This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi everyone
First of all a massive THANK YOU!!! I've been reading and learning so much from this forum, and it has given me the impetus to actually take the plunge: I have an appointment with Dr. Simka for a doppler ultrasound on the 1st December!!! I'm going the go over for the 30th November so if anyone else is there, let me know and we can meet up!

Some of my background: I was diagnosed with RRMS Nov 07, although there had been 'odd happenings' for 10 years previous to that. By the time it was diagnosed it was aggressive and I had 4 relapses within 6 months. By the time of my fifth relapse, this time last year, I went on Tysabri and had my EDSS assessed at 6.5. Since then I have, thanks to the drugs and a very strict diet (BBD), improve dramatically and now I reckon my EDSS to be 3.0. My hope is that this procedure will stop progression and enable me to come off Tysabri. I think diet will heal the damage. Also, I hope it will take away my fear of the future.

Health and happiness!
Nees

Well done Nees, best of luck.
I will be following in your footsteps on the 7th.
Please post your experiences.
Wonky

Wonderful, Nees !!!! The more people who participate in these early CCSVI interventions the sooner the news will get out. Good luck and I'm rooting for you all the way across the ocean in the middle of the USA !!!!!

Hi Nees,
you do very correct thing!
You will be in good hands. They were so sure with what they were doing. They did not risk. Plus, they were nice.
I always have very good time in Poland. All doctors there are so intersted in the problem! I do not have to worry at all. I trust them.
Thanks God for Dr. Simka! He should be cloned!
Also Dr. Ludyga is so busy and he is happy to help MS patients.
I was surprised. Dr. Kazibudzki is a vascular surgeon. And there was also Dr. Świerad who is interventional cardiologist, and his assistance was very important since he has experience in intravenous endovascular procedures in the area next to heart. Dr. Simka was there as well.
Wife of Dr. Ludyga is just great. All the nurses......
Well, I must say again I am so lucky and happy.

Dr. Simka sent me an e-mail now with the information that they will start doing the procedure also in hospital in Tychy at the beginning of December. Good to know.
Dr. Hartel - the radiologist is also very good. Well, it is simply very good team.
You are also lucky!
Erika

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Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

Great Nees! I am happy for you and wish you very well!

Please do make a tracking thread entry; Erika you too so we can follow how you do as time goes on. You can edit your entry and add to it later as things change even more.

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I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics

Nees on 1th. Wonky1 on 7th. Pepe on 8th. LR1234 on 10th.

Anyone else?

Yes, I will do it today for sure.
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

Great!
I was also ready for more options. It is better to be flexible. You will see, but you are in good hands.
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

Good Morning TIMS
I'm going to see Dr Simka & his team Mon:30/11/09
Best of luck to everyone that is going for the Procedure & well done to all that have gone before us
Slainte Mo Chara
Edser & Anna

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4

Piotr Wenka a Polish gentleman is going to visit Katowice today.Best of luck Piotr lot's of love from Ireland.
Slainte Mo Chara
Edser & Anna

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4

Hi All,

It's all happening quickly but I'm also booked in for Poland - for the week commencing 23 November. I'm ultra busy getting things together at the moment, but I'll give you a run-down in a day or 2.

Phil

Good evening Phil,
That's brillant new's
Slainte Mo Chara
Edser & Anna

PS:Was anybody from this forum contacted by www.msrc.co.uk
Judy Graham of New Pathways.

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4

[quote="Pepe"]Nees on 1th. Wonky1 on 7th. Pepe on 8th. LR1234 on 10th.

Anyone else?[/quote
YAaaaaaaaaaaaaaaa dont forget the PADDY 30th Nov EDSER

Slainte Mo Chara
Edser & Anna

_________________
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4

7th of December

To all of you across the Atlantic!

Congratulations - it is so exciting to hear that you are able to be tested and treated and to hear that Dr. Simka will be adding another hospital to do the procedure. This is becoming an international sensation. Now, we need to get some of those folks "down under" in Australia and New Zealand tested and treated.

Good luck to all
Sharon