Going to Poland!!!! : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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Going to Poland!!!!

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ComfortablyNumb

Post subject:

Posted: Mon Dec 21, 2009 9:51 am

Family Member

Joined: Sat Nov 28, 2009 4:00 pm
Posts: 45
Location: Ontario, Canada

Alica wrote:

ComfortablyNumb

Thank you for your answer.

Did you call him or contacted him via email? I sent him my email from “gmail” and starting to be paranoid that it went straight into their spam box.

Alicia,

I have only e-mailed him twice. I asked several questions regarding the procedure and aftercare but have only received the cost and the month.

Steve

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Alica

Post subject:

Posted: Mon Dec 21, 2009 9:59 am

Family Member

Joined: Thu Nov 19, 2009 4:00 pm
Posts: 57

ComfortablyNumb wrote:

I have only e-mailed him twice.

Thank you.

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SpKRon

Post subject: Dr Simka's email address

Posted: Tue Dec 22, 2009 1:13 pm

Newbie

Joined: Thu Dec 03, 2009 4:00 pm
Posts: 3

Does anyone have Dr. Simka's exact email address? I need to contact him asap to schedule testing and treatment. 55 yrs old diagnosed in '86 and I don't want to wait any longer. Thanks all.

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fiddler

Post subject: Dr. Simka's address

Posted: Tue Dec 22, 2009 2:03 pm

Family Elder

Joined: Wed Dec 02, 2009 4:00 pm
Posts: 398
Location: Fredericton, Canada

It's mariansimka@poczta.onet.pl
...Ted

_________________
Dx SPMS in 2004. Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com

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SpKRon

Post subject: mail won't go thru at that address anymore

Posted: Tue Dec 22, 2009 3:09 pm

Newbie

Joined: Thu Dec 03, 2009 4:00 pm
Posts: 3

Hi Erika and fiddler! I tried mailing Dr. Simka at that email address from both my gmail and mchsi accounts and neither one would deliver it as they say there is a fatal error the receiving account wilo not accept. Any suggestions?

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fiddler

Post subject: Maibox full?

Posted: Tue Dec 22, 2009 4:29 pm

Family Elder

Joined: Wed Dec 02, 2009 4:00 pm
Posts: 398
Location: Fredericton, Canada

Perhaps Dr. Simka's mailbox is full. It seems to me that somewhere in this thread (or maybe the thread about Edser's trip) there was the name of Dr. Simka's colleague. If you do a search for his name, you will find somewhere in the CCSVI forum his colleague's e-mail.
...Ted

_________________
Dx SPMS in 2004. Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com

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ErikaSlovakia

Post subject: Re: mail won't go thru at that address anymore

Posted: Wed Dec 23, 2009 1:01 am

Family Elder

Joined: Wed Jul 29, 2009 3:00 pm
Posts: 1099
Location: Slovakia, Europe

SpKRon wrote:

Hi, I am sorry I do not have an idea what to do. It has never happened to me.
I think it is because of Christmass holiday. Maybe he went somewhere and nobody takes care for his e-mail box.
I am sorry, you just can try it later or send him a fax.
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

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Alica

Post subject: Re: mail won't go thru at that address anymore

Posted: Wed Dec 23, 2009 9:51 am

Family Member

Joined: Thu Nov 19, 2009 4:00 pm
Posts: 57

SpKRon wrote:

I sent my email (gmail) to Dr. Simka approx. 2 weeks ago. I did not get any reply yet. My mail seems to be delivered.

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colapesce

Post subject: I'm new here.

Posted: Wed Dec 23, 2009 11:24 am

Family Elder

Joined: Thu Dec 10, 2009 4:00 pm
Posts: 156
Location: London, UK

hello everyone. just want to introduce myself. Have been following messages here for a couple of weeks now - so much invaluable info to take in!

I emailed Dr Simka yesterday evening, and realise that I probably won't get a reply for a few weeks but that doesn't stop me checking every hour

I didn't write much as I find it very difficult to concentrate... just asked for an appointment!

Will post on here when I do hear back.

btw, does anyone know if it's possible to get the treatment done in Italy?

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Johnson

Post subject:

Posted: Wed Dec 23, 2009 5:02 pm

Family Elder

Joined: Tue Dec 01, 2009 4:00 pm
Posts: 979
Location: Ucluluet, BC

Hi colapesce, welcome!

I know what you mean about checking every hour. I sent an e-mail to Dr. Simka on Dec. 3, after waffling for a week. It took three days for a reply then. A few days later, it was taking a week, and now weeks. He is also reportedly booked into 2011 - a very good reason for all of us to get around the road blocks in getting dx and treated where we live.

Dr. Simka reportedly gets 100 e-mails a day, and I would not be surprised if he gets a magnitude more than that. My understanding is that he reads and replies himself. I get around a dozen e-mails a day, and can't keep up with them. Yikes!

_________________
My name is not really Johnson. MSed up since 1993

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SandyK

Post subject:

Posted: Wed Dec 23, 2009 5:18 pm

Family Elder

Joined: Wed Oct 14, 2009 3:00 pm
Posts: 221
Location: WA

He's booked through 2011? When you're the only guy I suppose that's right. I will be in a chair full-time by then. I emailed him last week. I was hurrying to get travel docs ready, but no need to rush. I can only keep up the letters and phone calls for people here in the states to hop on board.

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Johnson

Post subject:

Posted: Wed Dec 23, 2009 7:00 pm

Family Elder

Joined: Tue Dec 01, 2009 4:00 pm
Posts: 979
Location: Ucluluet, BC

SandyK wrote:

Hi SandyK,

I don't know for certain that Dr. Simka is booked through 2011, but I did read here somewhere that it was into September 2011. Get your travel docs together none-the-less, that you will be ready to go. Look for India, and Germany (and ?) to be doing something in 2010, and keep up your spirits.

<shortened url>

_________________
My name is not really Johnson. MSed up since 1993

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seeva

Post subject: Re: Going to Poland!!!!

Posted: Thu Dec 24, 2009 5:24 am

Family Elder

Joined: Sun Jan 20, 2008 4:00 pm
Posts: 165
Location: SYDNEY

Nees wrote:

Hi everyone
First of all a massive THANK YOU!!! I've been reading and learning so much from this forum, and it has given me the impetus to actually take the plunge: I have an appointment with Dr. Simka for a doppler ultrasound on the 1st December!!! I'm going the go over for the 30th November so if anyone else is there, let me know and we can meet up!

Some of my background: I was diagnosed with RRMS Nov 07, although there had been 'odd happenings' for 10 years previous to that. By the time it was diagnosed it was aggressive and I had 4 relapses within 6 months. By the time of my fifth relapse, this time last year, I went on Tysabri and had my EDSS assessed at 6.5. Since then I have, thanks to the drugs and a very strict diet (BBD), improve dramatically and now I reckon my EDSS to be 3.0. My hope is that this procedure will stop progression and enable me to come off Tysabri. I think diet will heal the damage. Also, I hope it will take away my fear of the future.

Health and happiness!
Well done Good news that you are going to POLAND for ultersound test. But when you have to go for LIBREATION OPRATION procedure to POLAND. That mean we have to go to POLAND twise.for me estimated time for examniation could be in MARCH2010And for L.oparation is AUGUST 2010. So i had to go to POLAND twise. Please let me know this is the case for all M.S Patient want to go to POLAND for the opration
regards
seeva
Nees

:roll: :roll: :roll:

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broomdancer

Post subject:

Posted: Thu Dec 24, 2009 6:32 am

Family Member

Joined: Fri Dec 18, 2009 4:00 pm
Posts: 73

Seeva
My husband is having all tests done and L treatment In August 2010.
Regards
Diana

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colapesce

Post subject:

Posted: Thu Dec 24, 2009 6:47 am

Family Elder

Joined: Thu Dec 10, 2009 4:00 pm
Posts: 156
Location: London, UK

hi broomdancer,

could you let me know when you emailed dr. simka?

hope all goes well for you both!

b

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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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