This Is MS Multiple Sclerosis Community: Knowledge & Support

Thanks cheer for posting this paper. I wonder how that poor person without internal and external jugulars will be doing a few years post procedure...some kind of Turbo-charged MS?

I understand if people want to look into the possibility that blood can be re-routed effectively, but was simply asking WHICH docs claim that the IJVs are completely unimportant without having made these studies?

Note that e.g. the abstract of the paper you cited says that "Sacrifice of both internal and external jugular veins bilaterally has been recognized as a dangerous approach leading to intracranial hypertension with subsequent neurological sequela and death.", so at least these researchers don't seem to take it for granted.

Erika, thanks for the description of your procedure state-of-mind. Makes sense and explains your facial expression much better

http://www.cbc.ca/health/story/2009/11/ ... ccsvi.html
Canadian
How about your Country?
My Country (IRELAND)?
Slainte Mo Chara
Edser & Anna

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4

In my country has been silence since I started to inform patients on the forums. They wait but I do not understand for what. Only couple of individuals are trying to get the procedure in Poland. I think Slovak doctors need 7 years or more.
Only one private MR clinic has installed 3 Tesla MR in Bratislava 2 days ago. I am trying to motivate them to install SPIN software (SWI) and to use Haacke´s protocol.
I should know more next week.
I also think it will be fine with angiologists here. I am sceptic as for neurologists. Well, I do not need them so far.
Of course, it would be great advantage if they show at least interest. I am afraid patients are too passive.
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

Today 16.10pm 26/11/2009
My Neuro rang me & actually listened to me about CCSVI He is going to sort me out with the E112.This is to get a procedure/operation done outside your own country(IRELAND) but within Europe.If the procedure/operation is not available within your own country & that it may help you out in some way.
:-):-):-):-):-)THE TRUTH IS OUT THERE:-):-) :-):-):-):-):-)
Slainte Mo Chara
Edser & Anna

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4

Good evening,
In England it appears that ye do it a little different to us.There isn't actually a form & our GP's has nothing to do with the decission.It's between your consultant/Neuro & someother Dept in an other hospital.
Slainte Mo Chara
Edser & Anna

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4

Good for you!
We also have it as we are member of EU - the same E112, it just does not work. We have many written rights but it just does not work...
You neuro is a real action hero.
Congrats!
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

http://www.eurekalert.org/pub_releases/ ... 102309.php
Slainte Mo Chara
Edser & Anna

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4

Good Morning TiMS,
I'd just like to say thank's to everyone on this Forum for the help & knowledge that has been relayed to myself & my Mrs(ANNA) with regard's to everything MS related.We are flying off to Katowice to meet up with Dr Simka & his team this evening.I've an appointment with Marian 30/11/2009 so finger's crossed they can do something for me.I BELEIVE they can & will.A big thank you goes out to ANNA for all her help.She has been on the Polish Forum since 27/11/2008. 1Yr & 1 Day dayhttp://www.biegusy.zgora.pl/modules/ ... 72&forum=4
Anna KOCHAM CIE XxXxXxXxXxXx
Slainte Mo Chara
Edser & Anna.

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4

Hello Edser

Good luck to you - I hope the trip is a success for you!

I'm looking forward to hearing about the results - I'm going to see dr Simka on the 5th-8th dec too

christian

_________________
RRMS Dx'd 2009

Hey folks,

I got my diagnosis at the beginning of 2005 at the age of 35.
Luckily I am not suffering to much from my MS, me EDSS
is still zero and every 2,5 years I had a smaller incident
which had been cured with Cortisone.

But as everyone of us I'd be happy to get rid of the MS...
Unfortunately there is no one yet in Germany willing to help when it
comes to the CCSVI stuff.

That's why, right now, I have an eye on Poland, which is close
to Germany... Katowice is around 800 km away from my home.
It is, however, (much) closer than Italy or Canada...

I'm very very curious what Edser will have to tell us when he is back!

All the best to all of you!

Greetings from Hamburg/Germany
Harry

You'll also find more information about Dr. Simka and the people he examined on our German forum, e.g. here http://csvi-ms.net/forum/viewtopic.php?f=2&t=7

Hi Edser,

Good luck... all the best to you...tomorrow...

Hi Noxin,

Welcome. As you can see in the Topic "Going to Poland!!!" page 2 many of us are going to Katowice these days. If you are thinking about it you will find practical information about flights, hotels and so on... on that page 2.

Hi Edser,

I hope everything went well for you & that you are able to come back on & tell all.

I was curious as to how you got a scan or mrv done here in Ireland or where. I am in the west of Ireland. when I asked my gp, he patronisingly said to ask the Neuro when I next see him bearing in mind that the appointment isnt until feb/march.

I too contacted Dr Simka & he replied straight away but I would prefer to have the tests done here first if possible, so that it wouldn't be a wild goose chase.

This is my first post only found this info over a week ago. I feel inspired by everyone and grateful to all who are working so hard to bring us this information.

I received my diagnosis in oct 08 although there 's a question mark around it whatever that means. I am on Copaxone & lyrica & LDN

Take care

Maureen

Hello everyone. I am new to this discussion group, because I didn't know about CCSVI or Dr. Zamboni here in Canada until I heard about it on my return from a trip to Spain the weekend of Nov 21st. Since then I have been doing lots of research on the subject, and will book myself in for an MRV (and treatment, if Dr. Simka finds CCSVI problems) as soon as they start booking for the new year (which will be possible in a week). All your information about places to stay etc will be very helpful.

Does anyone know another part of this forum where people who have been treated (by whoever) provide information about their progress?

Hi,
I was the second in Poland 30 days ago.
You can find more here: http://www.thisisms.com/ftopict-8640.html
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse