Blast off in 4, 3, 2, 1...

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby bestadmom » Tue Nov 10, 2009 6:48 pm

Ditto what OC posted. I'm so happy for you!!!!
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Postby CRHInv » Wed Nov 11, 2009 8:56 am

Hi! I am sitting up waiting to see Dr Dake. I am doing really well. I am only taking half a percoset(sp?) And making sure I have food in me first. My neck is a little stiff, my throat is a little sore, my back was a little sore from laying down for so long. I might have a little headache, but not much. I hope I continue like this.

I think I feel quite clear and awake, but I want to get to a more normal environment before I commit to that.

My kiddo and husband just showed up, so I will check back later! Take care!
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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Postby MaggieMae » Wed Nov 11, 2009 9:13 am

Beth,

Since your symptoms just started this year after painting your house, does Dr. Dake think your vein issues are congenital or maybe could they have been caused by holding your head and neck in an awkward position while painting? I remember reading that you were diagnosed as Atypical MS.
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Postby questor » Wed Nov 11, 2009 9:19 am

Beth, be sure and ask Dr. Dake about the use of heat for the sore muscles. Sounds like your stent may be low enough that a heat pack may be too close to it.

I'm glad you're able to take Percocet on a full stomach. That worked for me as well.

And, congratulations on making it though the procedure and the first night. Now on with the healing...

--Tracy
CCSVI Procedure 9/16/2009 at Stanford
Stent in left and right IJVs
SPMS
Copaxone and Ampyra user
Botox Bladder Injections
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Postby CRHInv » Wed Nov 11, 2009 9:31 am

I will ask him about injury vs congenital. I am leaning toward congenital. I had a bad valve in my left jugular. That jugular rerouted thru a large collateral al the way over to the right side! I will see if I can get some of his notes that might have a better description.

I did ask Dr Dake about the heat. He didn't have any problem with heat even right at the site. PLEASE don't anyone else take this advice, I don't know if it was case specific or more general.
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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Postby magoo » Wed Nov 11, 2009 9:35 am

I'm so happy for you Beth! What a trooper you are! Take it easy. When do you head home?
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby CRHInv » Wed Nov 11, 2009 11:05 am

Hey Rhonda, I'm really not a trooper, I just had an easier course than most.

I have been released and we are heading back to the Sheraton. My kiddo and I will stay there until we fly home on Friday.
Last edited by CRHInv on Mon Nov 16, 2009 8:36 am, edited 1 time in total.
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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Postby Sharon » Wed Nov 11, 2009 11:14 am

Rest easy Beth! Take advantage of the Sheraton amenities.
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Postby mrhodes40 » Wed Nov 11, 2009 11:47 am

Wow it sounds like things are going well for you, I am really glad! I can't wait for you to add to your tracking entry. It seems like those low stents are easier for the comfort level

I did ask Dr Dake about the heat. He didn't have any problem with heat even right at the site. PLEASE don't anyone else take this advice, I don't know if it was case specific or more general
This is a good comment, we are not doctors here!! Ask ask ask!
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby CRHInv » Sat Nov 14, 2009 6:51 am

Well, I am home! I feel pretty darn good. My neck is still a little stiff and my throat is a little sore, but not much to complain about. I think my head is clearer and I don't feel so foggy. I will let the excitement wear off a little and see then what is up.

Thank you all for your support. This place is really something!
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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Postby Shannon » Mon Nov 16, 2009 6:43 am

Beth, I am so happy to hear that the procedure went well. It sounds like you are not too bad off! Keep us all updated on your progress. You rock! :D
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Postby Ruthless67 » Mon Nov 16, 2009 10:57 am

Beth,

You rock, little mama! I'm so happy to hear that the surgery went well; here's hoping your recovery period goes well also.

You have been such a source of encouragement for those who went under the knife before you, that I just know there are many, many well wishers out here for you!

We will all enjoy living vicariously through the rest of your journey.

Lora
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Postby Sharon » Mon Nov 16, 2009 12:35 pm

Lora -
for those who went under the knife before you,


Just to clarify for those who might be new to the forum--- this is not surgery with a knife -- it is an endovascular procedure which uses a catheter to explore the veins.
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Postby ErikaSlovakia » Mon Nov 16, 2009 1:13 pm

Sharon wrote:Lora -
for those who went under the knife before you,


Just to clarify for those who might be new to the forum--- this is not surgery with a knife -- it is an endovascular procedure which uses a catheter to explore the veins.

I also think it was not a surgery - well, I am sure it was not. I call it procedure, if I talk to a doctor I use
"an endovascular procedure". My mother does not know what is endovascular.
My brother even thougt I would come without hair 8O - for those who are new here - he was little drunk :roll: My hair is as long as before.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby Ruthless67 » Mon Nov 16, 2009 1:19 pm

Thanks Sharon & Erica for the correction. I was trying to be "cute" I guess, and in the process I was stating incorrect information.
Lora
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