Erika`s procedure in Poland

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby CRHInv » Wed Nov 04, 2009 7:36 am

Bless your heart Erika! All I can say is "wow!" I hope you can rest well and have a very safe journey home. You are really an inspiration!
Take good care,
Beth
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
User avatar
CRHInv
Family Elder
 
Posts: 403
Joined: Sun Aug 30, 2009 3:00 pm
Location: Chandler, AZ

Advertisement

Postby mrhodes40 » Wed Nov 04, 2009 8:11 am

I feel so happy for you!! congratulations and I hope you heal well and quickly... :D :D
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
User avatar
mrhodes40
Family Elder
 
Posts: 2067
Joined: Thu Sep 23, 2004 3:00 pm
Location: USA

Postby Sharon » Wed Nov 04, 2009 8:22 am

Erika, your patience and your deligence has been an inspiration to all of us. Now it is time to relax and to heal. I will be looking forward to hearing about your one stent and your recovery. Congratulations!

Sharon
User avatar
Sharon
Family Elder
 
Posts: 1282
Joined: Sun Nov 07, 2004 4:00 pm
Location: Colorado

Postby mormiles » Wed Nov 04, 2009 8:28 am

Peace be with you, Erika. May God bless you with healing and recovery and a happy life.
Joyce (aka cypriane)~caregiver and advocate in Dallas for Steve (SPMS)----"Enter through the narrowgate..."
mormiles
Family Elder
 
Posts: 215
Joined: Tue Mar 07, 2006 4:00 pm
Location: 75098

Postby HappyPoet » Wed Nov 04, 2009 12:15 pm

Erika, you did it, girl!

My husband was born in Poland, and I tell him Poland is where I should go to have my stent surgery (assuming I have stenosis, that is).

We both wish you a speedy recovery.

Best wishes, Erika!!
User avatar
HappyPoet
Family Elder
 
Posts: 1413
Joined: Thu Jul 09, 2009 3:00 pm

Postby skydog » Wed Nov 04, 2009 2:59 pm

Congratulations Erica, You have opened many doors across the globe with your steadfast determination. You are in are collective thoughts and prayers. Peace and Health to You! Mark
Plant a BIG Garden Live in the Moment
User avatar
skydog
Family Elder
 
Posts: 306
Joined: Tue Feb 24, 2009 4:00 pm
Location: North Oregon Coast

Postby Needled » Wed Nov 04, 2009 4:53 pm

Erika, I'm so glad everything went well. It's wonderful to see so many people from all over the world cheering you on. You are amazing and an inspiration to all of us.
User avatar
Needled
Family Elder
 
Posts: 361
Joined: Wed Jan 14, 2009 4:00 pm
Location: Connecticut

Postby ErikaSlovakia » Fri Nov 06, 2009 6:35 am

Wow, so many posts! I am surprised. Thank you all!!!
I am so happy I do not know where to start.
I am 100% sure it was correct what I did - the procedure.

Well, at the moment I am at the train station In Katowice. I am waiting for my train to Slovakia.

Day -1: it means the day before the procedure. I came to the hospital at 2 pm. I just had blood draw and I was filling some forms with the nurse. I do not have big problems with Polish language. It was Monday.
Day 0 - Dr Hartel - the radiologist from Zabrze came to pick me up about 10:30. I had another MR, it was about 40 minutes. They wanted to check something again. I was waiting there for Dr. Simka - he had some another patients from Slovakia that day. He talked to Dr. Hartel about my left jugular vein. I did not have stenosis in mz right jugular - the vein only looks ugly (some people have ugly ears I have ugly right jugular - well I must live with that...)
The problem was in my low jugular vein, not stenosis but the valve was not OK. The pictures were clear. It was similar problem as Rici had.
We went by car back to Katowice - my procedure started about 4:30 pm. I was back in my bed at 6 pm. There was also local TV an they documented with camera whole procedure.
The procedure is extremely easy. It is really nothing. I was not scared AT ALL. So I got one stent in my left jugular vein.
I could have the procedure twice a day without any problem.
At 8 pm I saw my head was not that "foggy". I liked to look at the wall and other things in my room. I had to stay in bed for 13 hours. I did not want any catheter for urinating. I had to call the nurse couple of times during the night. It was hard to empty my bladder the first and the second time. I did not have any third arm to push my bladder. The other 4 times it was easy - which was good because I have some bruises from the heparin injections on my belly. I can not even touch it - but it is my fault - I will explain later.
Day 1:The next day I was NOT TIRED AT ALL!!! It is strange because I slept only 5 hours. At about 5 pm I was in my hotel already.
I go to write now something to the German and Slovak and Czech Forums.
Erika
Last edited by ErikaSlovakia on Mon Nov 09, 2009 12:51 am, edited 1 time in total.
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
Family Elder
 
Posts: 1125
Joined: Wed Jul 29, 2009 3:00 pm
Location: Slovakia, Europe

Postby Edser » Fri Nov 06, 2009 6:53 am

Excellent stuff Erika :D I'm glad everything went well for you.This work that Dr Simka is doing appears to be doing wonders for people like us with MS.Dr Simka thank you from the bottom of my heart :D
Slainte Mo Chara
Edser & Anna
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
Edser
Family Elder
 
Posts: 152
Joined: Mon Oct 26, 2009 4:00 pm
Location: Co.Cork.Ireland.

Postby Ernst » Fri Nov 06, 2009 7:05 am

Nice to hear from you! And please keep raporting? Is it ok, that I copy/paste your reply to Finnish forum?
My wife's 3 yrs post video: http://www.youtube.com/watch?v=eLeqLps8XR8

Our family: http://www.youtube.com/watch?v=p_QCKxeQAlg
User avatar
Ernst
Family Elder
 
Posts: 294
Joined: Sat Nov 15, 2008 4:00 pm
Location: Rovaniemi

Postby bestadmom » Fri Nov 06, 2009 7:10 am

I'm so happy for you and can't wait to hear more. Your story is my addiction!!!
User avatar
bestadmom
Family Elder
 
Posts: 722
Joined: Mon May 18, 2009 3:00 pm
Location: CT

Postby ikulo » Fri Nov 06, 2009 9:51 am

Ahoj Erika,

My parents speak slovak and I was wondering if you could post a link to the slovak forums here, or private message me the link if you prefer. I'd like to send it to them so that they can participate in the discussions.

Thanks!
User avatar
ikulo
Family Elder
 
Posts: 444
Joined: Tue Aug 04, 2009 3:00 pm
Location: colorado

Postby BBE » Fri Nov 06, 2009 9:58 am

BBE
Family Member
 
Posts: 65
Joined: Sat Sep 05, 2009 3:00 pm
Location: Slovakia

Postby Edser » Fri Nov 06, 2009 10:20 am

http://www.staypoland.com/en/katowice/h ... html?box=4
I've booked into this Hotel,for my visit to Dr Simka,on Erika's recomdation.I hope everything is going well for everyone who had the procedure done by Dr Simka & his team :D
Slainte Mo Chara
Edser & Anna
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
Edser
Family Elder
 
Posts: 152
Joined: Mon Oct 26, 2009 4:00 pm
Location: Co.Cork.Ireland.

Postby Pepe » Fri Nov 06, 2009 11:23 pm

Congratulation Erika... your happiness is our happiness.
Pepe.
User avatar
Pepe
Family Elder
 
Posts: 141
Joined: Sat Oct 17, 2009 3:00 pm

PreviousNext

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service