This Is MS Multiple Sclerosis Community: Knowledge & Support

by **Nees** » Sat Nov 07, 2009 10:52 am

Hi everyone
First of all a massive THANK YOU!!! I've been reading and learning so much from this forum, and it has given me the impetus to actually take the plunge: I have an appointment with Dr. Simka for a doppler ultrasound on the 1st December!!! I'm going the go over for the 30th November so if anyone else is there, let me know and we can meet up!

Some of my background: I was diagnosed with RRMS Nov 07, although there had been 'odd happenings' for 10 years previous to that. By the time it was diagnosed it was aggressive and I had 4 relapses within 6 months. By the time of my fifth relapse, this time last year, I went on Tysabri and had my EDSS assessed at 6.5. Since then I have, thanks to the drugs and a very strict diet (BBD), improve dramatically and now I reckon my EDSS to be 3.0. My hope is that this procedure will stop progression and enable me to come off Tysabri. I think diet will heal the damage. Also, I hope it will take away my fear of the future.

Health and happiness!
Nees

Hi Nees,
you do very correct thing!
You will be in good hands. They were so sure with what they were doing. They did not risk. Plus, they were nice.
I always have very good time in Poland. All doctors there are so intersted in the problem! I do not have to worry at all. I trust them.
Thanks God for Dr. Simka! He should be cloned!
Also Dr. Ludyga is so busy and he is happy to help MS patients.
I was surprised. Dr. Kazibudzki is a vascular surgeon. And there was also Dr. Świerad who is interventional cardiologist, and his assistance was very important since he has experience in intravenous endovascular procedures in the area next to heart. Dr. Simka was there as well.
Wife of Dr. Ludyga is just great. All the nurses......
Well, I must say again I am so lucky and happy.

Dr. Simka sent me an e-mail now with the information that they will start doing the procedure also in hospital in Tychy at the beginning of December. Good to know.
Dr. Hartel - the radiologist is also very good. Well, it is simply very good team.
You are also lucky!
Erika

by **mrhodes40** » Sat Nov 07, 2009 1:25 pm

Great Nees! I am happy for you and wish you very well!

Please do make a tracking thread entry; Erika you too so we can follow how you do as time goes on. You can edit your entry and add to it later as things change even more.

by **Pepe** » Sun Nov 08, 2009 12:31 am

Nees on 1th. Wonky1 on 7th. Pepe on 8th. LR1234 on 10th.

Anyone else?

by **ErikaSlovakia** » Sun Nov 08, 2009 12:58 am

mrhodes40 wrote:Great Nees! I am happy for you and wish you very well!

Please do make a tracking thread entry; Erika you too so we can follow how you do as time goes on. You can edit your entry and add to it later as things change even more.

Yes, I will do it today for sure.
Erika

by **ErikaSlovakia** » Sun Nov 08, 2009 4:53 am

I am going to Dr Simka on the 10th Dec. I don't know if I will be just having the doppler though rather than the procedure. I suppose if Dr Simka finds something treatable and there is time I could extend my stay in Poland.

Great!
I was also ready for more options. It is better to be flexible. You will see, but you are in good hands.
Erika

by **Edser** » Mon Nov 09, 2009 1:23 am

Pepe wrote:Nees on 1th. Wonky1 on 7th. Pepe on 8th. LR1234 on 10th.

Anyone else?

Good Morning TIMS

I'm going to see Dr Simka & his team Mon:30/11/09
Best of luck to everyone that is going for the Procedure & well done to all that have gone before us

Slainte Mo Chara
Edser & Anna

by **Edser** » Mon Nov 09, 2009 1:32 am

Piotr Wenka a Polish gentleman is going to visit Katowice today.Best of luck Piotr lot's of love from Ireland.
Slainte Mo Chara
Edser & Anna

by **Brainteaser** » Tue Nov 10, 2009 3:44 pm

Hi All,

It's all happening quickly but I'm also booked in for Poland

- for the week commencing 23 November. I'm ultra busy getting things together at the moment, but I'll give you a run-down in a day or 2.

Phil

by **Edser** » Tue Nov 10, 2009 4:19 pm

Brainteaser wrote:Hi All,

It's all happening quickly but I'm also booked in for Poland - for the week commencing 23 November. I'm ultra busy getting things together at the moment, but I'll give you a run-down in a day or 2.

Phil

Good evening Phil,
That's brillant new's

Slainte Mo Chara
Edser & Anna

PS:Was anybody from this forum contacted by www.msrc.co.uk
Judy Graham of New Pathways.

by **Edser** » Tue Nov 10, 2009 4:35 pm

[quote="Pepe"]Nees on 1th. Wonky1 on 7th. Pepe on 8th. LR1234 on 10th.

Anyone else?[/quote
YAaaaaaaaaaaaaaaa dont forget the PADDY 30th Nov EDSER

Slainte Mo Chara
Edser & Anna

by **Sesj** » Tue Nov 10, 2009 11:29 pm

7th of December

by **Sharon** » Wed Nov 11, 2009 8:26 am

To all of you across the Atlantic!

Congratulations - it is so exciting to hear that you are able to be tested and treated and to hear that Dr. Simka will be adding another hospital to do the procedure. This is becoming an international sensation. Now, we need to get some of those folks "down under" in Australia and New Zealand tested and treated.

Good luck to all

Sharon

This Is MS Multiple Sclerosis Community: Knowledge & Support

Going to Poland!!!!

Going to Poland!!!!

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