CCSVI on TIMS front page?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI on TIMS front page?

Postby ibex » Sat Oct 31, 2009 12:26 pm

Hi

What about writing a CCSVI news article to the TIMS front page?

It seems that the latest news article was added in 2007. Compare with http://www.thisisms.com/archive.html

I think it's better if a native speaker writes a text. The submit link can be found on the front page.

Thanks to Juan for suggesting this.

Regards,
ibex
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Re: CCSVI on TIMS front page?

Postby Pepe » Sun Nov 01, 2009 12:45 am

ibex wrote:What about writing a CCSVI news article to the TIMS front page?


Good idea... and what about writing a sticky post called WHO IS WHO in CCSVI? As I told you I am a newcomer... and I realised that I must pay attention to CCSVI when I arrived to the list of the Scientific Board's members of the italian Foundation. IMHO this "WHO IS WHO in CCSVI" post could give to the CCSVI paradigma a big dose of relevance and realibility.

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Pepe.
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Postby cah » Sun Nov 01, 2009 5:54 am

A "Who is who"-Sticky is a really good idea. It took me quite a while to understand who's Dr. Zamboni, Dake, Haake, Simka et al, where they are and what they do. And I'm stil not sure if I got it right.

Until yesterday, I didn't know that Dr. Simka is female... :)

Ok, that doesn't really matter, but knowing who these people are helps not only to trust them but also to overcome the inhibition to contact them.
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Postby ErikaSlovakia » Sun Nov 01, 2009 6:27 am

cah wrote:Until yesterday, I didn't know that Dr. Simka is female... :)

Ok, that doesn't really matter, but knowing who these people are helps not only to trust them but also to overcome the inhibition to contact them.

Hi, well Dr. Simka is a man. A German article confused many people. They wrote about "Wissenschaftlerin" as you know, in German it is a woman. They just made this little mistake. Everybody, including me who read that article in a magazine believed Dr. Simka was a woman.
I met him couple of times. He is a man.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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CCSVI Who is who?

Postby ibex » Sun Nov 01, 2009 9:27 am

Pepe wrote:WHO IS WHO in CCSVI?

I've created a FAQ page on our site:
CCSVI: Who is who?

It's a starting point... if I find more time I'll enhance it...

It may interest you.

Regards,
ibex
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Postby Ana » Sun Nov 01, 2009 3:13 pm

Thanks for the link. I must admit I have overlooked it before :oops: .
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