I have been accepted by Dr. Haacke !!!!!!!
- ozarkcanoer
- Family Elder
- Posts: 1273
- Joined: Thu Oct 15, 2009 2:00 pm
- Location: St. Louis, Missouri
- Contact:
I have been accepted by Dr. Haacke !!!!!!!
About 10 minutes ago I received an email from Dr. Haacke himself !!! He has accepted me into his MS-MRI study in Detroit !!!!!!!!!!!!! I can hardly control my excitement !!! Of course I immediately emailed his research coordinator to begin all the scheduling and arrangements. My husband and I will drive to Detroit one day, have the imaging done the next, then drive home the next day !!!!! I'll keep you all posted....
YIPPEE !!!!!!!!!!!!!!!!!!!
YIPPEE !!!!!!!!!!!!!!!!!!!
- ozarkcanoer
- Family Elder
- Posts: 1273
- Joined: Thu Oct 15, 2009 2:00 pm
- Location: St. Louis, Missouri
- Contact:
Thanks Edser....
More info... Dr. Haacke's research coordinator, Paula Morton, just called me. I have to get a blood test to make sure my kidneys are OK, something called a GFR, and have my medical records faxed to Detroit. Then I will have the imaging done within 30 days of the GFR test : that would be in November or maybe December.
We are going to drive to Detroit... a 9 hour drive. I just hope we don't have a snow storm on the way there or the way back. I'm just bursting with excitement !!!!!
More info... Dr. Haacke's research coordinator, Paula Morton, just called me. I have to get a blood test to make sure my kidneys are OK, something called a GFR, and have my medical records faxed to Detroit. Then I will have the imaging done within 30 days of the GFR test : that would be in November or maybe December.
We are going to drive to Detroit... a 9 hour drive. I just hope we don't have a snow storm on the way there or the way back. I'm just bursting with excitement !!!!!
- ozarkcanoer
- Family Elder
- Posts: 1273
- Joined: Thu Oct 15, 2009 2:00 pm
- Location: St. Louis, Missouri
- Contact:
mrhodes40, I can't wait either. I just drove to my neuro's office to sign the release form to have my medical records copied. The receptionist said a copying company comes to their office to make the copies and it will get done sometime in the next month. Golly it takes a whole month to get my records copied !!!!!! She couldn't be more specific.... grrrrr !
I also told the nurse that I need the GFR (glomerular filtration rate) blood test for kidney function.
So now I gotta wait... I'm not too good at waiting, LOL.
I also told the nurse that I need the GFR (glomerular filtration rate) blood test for kidney function.
So now I gotta wait... I'm not too good at waiting, LOL.
Ozark -- great news -- I hope Haacke gets all his volunteers.
I signed up to volunteer, but he may not be taking anyone with the stents.
A suggestion on your records for the future - never leave a doctor's office without requesting a copy of the written record. Same thing goes with blood tests, CT's MRI's- always sign the piece of paper which authorizes release to you. You may have to pay a small amount of money for the copies.
Sharon
I signed up to volunteer, but he may not be taking anyone with the stents.
A suggestion on your records for the future - never leave a doctor's office without requesting a copy of the written record. Same thing goes with blood tests, CT's MRI's- always sign the piece of paper which authorizes release to you. You may have to pay a small amount of money for the copies.
Sharon
- ozarkcanoer
- Family Elder
- Posts: 1273
- Joined: Thu Oct 15, 2009 2:00 pm
- Location: St. Louis, Missouri
- Contact:
I asked the receptionist if my husband and I could copy the records ourselves and the answer was an emphatic NO. I have an appointment with my neurologist November 12 and I will see if it can be expedited. It is so hard to even see these doctors and get MY OWN records that I paid for. Dr. Haacke's research coordinator wants me to come in November but how can I when I am waiting for records !!!!!!
- ozarkcanoer
- Family Elder
- Posts: 1273
- Joined: Thu Oct 15, 2009 2:00 pm
- Location: St. Louis, Missouri
- Contact:
I have a copy of my last MRI on CD and my husband is making a copy of it right now. I am going to Fedex the CD this afternoon to Detroit.
I don't know if I will get the of the MS-MRI results myself. They did tell me that the imaging is free for me. I think I will get the results because this isn't a blinded study, but I will ask.
As for expediting it, I guess I could ask. Frankly, after being stonewalled at my neruo's office an hour ago I'm not too optimistic. If I don't have the records by the 12th I am going to raise holy heck at my neuro appointment !!!
I don't know if I will get the of the MS-MRI results myself. They did tell me that the imaging is free for me. I think I will get the results because this isn't a blinded study, but I will ask.
As for expediting it, I guess I could ask. Frankly, after being stonewalled at my neruo's office an hour ago I'm not too optimistic. If I don't have the records by the 12th I am going to raise holy heck at my neuro appointment !!!
- ozarkcanoer
- Family Elder
- Posts: 1273
- Joined: Thu Oct 15, 2009 2:00 pm
- Location: St. Louis, Missouri
- Contact: