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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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ErikaSlovakia
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PostPosted: Sat Mar 06, 2010 11:55 am 
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Location: Slovakia, Europe
Muy bien Pepe and Maria!
I am happy for you. Any little improvement means a lot to me.
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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tipsyturtle
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PostPosted: Sat Mar 06, 2010 12:40 pm 
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Location: Canada
Hi All,
Been watching all the action in March- we are there early April. After my hopeful liberation, we plan to stay in Poland a few weeks to rest, recover and take an opportunity to visit this amazing country. Anyone have any suggestions of a good place to go for a few weeks???
Best of luck to the March group!
Jo
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Katie41
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PostPosted: Sat Mar 06, 2010 12:55 pm 
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Location: Southern California
I'm cautiously excited to join the March group, March 23, for procedure. I'll believe it after it is done, since I was one of the 6 Stanford people cancelled at the last minute! It will be fun to meet so many of you! See you there!
Katie41
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fiddler
 Post subject: Krakow
PostPosted: Sat Mar 06, 2010 1:08 pm 
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Location: Fredericton, Canada
Hi Jo,
We're flying into Krakow because my Polish friend recommended it. We're going to stay in the old town (Starie Misto) - more expensive, but what the heck. Unfortunately we don't have too much time, so we'll only spend a few days there before going to Katowice.
...Ted

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Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
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Zeureka
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PostPosted: Sat Mar 06, 2010 2:58 pm 
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ErikaSlovakia wrote:
Muy bien Pepe and Maria!
I am happy for you. Any little improvement means a lot to me.
Erika

Hola Maria/Pepe e Erika!

Keep up improving and I will really never forget these lovely days! And more to come soon...!

Steffi
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markuso
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PostPosted: Sun Mar 07, 2010 5:57 am 
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Location: Germany
Pepe wrote:
Hi Erika and Steffi,

Oh yes!... that moment have left us a good memory! It was 47 days ago. And I would like to tell you that Maria is doing well. She is improving as I reported 1 month after the intervention. As you can suppose, after several years worsening...at the moment, we are very very very... happy. Among other improvements, the most remarkable one is the decreased fatigue.

Un grande abrazzio!

Pepe and María.


Hello Pepe,Maria

Nice to read about some improvements.

Greeting Markus
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Zeureka
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PostPosted: Sun Mar 07, 2010 12:33 pm 
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Have only now seen their new web-site: looks good!

http://www.euromedicpoland.com
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Pepe
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PostPosted: Mon Mar 08, 2010 12:52 am 
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markuso wrote:
Hello Pepe,Maria

Nice to read about some improvements.

Greeting Markus


Hi Markus,

Are you the Markus from Germany we met in the Hospital in Katowice on January, 20th waiting for the intervention?

If you are that person...How are you doing?. Any improvement?
Regards,
Pepe.

_________________
María was Dx RRMS 1996. SPMS since 2003; Dx CCSVI by Dr. Simka on Dec.-2009; Balloon angioplasty on Jan.-2010 in Katowice (Poland); Betaseron (2000-2009); Tysabri since June 2009. BBD since 2003. IBT since Jan.-2010.
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markuso
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PostPosted: Mon Mar 08, 2010 4:53 pm 
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Location: Germany
Pepe wrote:
markuso wrote:
Hello Pepe,Maria

Nice to read about some improvements.

Greeting Markus


Hi Markus,

Are you the Markus from Germany we met in the Hospital in Katowice on January, 20th waiting for the intervention?

If you are that person...How are you doing?. Any improvement?
Regards,
Pepe.


Hello Pepe

Yes i am the one from Katowice
I have some improvements, walking is better and balance and some other things
Some Symptoms are better, some not.

Can you show me the link of the thread from Marias improvement, here are so many posts.

My english is still bad :D

Greeting Markus
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Pepe
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PostPosted: Thu Mar 11, 2010 11:00 am 
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markuso wrote:
Yes i am the one from Katowice
I have some improvements, walking is better and balance and some other things
Some Symptoms are better, some not.

Can you show me the link of the thread from Marias improvement, here are so many posts.

My english is still bad :D

Greeting Markus


Hi Markus,

Nice to meet you again. Congrats for your improvements!
Here you are the link:
http://www.thisisms.com/ftopict-10328-.html

Sorry for the delay...
Take care, Markus...and, please keep us informed from time to time.
A big hug.
Pepe.

_________________
María was Dx RRMS 1996. SPMS since 2003; Dx CCSVI by Dr. Simka on Dec.-2009; Balloon angioplasty on Jan.-2010 in Katowice (Poland); Betaseron (2000-2009); Tysabri since June 2009. BBD since 2003. IBT since Jan.-2010.
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fraser
 Post subject: Going to Poland!
PostPosted: Thu Mar 11, 2010 11:33 am 
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Posts: 52
Location: Toronto, Canada
Hi,

Just wondering if anyone is going to Poland next week? We will be in Katowice on March 16th, with the testing and procedure on the 17th and 18th. Feeling nervous and excited at the same time....
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fraser
 Post subject: Going to Poland!
PostPosted: Thu Mar 11, 2010 11:35 am 
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Posts: 52
Location: Toronto, Canada
Hi,

Just wondering if anyone is going to Poland next week? We will be in Katowice on March 16th, with the testing and procedure on the 17th and 18th. Feeling nervous and excited at the same time....
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esta
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PostPosted: Thu Mar 11, 2010 2:47 pm 
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Posts: 380
Location: Summerland. BC Canada
you guys have no idea how exciting this is to read!
IM going in June and hope to do the same, :D Yahoo
good luck to everyone!
esta
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lilaclomax
 Post subject: Re: Going to Poland!
PostPosted: Thu Mar 11, 2010 3:35 pm 
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Posts: 26
fraser wrote:
Hi,

Just wondering if anyone is going to Poland next week? We will be in Katowice on March 16th, with the testing and procedure on the 17th and 18th. Feeling nervous and excited at the same time....


Yes - I will be there as will one other I know of who comes on this site... My diagnostics are on Tuesday with a potential procedure on Wednesday.
May see you there :D
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Badger
 Post subject: 23/24th March
PostPosted: Fri Mar 12, 2010 1:10 am 
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Joined: Mon Dec 14, 2009 4:00 pm
Posts: 128
Location: Glasgow, Scotland
I am going the week after, I am so so so excited!!! 23rd for the ultrasound and the 24th for the surgery.

It is happening. :o

_________________
<em>Badger
RRMS 2004</em>
Appt Katowice 23/24th March
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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