This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sat May 18, 2013 12:53 pm

View unanswered posts | View active topics


Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]



Post new topic Reply to topic  Page 4 of 30
  [ 437 posts ]  Go to page Previous  1, 2, 3, 4, 5, 6, 7 ... 30  Next
  Print view Previous topic | Next topic 
Author Message
mrhodes40
 Post subject:
PostPosted: Sat Nov 07, 2009 7:53 pm 
Offline
Family Elder
User avatar

Joined: Thu Sep 23, 2004 3:00 pm
Posts: 2066
Location: USA
Wow this is just plaing thrilling to see so many people finding their way to treatment!! It is so exciting!

Remember that some actual doctors who are interested in this are following out tracking thread so please do make an entry there so that they can see.

good lick Edser!!
marie

_________________
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics


Top
 Profile  
 
Edser
 Post subject:
PostPosted: Mon Nov 09, 2009 1:16 am 
Offline
Family Elder

Joined: Mon Oct 26, 2009 4:00 pm
Posts: 152
Location: Co.Cork.Ireland.
http://www.emaxhealth.com/1275/39/34215 ... rosis.html
U.S.A:Buffalo.

I'm off for another MRI Wed:11/11/09 before i go to visit Dr Simka & his team Mon:30/11/09
Slainte Mo Chara
Edser & Anna

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
Top
 Profile  
 
Edser
 Post subject:
PostPosted: Mon Nov 09, 2009 5:35 am 
Offline
Family Elder

Joined: Mon Oct 26, 2009 4:00 pm
Posts: 152
Location: Co.Cork.Ireland.
Good afternoon TIMS,
My Mrs(Anna) has just been talking to Ryszard Wiercinski(POLISH) on SKYPE & he wishes the BEST OF LUCK to everyone who is going for the CCSVI procedure with Dr Simka & his team.Ryszard who has got the procedure done in Katowice,has only POSITIVE thing's to say about the procedure,Dr Simka & his team.
Slainte Mo Chara
Edser & Anna

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
Top
 Profile  
 
ErikaSlovakia
 Post subject:
PostPosted: Mon Nov 09, 2009 6:49 am 
Offline
Family Elder

Joined: Wed Jul 29, 2009 3:00 pm
Posts: 1099
Location: Slovakia, Europe
Hi,
I can say really the same.
I felt very safe with Dr. Simka and his team. I did not have to worry about anything.
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
Top
 Profile  
 
Edser
 Post subject:
PostPosted: Mon Nov 09, 2009 9:06 am 
Offline
Family Elder

Joined: Mon Oct 26, 2009 4:00 pm
Posts: 152
Location: Co.Cork.Ireland.
ErikaSlovakia wrote:
Hi,
I can say really the same.
I felt very safe with Dr. Simka and his team. I did not have to worry about anything.
Erika

:D That makes me feel 100% better about my trip to Katowice :D

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
Top
 Profile  
 
Edser
 Post subject:
PostPosted: Mon Nov 09, 2009 9:11 am 
Offline
Family Elder

Joined: Mon Oct 26, 2009 4:00 pm
Posts: 152
Location: Co.Cork.Ireland.
http://www.charcot-ms.org/Symposium_200 ... id-128.htm

European Charcot Foundation:Multiple Sclerosis Research in Europe November 12, 13 and 14, 2009

Lisbon, Portugal



Slainte Mo Chara
Edser & Anna

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
Top
 Profile  
 
ozarkcanoer
 Post subject:
PostPosted: Mon Nov 09, 2009 9:23 am 
Offline
Family Elder
User avatar

Joined: Thu Oct 15, 2009 3:00 pm
Posts: 1273
Location: St. Louis, Missouri
Hi Edser... I noticed the post on Facebook about the Charcot Foundation meeting. I am glad Dr. Zamboni will be there with his posters, but I am disappointed that he won't be giving a lecture. Zamboni took his posters to ECTRIMS and had little impact. I know two MS neurologists who went to ECTRIMS, and neither of them reported back to patients on CCSVI. One of those two neurologists is MY OWN neurologist. He held a web conference on ECTRIMS and said nothing about CCSVI. Oh well, we have to keep on doing what we can do...... :roll:
Top
 Profile  
 
kayalena
 Post subject:
PostPosted: Sun Nov 15, 2009 8:56 am 
Offline
Newbie
User avatar

Joined: Tue Oct 27, 2009 4:00 pm
Posts: 3
Location: Citrus Springs, Florida
Good afternoon,

Regarding CCSVI, here you'll find the forthcoming broadcasts on the TV channels:

November, the 17th of 2009 - tuesday
Image
TV Silesia (TVS) - the polish local TV channel
04:40 p.m. (GMT +01:00) Na wagę zdrowia - zdrowie i medycyna
(schedule http://www.tvs.pl/tv/ramowka/)

This episode will be available in the archive section of the "Na wagę zdrowia" programme - see the website:
http://www.tvs.pl/tv/program,na_wage_zdrowia,50.html

the TV Silesia's signal is uncoded in the EU. It would be sufficient if you have any common TV satellite set. TVS range:
Europe
USA
Germany

November, the 21st of 2009 - saturday
Image
CTV (Canadian Television)
07:00 p.m. (GMT -05:00) W5 - "The Liberation Treatment" - ALL-NEW EPISODE*
(schedule http://shows.ctv.ca/schedule.aspx )

*CTV's medical reporter Avis Favaro investigates a radical new theory of what causes Multiple Sclerosis and discovers a novel way to treat the symptoms that may provide relief for millions of suffers - a medical discovery made through love

This episode will be available in the archive section of the W5 programme - see the website:
http://www.ctv.ca/w5/

Slainte Mo Chara!
Best Regards to you Edser&Anna and everyone "CCSVI theory"-friendly
Damian


Last edited by kayalena on Sun Nov 15, 2009 2:05 pm, edited 3 times in total.

Top
 Profile  
 
Edser
 Post subject:
PostPosted: Sun Nov 15, 2009 8:58 am 
Offline
Family Elder

Joined: Mon Oct 26, 2009 4:00 pm
Posts: 152
Location: Co.Cork.Ireland.
:D Thank's Damian :D
Slainte Mo Chara
Edser & Anna

I've also posted these on my FACEBOOK profile.

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
Top
 Profile  
 
Sharon
 Post subject:
PostPosted: Sun Nov 15, 2009 11:04 am 
Offline
Family Elder
User avatar

Joined: Sun Nov 07, 2004 4:00 pm
Posts: 1228
Location: Colorado
Thanks Damian for posting - looking forward to watching

Sharon
Top
 Profile  
 
Edser
 Post subject: Dr Simka
PostPosted: Wed Nov 18, 2009 6:17 am 
Offline
Family Elder

Joined: Mon Oct 26, 2009 4:00 pm
Posts: 152
Location: Co.Cork.Ireland.
http://www.tvs.pl/tv/video,na_wage_zdrowia,5244.html
Sorry that it's in Polish,but don't worry.It's all positive +++
Slainte Mo Chara
Edser & Anna

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
Top
 Profile  
 
mrhodes40
 Post subject:
PostPosted: Wed Nov 18, 2009 9:05 am 
Offline
Family Elder
User avatar

Joined: Thu Sep 23, 2004 3:00 pm
Posts: 2066
Location: USA
Wow, there are our hero doctors right on the screen! Yeah Dr Simka and Dr L. !

It seems a very competant team.

_________________
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics


Top
 Profile  
 
cheerleader
 Post subject:
PostPosted: Wed Nov 18, 2009 9:38 am 
Offline
Family Elder
User avatar

Joined: Mon Sep 10, 2007 3:00 pm
Posts: 4676
Location: southern California
mrhodes40 wrote:
Wow, there are our hero doctors right on the screen! Yeah Dr Simka and Dr L. !

It seems a very competant team.


WOOT! Congratulations to the Polish team! I agree with Marie, they are very competent. I am SO glad that Dr. Simka has risen to this challenge, and brought more docs on board. Erika- you are a brave gal...going on camera during an endovascular procedure, and doing it gracefully and beautifully. Wow. Makes my morning!

LINK TO ERIKA'S Procedure:
http://www.tvs.pl/tv/video,na_wage_zdrowia,5244.html
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


Top
 Profile  
 
ozarkcanoer
 Post subject:
PostPosted: Wed Nov 18, 2009 11:26 am 
Offline
Family Elder
User avatar

Joined: Thu Oct 15, 2009 3:00 pm
Posts: 1273
Location: St. Louis, Missouri
Can anyone give me the info on Dr. L so I can post it on my BIG NAMES thread ????
Top
 Profile  
 
Pepe
 Post subject:
PostPosted: Wed Nov 18, 2009 12:35 pm 
Offline
Family Elder
User avatar

Joined: Sat Oct 17, 2009 3:00 pm
Posts: 141
Dr. Tomasz Ludyga

You can see his photo at:

http://www.euromedic.com.pl/index.php?m=8

Pepe.
Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  Page 4 of 30
  [ 437 posts ]  Go to page Previous  1, 2, 3, 4, 5, 6, 7 ... 30  Next

Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]

Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. When you get to see Dr Simka

ClaireParry

4

1063

Fri Dec 04, 2009 1:05 pm

ErikaSlovakia View the latest post

There are no new unread posts for this topic. Dr Simka's newest

mrhodes40

5

1959

Mon Mar 01, 2010 1:43 pm

ClaireParry View the latest post

There are no new unread posts for this topic. Simka's latest!!

mrhodes40

8

1791

Wed Jun 10, 2009 2:13 pm

cheerleader View the latest post

There are no new unread posts for this topic. What is the best way to contact Dr Simka?

Mutley

12

1577

Wed Nov 18, 2009 12:41 pm

Mutley View the latest post

There are no new unread posts for this topic. Learning more about Dr Simka

ClaireParry

3

1261

Sat Jan 02, 2010 12:06 pm

ClaireParry View the latest post

 


Who is online

Users browsing this forum: No registered users

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: