I have been accepted by Dr. Haacke !!!!!!!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

I have been accepted by Dr. Haacke !!!!!!!

Postby ozarkcanoer » Mon Nov 02, 2009 7:42 am

About 10 minutes ago I received an email from Dr. Haacke himself !!! He has accepted me into his MS-MRI study in Detroit !!!!!!!!!!!!! I can hardly control my excitement !!! Of course I immediately emailed his research coordinator to begin all the scheduling and arrangements. My husband and I will drive to Detroit one day, have the imaging done the next, then drive home the next day !!!!! I'll keep you all posted....

YIPPEE !!!!!!!!!!!!!!!!!!!

:D :D :D :D :D :D :D 8) 8) 8) :lol: :lol: :lol: :lol:
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Postby Edser » Mon Nov 02, 2009 8:37 am

Excellent stuff,i hope it all goes well.
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Postby ozarkcanoer » Mon Nov 02, 2009 8:47 am

Thanks Edser....

More info... Dr. Haacke's research coordinator, Paula Morton, just called me. I have to get a blood test to make sure my kidneys are OK, something called a GFR, and have my medical records faxed to Detroit. Then I will have the imaging done within 30 days of the GFR test : that would be in November or maybe December.

We are going to drive to Detroit... a 9 hour drive. I just hope we don't have a snow storm on the way there or the way back. I'm just bursting with excitement !!!!!
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Postby mrhodes40 » Mon Nov 02, 2009 9:10 am

I can't wait to hear what comes of this stuff!
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby bestadmom » Mon Nov 02, 2009 10:59 am

SO EXCITING!!
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Postby ozarkcanoer » Mon Nov 02, 2009 11:07 am

mrhodes40, I can't wait either. I just drove to my neuro's office to sign the release form to have my medical records copied. The receptionist said a copying company comes to their office to make the copies and it will get done sometime in the next month. Golly it takes a whole month to get my records copied !!!!!! 8O :? 8O :? She couldn't be more specific.... grrrrr !

I also told the nurse that I need the GFR (glomerular filtration rate) blood test for kidney function.

So now I gotta wait... I'm not too good at waiting, LOL.
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Postby bestadmom » Mon Nov 02, 2009 11:23 am

OC,

I'd be copying those records myself! I know what you mean about hating to wait.
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Postby Sawdoggie » Mon Nov 02, 2009 11:28 am

A month sounds crazy. I called my neuro's office to get a copy of my records and MRI CD to send to Buffalo and Stanford and had everything before the end of the day. Waiting sucks!
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Postby Sharon » Mon Nov 02, 2009 11:41 am

Ozark -- great news -- I hope Haacke gets all his volunteers.
I signed up to volunteer, but he may not be taking anyone with the stents.

A suggestion on your records for the future - never leave a doctor's office without requesting a copy of the written record. Same thing goes with blood tests, CT's MRI's- always sign the piece of paper which authorizes release to you. You may have to pay a small amount of money for the copies.

Sharon
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Postby ozarkcanoer » Mon Nov 02, 2009 11:46 am

I asked the receptionist if my husband and I could copy the records ourselves and the answer was an emphatic NO. I have an appointment with my neurologist November 12 and I will see if it can be expedited. It is so hard to even see these doctors and get MY OWN records that I paid for. Dr. Haacke's research coordinator wants me to come in November but how can I when I am waiting for records !!!!!!
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Postby bestadmom » Mon Nov 02, 2009 11:51 am

Can you ask Dr. Haacke's office to call and have them expedited?

mb
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Postby bestadmom » Mon Nov 02, 2009 11:53 am

Will you be able to get results to know if you have stenosis?
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Postby ozarkcanoer » Mon Nov 02, 2009 12:02 pm

I have a copy of my last MRI on CD and my husband is making a copy of it right now. I am going to Fedex the CD this afternoon to Detroit.

I don't know if I will get the of the MS-MRI results myself. They did tell me that the imaging is free for me. I think I will get the results because this isn't a blinded study, but I will ask.

As for expediting it, I guess I could ask. Frankly, after being stonewalled at my neruo's office an hour ago I'm not too optimistic. If I don't have the records by the 12th I am going to raise holy heck at my neuro appointment !!!
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Postby Loobie » Mon Nov 02, 2009 1:42 pm

Michigan?? Maybe I can have my one year stent check up done up there instead of having to fly to California. It would be awesome to just drive......
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Postby ozarkcanoer » Mon Nov 02, 2009 2:36 pm

Hey Loobie !!! When we go to Detroit we may take highway 70 to Dayton and then go north toward Lima and then up to Detroit. I grew up in a small town near Lima (called Russels Point). I'll wave to you as we pass Dayton !!!!!!
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