condition from birth, and as such, enters the medical field as "Something wrong that needs fixing" I cannot describe how important this is...
Slainte Mo Chara
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Re: CCSVI

Postby frodo » Tue Jan 26, 2010 11:17 am

Edser wrote:Good Morning TiMS,
Abbott Laboratories here in ireland are about to release a stent to the market which has been specifically designed for use in veins. It should be released to market soon.


Thanks. Do you know if they are performing any clinical trial of the stents? It could be very interesting for europeans.
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Postby pgm1 » Tue Jan 26, 2010 2:53 pm

Hello to all

Here is a link to a nurse who had the procedure in US stuff about cell growth in the vains possibly creating re-stenosis above and below stents.

Any info you can gleem from this I would love to hear.

Thanks
Pam :)

http://healingpowernow.com

I think she has a audio on the site where she talks about it
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Postby pgm1 » Tue Jan 26, 2010 3:02 pm

Hi AllyCanada

So happy for you

Pam :)
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Expert opinion of CCSVI

Postby fiddler » Tue Jan 26, 2010 3:10 pm

Edser (or anyone) could you please post the link to the source for the expert opinions you mention? Thanks.
...Ted
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
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Postby Johnson » Tue Jan 26, 2010 3:22 pm

Good going, Ally. Best of luck for your trip and recovery.
My name is not really Johnson. MSed up since 1993
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Got it!

Postby fiddler » Tue Jan 26, 2010 3:34 pm

It's OK, Edser, I think this must be it from another thread:
<shortened url>

Although you can't actually get the publications themselves through that page... one requires registration/payment while the other is in process.
...Ted
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Postby Brynn » Tue Jan 26, 2010 7:45 pm

Edser, that is fantastic, exciting news! Goes to show the powerful voice of the people to get them to listen, sooner rather than later! Brynn
41 years old, dx 1998, current EDSS 6.5
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Postby NewHope » Thu Jan 28, 2010 2:31 pm

Hello,

A little bit ago I called the US branch of Abbott Laboratories and asked them about a new stent specifically designed for veins being released but the lady I spoke with had no idea what I am talking about. Do you think the stents that are used now to correct CCSVI safe enough given that they are not designed for veins? Just wondering...
Thanks!
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CCSVI

Postby Edser » Fri Jan 29, 2010 1:01 am

Good Morning TiMS,
A Polish(MS) suffer who is now living in IRELAND contacted Anna yesterday evening,true the Polish MS forum(PM) stating that they are visiting Dr Simka very soon.
I will be putting my 2 Mounth update 02/02/2010 on TiMS after i return from my NEURO'S appointment on the same date.All is +++Positive+++ with me.
Slainte Mo Chara
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Never judge a Book by it's cover.
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CCSVI

Postby Edser » Sat Jan 30, 2010 5:47 am

Good afternoon TiMS...."OVER & OUT" .....

This is a Positive step on my behalf :-) I need a break from Electrical Devices i.e. PC,Phones, & i need to concentrate on getting my life back.For my sake & Anna's.I'm trying to fight the world & the WORLD has no ear's.
Slainte Mo Chara
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Never judge a Book by it's cover.
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Postby SandyK » Sun Jan 31, 2010 7:35 pm

Best of luck to all who have received dates for Poland. You are all an inspiration!
Diagnosed 1994, Self EDSS is 6.5
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ccsvi

Postby snoop » Tue Feb 02, 2010 8:15 am

Hi new on this site . I'm reading a lot abot ccsvi on this site and it all encouraging .I myself have sent a e-mail to Dr simika in Poland and he's going to send me the info and a date as he is all booked up for 2010 but it gives me time to do my research . What i would like to ask on ere who has had the procedure done and what has it done for them, and is it worth having done ?
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Start reading

Postby fiddler » Tue Feb 02, 2010 8:43 am

Snoop, some patient experiences are found in the sticky thread at http://www.thisisms.com/ftopict-8346.html. Other, more detailed ones can be found in other individual threads here on TiMS, some of which can be identified by their titles (like "Mutley Goes to Poland" etc). There are also some in individual blogs as well as the CCSVI facebook site.
...Ted
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My blog: www.my-darn-ms.blogspot.com
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