This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Fri May 24, 2013 3:19 am

View unanswered posts | View active topics


Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]



Post new topic Reply to topic  Page 1 of 1
  [ 8 posts ] 
  Print view Previous topic | Next topic 
Author Message
zipfed
 Post subject: New to the forum
PostPosted: Mon Nov 09, 2009 10:22 am 
Offline
Newbie
User avatar

Joined: Sun Nov 08, 2009 4:00 pm
Posts: 6
Location: Wickenburg, Az
While I have been lurking for a while so I thought I would introduce my self. My name is Jason I am 36 and I was DX'd almost 1 year ago RRMS and found the CCSVI info about 2 months ago so I am scheduled with my PCP the 23rd to get a refferal to Stanford then hopefully that portion can happen quickly, luckily I live just north of Phoenix so Stanford is not to far of a drive for me and my wife.
Top
 Profile  
 
ozarkcanoer
 Post subject:
PostPosted: Mon Nov 09, 2009 10:29 am 
Offline
Family Elder
User avatar

Joined: Thu Oct 15, 2009 3:00 pm
Posts: 1273
Location: St. Louis, Missouri
Good luck, zipfed !!!! It would be so great if your neurologist is open-minded about CCSVI.... Please keep up posted...

ozark
Top
 Profile  
 
whyRwehere
 Post subject:
PostPosted: Mon Nov 09, 2009 12:58 pm 
Offline
Family Elder
User avatar

Joined: Mon Oct 03, 2005 3:00 pm
Posts: 902
I think he is getting referred by his general practitioner and not a neurologist, which is probably the best idea.
Top
 Profile  
 
kinga
 Post subject:
PostPosted: Mon Nov 09, 2009 1:12 pm 
Offline
Family Member
User avatar

Joined: Tue Oct 13, 2009 3:00 pm
Posts: 68
hello zipfed! good luck with your Stanford appointment!
Top
 Profile  
 
zipfed
 Post subject:
PostPosted: Mon Nov 09, 2009 1:45 pm 
Offline
Newbie
User avatar

Joined: Sun Nov 08, 2009 4:00 pm
Posts: 6
Location: Wickenburg, Az
Thanks everybody, and yes I am getting referred by my GP as I cant even get my neuro to return my calls most of the time.
Top
 Profile  
 
ErikaSlovakia
 Post subject:
PostPosted: Tue Nov 10, 2009 2:37 am 
Offline
Family Elder

Joined: Wed Jul 29, 2009 3:00 pm
Posts: 1099
Location: Slovakia, Europe
whyRwehere wrote:
I think he is getting referred by his general practitioner and not a neurologist, which is probably the best idea.

I also went to GP and before to an angiologist. My neuro is my friend, but I still have not tol her a word about CCSVI.
Only one neurologist in Slovakia wants constantly more info from me, which is very good, she is young, she speaks very good English, I go to see her tomorrow.
Another neurologist is from Prague - my ex teacher. He also wants more info, he finds it positive.

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
Top
 Profile  
 
CRHInv
 Post subject:
PostPosted: Wed Nov 11, 2009 8:32 am 
Offline
Family Elder
User avatar

Joined: Sun Aug 30, 2009 3:00 pm
Posts: 402
Location: Chandler, AZ
Hi Zip! I'm Beth, I'm from chandler. I am sitting in Stanford medical center right now waiting to see Dr. Dake and get released. I'm not an expert or anything, but if you ever want to chat, feel free to pm me. Take care!

_________________
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
Top
 Profile  
 
grant
 Post subject:
PostPosted: Mon Nov 23, 2009 8:33 pm 
Offline
Newbie
User avatar

Joined: Sun Nov 22, 2009 4:00 pm
Posts: 6
Location: Phoenix, AZ
Hi Zipfed and CRHinv,

I am Grant and I live in North Phoenix. I am extremely interested in trying to get in to see Dr Dake.

Can you give me some information about how you approached your Dr and how you got into Stanford?

I hope you don't mind if I PM you both.

Thanks,

Grant
Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  Page 1 of 1
  [ 8 posts ] 

Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]

Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Wow, has this forum gone everywhere lately?

[ Go to pageGo to page: 1, 2, 3 ]

jay123

41

4206

Mon Jan 04, 2010 8:02 am

patientx View the latest post

There are no new unread posts for this topic. italian forum?

kinga

4

1395

Fri Dec 18, 2009 7:09 am

Devis View the latest post

There are no new unread posts for this topic. The Bulgarian forum? Where?

ndwannabe

3

741

Wed Apr 28, 2010 6:05 pm

ndwannabe View the latest post

There are no new unread posts for this topic. From the bulgarian forum

costumenastional

2

941

Fri Jul 16, 2010 7:32 pm

sanfran View the latest post

There are no new unread posts for this topic. What happened to this forum???

[ Go to pageGo to page: 1, 2, 3, 4 ]

nicko

48

4696

Tue Aug 10, 2010 8:51 pm

concerned View the latest post

 


Who is online

Users browsing this forum: No registered users

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: