Hope Happens in St. Louis

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Hope Happens in St. Louis

Postby ozarkcanoer » Sun Nov 01, 2009 11:36 am

Hi,

I have a meeting this coming Wednesday, Nov 4, with THomas A. Woolsey (Google his name) and other researchers at the Hope Center for Neurological Disorders here in St. Louis. Please look at their website :

http://hopecenter.wustl.edu

I have already talked to Dr. Woolsey about CCSVI and he is cautiously favorable to the idea, but says he doesn't know much about MS. I hope I will get to talk to some MS researchers and show them the web information on CCSVI. And I hope they will have open minds. I am baking a cake to take with me and when I talk to them about CCSVI they will all be on sugar highs, LOL. I have looked at the research that is happening at the Hope Center and it all seems to be based on neuroimmunology. I hope my CCSVI spiel will be received favorably by some of the researchers. Wish me luck !!!!! And I will keep you posted, for better or for worse.
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Postby bestadmom » Sun Nov 01, 2009 12:11 pm

If you have a hard time, here are 2 more in St.Louis:

Luis A. Sanchez, MD
Professor of Surgery and Radiology
Washington University School of Medicine
Attending Surgeon
Barnes-Jewish Hospital
St. Louis, Missouri

Thomas M. Vesely, MD
Interventional Radiologist
Vascular Access Center of Frontenac Grove
St. Louis, Missouri

They are both going to a vascular symposium in NY Nov. 18-22 and Dr. Dake is presenting at some of the seminares there. Mybe they know him and will reach out.
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Postby bestadmom » Sun Nov 01, 2009 12:16 pm

Ozarkcanoer,

And good luck at your meeting. He's got a real interesting background and sounds like someone who will understand CCSVI nd how it can cause MS.

Michelle
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Postby ozarkcanoer » Sun Nov 01, 2009 12:24 pm

bestadmom, you know my city better than I do, LOL. I will look into this !! I can mention Luiis Sanchez to the medical school professors that I am going to meet with. Maybe they can arrange for me to talk to him rather than my just making a "cold call".

I have contacted one cardio-vascular professor/physician at Washington University, Dr. Alan Braverman. He just so happens to be my husband's cardiologist (hubby has atrial fibirillation). This Hope Center visit is my foot in the door so to speak. I have also mailed my information packets to several other M.D.s, including my own PCP and MS neurologist. CCSVI was presented at ECTRIMS, but when my neurologist had a webcast reporting his findings from ECTRIMS he didn't say one thing about CCSVI.

Oh well.... I am plugging away here in St. Louis. My biggest problem now is getting my cake to the medical center, LOLOL.
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Postby ozarkcanoer » Sun Nov 01, 2009 12:51 pm

bestadmom, I have an email address I found online for Dr. Vesely's practice. I can make a "cold call" email to him (he has a private practice, just him, it the wealthy part of town, not very far from me... but I am not BY ANY MEANS wealthy), but it would be nice to know the conference name where Dr. Dake will be speaking. Do you happen to know it ???

As for Dr. Sanchez.... I'm going to see what I can do. I know where he is... the medical school is not far from where I live also (I'm right in the thick of things here in St. Louis, LOL). Again, if I contact Dr. Sanchez then the conference name would also be useful. Thanks.....
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Postby bestadmom » Sun Nov 01, 2009 1:19 pm

The conference is http://www.veithsymposium.org/index.php

Look at the program. There are hundreds of topics and speakers going on for 5 days. It looks like lots of the talks are just 5 minutes. Dr. Dake is speaking at several on the 18th and 19th. Nothing about CCSVI, however. Maybe next year!
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Postby ozarkcanoer » Sun Nov 01, 2009 1:50 pm

bestadmom... I have emailed Dr. Vesely... just minutes ago. I hope the wording of my email catches his attention.

Full of HOPE !!!

ozark
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Postby bestadmom » Sun Nov 01, 2009 2:45 pm

Good luck with DR. Vesely and your appt on Weds. Pls keep us in the loop.
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Postby escape_goat » Sun Nov 01, 2009 3:13 pm

Definitely keep us posted on how things go .. I am in STL, and wishing there were some more opportunities to look into this around our neck of the woods.
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Postby bestadmom » Sun Nov 01, 2009 3:21 pm

Hey Escape_goat (love the name), there's power in numbers. If tyhee guys hear about CCSVI more than once they won't be able to ignore it.
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My Meeting at the Hope Center for Neurological Disorders

Postby ozarkcanoer » Wed Nov 04, 2009 6:42 pm

Today I visited the Hope Center for Neurological Disorders :

http://hopecenter.wustl.edu

Today I had 1 1/2 hours with Dr. Thomas A. Woolsey (google him) and Matthew Stone, Administrative Director of the Hope Center. CCSVI was my topic. Dr Zamboni, Dr Dake, Dr Haacke were my subjects of conversation, especially Dr Zamboni (of course). I handed out my information packets about Dr Zs research, about Dr. Dake, about Dr. Zivadinov's blinded trial. One of these information packets will go to Dr. Anne Cross (google her).

I expounded, I orated, I put fleas in their ears, LOL. The name Zamboni came out of my mouth constantly. I mentioned mouse models. I mentioned that Dr Zamboni spoke at Harvard October 14.

Well Washington University is the "Harvard of the midwest". Dr Woolsey casually mentioned that maybe they could invite Dr Zamboni to talk at Washington University.

After I returned home I started blasting Matthew Stone with emails about CCSVI. Absolutely NO DOUBT that I got their attention. I was asked to volunteer to be an "interpreter of research" for the Hope Center. The seed is planted here in St Louis. I will help it flourish and grow.

After I have my imaging done on December 7th at Dr Haacke's facility in Detroit (I volunteered), I will bring my scans back home. I know the Hope Center will help me find the proper vascular people to talk to. I want "Liberation" procedures to begin in St Louis. If I have stenosis, then I WANT TO BE LIBERATED !!!!!!
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Postby bestadmom » Wed Nov 04, 2009 7:02 pm

Yes, yes, yes. You did it!!!

You now have made friends at the right place and they have asked you to team up with them. You must be flying high.

And you must bake a heck of a cake!!

The fact that you will be able to bring them your scans will make it real for them and they will make it real for you.

Michelle
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Postby bestadmom » Wed Nov 04, 2009 7:10 pm

I googled Anne Cross and this is what I saw down the bio page:

A curative combination (is this kismetor what?)

Early in her career, Cross was able to learn about the diverse aspects of MS from an equally diverse range of opportunities and mentors.

She had fallen in love with and married her classmate at the University of Alabama School of Medicine, DeWitte T. Cross III, M.D., now an associate professor of radiology and of neurological surgery and director of interventional neuroradiology at Washington University.

I'd say they are the winning team in St. Louis for CCSVI. She'll get to cure her patients by referring them to her husband for the surgery. The "curative combination".
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Postby CRHInv » Wed Nov 04, 2009 8:11 pm

Wow! Wow! Wow! Way to go! You really did do it.
This great, encouraging news.
Good job!
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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Postby ozarkcanoer » Wed Nov 04, 2009 8:25 pm

bestadmom... You are such a good researcher... I also found that article on Anne Cross. There is a campus newspaper called "The Record" that profiled her back in 2004. Interesting about her husband. Maybe he's the guy I should talk to after my Detroit trip !!!

The packet of information I left at the Hope Center for her has my email address printed on the manila envelop. Maybe she will respond !!!!!
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