I have been accepted by Dr. Haacke !!!!!!!
- beechwood297
- Getting to Know You...
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- Joined: Wed Oct 21, 2009 2:00 pm
I talked to Dr. Haacke today. He seems very interested in my case because I only have one jugular and it is so severely compressed. Also because I have no diagnosis. I am scheduled for scans next Tuesday the 10th.
For those who haven't seen my scans : http://www.thisisms.com/ftopict-8515.html
Hopefully all goes well and the info from my case can help all others involved.
Joel
For those who haven't seen my scans : http://www.thisisms.com/ftopict-8515.html
Hopefully all goes well and the info from my case can help all others involved.
Joel
- ozarkcanoer
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- Location: St. Louis, Missouri
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- ozarkcanoer
- Family Elder
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- Joined: Thu Oct 15, 2009 2:00 pm
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Dr. Haacke's study coordinator, Paula Morton, called me at 6:00 A.M. this morning !!!! What a way to wake up, LOL. We got straightened out what documentation I will need from my PCP and neuro. Things are rolling... gonna see my PCP this Friday Nov 6 and my MS neuro next Thursday Nov 12 and get all the documentation I could possibly need. I Fedexed my latest MRIs to Paula last night.
PLUS, tomorrow (let's all sing "The sun'll come out tomorrow !!!!" I am finally having my meeting with Thomas A. Woolsey and other researchers at the Hope Center for Neurological Disorders here in St. Louis. I am going prepared to bend a lot of ears on CCSVI !!!!!!!! Tomorrow is going to be a long day.... I will let you all know what happens !!!!!
PLUS, tomorrow (let's all sing "The sun'll come out tomorrow !!!!" I am finally having my meeting with Thomas A. Woolsey and other researchers at the Hope Center for Neurological Disorders here in St. Louis. I am going prepared to bend a lot of ears on CCSVI !!!!!!!! Tomorrow is going to be a long day.... I will let you all know what happens !!!!!
- ozarkcanoer
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- ozarkcanoer
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bestadmom (and everyone else too), I emailed Dr. Haacke's research coordinator and asked her if I would get the results and the scans. She asked Dr. Haacke, and this morning I got a reply that I WOULD get the results. I am just worried that without the ultrasound the results will be negative. Dr. Haacke in his first email to me warned me that the imaging is not like what Dr. Zamboni did (which was Doppler ultrasound) and therefore the results MAY be inconclusive.
- kbpwindsor
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- ozarkcanoer
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kbpwindsor,
Here is Dr Haacke's MS-MRI website. Everything you need to know is right there. I am in a pilot study of just 10-20 people or so. I think that Dr Haacke wants to extend his study when he gets more funding. Maybe you could ask your local multiple sclerosis society to help fund Dr Haacke's research in Canada. I think sometime in the next few months there will be some sites in Canada (3 I think) that will be doing the imaging.
http://www.ms-mri.com/
Keep your hopes high !!!
ozark
Here is Dr Haacke's MS-MRI website. Everything you need to know is right there. I am in a pilot study of just 10-20 people or so. I think that Dr Haacke wants to extend his study when he gets more funding. Maybe you could ask your local multiple sclerosis society to help fund Dr Haacke's research in Canada. I think sometime in the next few months there will be some sites in Canada (3 I think) that will be doing the imaging.
http://www.ms-mri.com/
Keep your hopes high !!!
ozark