Dr Simka (Poland)

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby radeck » Thu Nov 19, 2009 2:53 pm

Thanks cheer for posting this paper. I wonder how that poor person without internal and external jugulars will be doing a few years post procedure...some kind of Turbo-charged MS?

I understand if people want to look into the possibility that blood can be re-routed effectively, but was simply asking WHICH docs claim that the IJVs are completely unimportant without having made these studies?

Note that e.g. the abstract of the paper you cited says that "Sacrifice of both internal and external jugular veins bilaterally has been recognized as a dangerous approach leading to intracranial hypertension with subsequent neurological sequela and death.", so at least these researchers don't seem to take it for granted.

Erika, thanks for the description of your procedure state-of-mind. Makes sense and explains your facial expression much better :-)
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Postby Edser » Wed Nov 25, 2009 6:20 am

http://www.cbc.ca/health/story/2009/11/ ... ccsvi.html
Canadian :-)
How about your Country?
My Country (IRELAND)?
Slainte Mo Chara
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Postby ErikaSlovakia » Wed Nov 25, 2009 9:08 am

Edser wrote:http://www.cbc.ca/health/story/2009/11/23/multiple-sclerosis-zamboni-ccsvi.html
Canadian :-)
How about your Country?
My Country (IRELAND)?
Slainte Mo Chara
Edser & Anna

In my country has been silence since I started to inform patients on the forums. They wait but I do not understand for what. Only couple of individuals are trying to get the procedure in Poland. I think Slovak doctors need 7 years or more.
Only one private MR clinic has installed 3 Tesla MR in Bratislava 2 days ago. I am trying to motivate them to install SPIN software (SWI) and to use Haacke´s protocol.
I should know more next week.
I also think it will be fine with angiologists here. I am sceptic as for neurologists. Well, I do not need them so far.
Of course, it would be great advantage if they show at least interest. I am afraid patients are too passive.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby Edser » Thu Nov 26, 2009 9:23 am

Today 16.10pm 26/11/2009
My Neuro rang me & actually listened to me about CCSVI He is going to sort me out with the E112.This is to get a procedure/operation done outside your own country(IRELAND) but within Europe.If the procedure/operation is not available within your own country & that it may help you out in some way.
:-):-):-):-):-):-)THE TRUTH IS OUT THERE:-):-) :-):-):-):-):-):-)
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Postby Edser » Thu Nov 26, 2009 10:04 am

I still haven't managed to get that form as my GP refused!!
My neuro is also skeptical so he will not give it to me grrrr.
I am going to see if my private insurance will cover me, fingers crossed x

Good evening,
In England it appears that ye do it a little different to us.There isn't actually a form & our GP's has nothing to do with the decission.It's between your consultant/Neuro & someother Dept in an other hospital.
Slainte Mo Chara
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Postby ErikaSlovakia » Thu Nov 26, 2009 1:09 pm

Edser wrote:Today 16.10pm 26/11/2009
My Neuro rang me & actually listened to me about CCSVI He is going to sort me out with the E112.This is to get a procedure/operation done outside your own country(IRELAND) but within Europe.If the procedure/operation is not available within your own country & that it may help you out in some way.
:-):-):-):-):-):-)THE TRUTH IS OUT THERE:-):-) :-):-):-):-):-):-)
Slainte Mo Chara
Edser & Anna

Good for you!
We also have it as we are member of EU - the same E112, it just does not work. We have many written rights but it just does not work...
You neuro is a real action hero.
Congrats!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby Edser » Thu Nov 26, 2009 10:44 pm

Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
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Dr Simka

Postby Edser » Sat Nov 28, 2009 4:11 am

Good Morning TiMS,
I'd just like to say thank's to everyone on this Forum for the help & knowledge that has been relayed to myself & my Mrs(ANNA) with regard's to everything MS related.We are flying off to Katowice to meet up with Dr Simka & his team this evening.I've an appointment with Marian 30/11/2009 so finger's crossed they can do something for me.I BELEIVE they can & will.A big thank you goes out to ANNA for all her help.She has been on the Polish Forum since 27/11/2008. 1Yr & 1 Day dayhttp://www.biegusy.zgora.pl/modules/ ... 72&forum=4
Anna KOCHAM CIE XxXxXxXxXxXx
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Postby IbRiz » Sat Nov 28, 2009 7:33 am

Hello Edser

Good luck to you - I hope the trip is a success for you!

I'm looking forward to hearing about the results - I'm going to see dr Simka on the 5th-8th dec too :)

christian
RRMS Dx'd 2009
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curious...

Postby Noxin » Sun Nov 29, 2009 7:17 am

Hey folks,

I got my diagnosis at the beginning of 2005 at the age of 35.
Luckily I am not suffering to much from my MS, me EDSS
is still zero and every 2,5 years I had a smaller incident
which had been cured with Cortisone.

But as everyone of us I'd be happy to get rid of the MS...
Unfortunately there is no one yet in Germany willing to help when it
comes to the CCSVI stuff.

That's why, right now, I have an eye on Poland, which is close
to Germany... Katowice is around 800 km away from my home.
It is, however, (much) closer than Italy or Canada... :)

I'm very very curious what Edser will have to tell us when he is back!

All the best to all of you!

Greetings from Hamburg/Germany
Harry
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Postby Ana » Sun Nov 29, 2009 9:14 am

You'll also find more information about Dr. Simka and the people he examined on our German forum, e.g. here http://csvi-ms.net/forum/viewtopic.php?f=2&t=7 :wink:
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Postby Pepe » Sun Nov 29, 2009 9:32 am

Hi Edser,

Good luck... all the best to you...tomorrow...

Hi Noxin,

Welcome. As you can see in the Topic "Going to Poland!!!" page 2 many of us are going to Katowice these days. If you are thinking about it you will find practical information about flights, hotels and so on... on that page 2.
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Postby irishmum » Wed Dec 02, 2009 9:01 am

Hi Edser,

I hope everything went well for you & that you are able to come back on & tell all.

I was curious as to how you got a scan or mrv done here in Ireland or where. I am in the west of Ireland. when I asked my gp, he patronisingly said to ask the Neuro when I next see him bearing in mind that the appointment isnt until feb/march.

I too contacted Dr Simka & he replied straight away but I would prefer to have the tests done here first if possible, so that it wouldn't be a wild goose chase.

This is my first post only found this info over a week ago. I feel inspired by everyone and grateful to all who are working so hard to bring us this information.

I received my diagnosis in oct 08 although there 's a question mark around it whatever that means. I am on Copaxone & lyrica & LDN

Take care

Maureen
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A Canadian Newbie

Postby fiddler » Thu Dec 03, 2009 1:09 pm

Hello everyone. I am new to this discussion group, because I didn't know about CCSVI or Dr. Zamboni here in Canada until I heard about it on my return from a trip to Spain the weekend of Nov 21st. Since then I have been doing lots of research on the subject, and will book myself in for an MRV (and treatment, if Dr. Simka finds CCSVI problems) as soon as they start booking for the new year (which will be possible in a week). All your information about places to stay etc will be very helpful.

Does anyone know another part of this forum where people who have been treated (by whoever) provide information about their progress?
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Re: A Canadian Newbie

Postby ErikaSlovakia » Thu Dec 03, 2009 1:33 pm

fiddler wrote:Does anyone know another part of this forum where people who have been treated (by whoever) provide information about their progress?

Hi,
I was the second in Poland 30 days ago.
You can find more here: http://www.thisisms.com/ftopict-8640.html
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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