Erika is in Katowice

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Needled » Tue Nov 03, 2009 12:30 pm

I'm so excited for her!!! This is just great. I can't wait to hear about it all, or maybe even see it?? 8O
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Postby gibbledygook » Tue Nov 03, 2009 1:11 pm

Go Erika!
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,
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Postby ErikaSlovakia » Sat Nov 07, 2009 12:29 pm

Ana wrote:Rici posted again. He says that Erika told him that she will get 3 stents. It seems that they are preparing her for the operation as she gets no food by now since this morning. The operation will be probably tomorrow. Before they only have to do a MRT, but only a basic one.

No, I told him may be 3. I did not want to inform anybody before I AND THE DOCTORS KNOW MORE: I DID NOT WANT TO CREATE THIS CHAOS.

Well, but I will get out of that. You people will just have to wait more for my normal posts, but it is not my fault. At least you had fun.
They had to check my bracheocephalic vein better. It was not clear if I had stenosis also there. They wanted to be ready for the phlebography which is correct.
But I was not sure, what, when and if we do it. This is not a joke. I prefer to give you only exact information.
But Rici is nice.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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Postby ErikaSlovakia » Sat Nov 07, 2009 12:35 pm

Fatima wrote:Hi everybody.
Rici posted again and wrote that everything was ok with Erika's MRI. They couldn't talk long because she already had an infusion (glucose and contrast fluid), what means that she is in preparation for the operation.

Erika says hello to everybody.


Fátima

Contrast? I thaught it was just fyziological fluid - the nurse told me. I was told to get some contrast fluid during the procedure, because of the phlebography.
Well, this is new for me. I do not think it was contrast. For what? I just was in bed watching Polish TV at that time.
They had to give me a lot of fluid after the procedure to get the contrast out of my body.
Well, as I say - chaos...
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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Location: Slovakia, Europe

Postby ErikaSlovakia » Sat Nov 07, 2009 12:44 pm

Ana wrote:Hello to all,

Rici posted again: THE PROCEDURE WAS A FULL SUCCESS!!!!

He phoned with Dr. Simka and Dr. Ludyga. It seems there was also a TV set there!

I'm so glad!!!!!

Yes, this is correct information. There were 2 people from TV during whole procedure, also before and after. I hope to get contact soon to ask for the link. They told me I could watch it na Canada, Germany and Katowice. I was too busy during the procedure so I did not ask for the contact. Sorry :D
I also got a CD from the procedure but as I have to answer all the e-mails and PMs, correct some wrong information, I did not even had time to look at it. Of course, I have more information.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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Posts: 1123
Joined: Wed Jul 29, 2009 3:00 pm
Location: Slovakia, Europe

Postby ErikaSlovakia » Sat Nov 07, 2009 12:50 pm

Ernst wrote:
Ana wrote:Yes, Rici posted that TV Silesia was there and they'll report about it.


Would be nice to see that -- maybe in youtube? Somebody please...


Hi, I have asked Dr. Simka to ask Dr. Ludyga to send me the full contact of this TV. I only think we will be able to watch it online.
I am working on it. I will also contact Slovak TV, because this is impossible. To be honest I need at least 3 assistents who speak the same languages and have the same knowladges and iformation.
I am overworked.
I do not feel my stent. Only my bruises are little bit painful.

Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
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Posts: 1123
Joined: Wed Jul 29, 2009 3:00 pm
Location: Slovakia, Europe

Postby ErikaSlovakia » Sat Nov 07, 2009 12:51 pm

Ana wrote:I'm sure that the film will be sooner or later online! Rici has polish TV so I'm sure he'll record it.

Oh, great!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
Family Elder
 
Posts: 1123
Joined: Wed Jul 29, 2009 3:00 pm
Location: Slovakia, Europe

Postby ErikaSlovakia » Sat Nov 07, 2009 1:08 pm

I want to thank you all for the best wishes!
You know I was "fishing" your positive thaughts. I know you were all by my side.
Thank you so much!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
Family Elder
 
Posts: 1123
Joined: Wed Jul 29, 2009 3:00 pm
Location: Slovakia, Europe

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