Canadian Documentary ????!!!!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Edser » Sun Nov 22, 2009 2:52 am

Never judge a Book by it's cover.
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Postby Inge67 » Sun Nov 22, 2009 5:15 am

What a fantastic video! Very informative and very moving too.
It must be convincing too to other people than only MS patients doesn't it?

Now let's get the word out here in Europe! Can't wait to let it turn Monday and start to approach people.
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Postby Edser » Sun Nov 22, 2009 7:14 am

Inge67 wrote:What a fantastic video! Very informative and very moving too.
It must be convincing too to other people than only MS patients doesn't it?

Now let's get the word out here in Europe! Can't wait to let it turn Monday and start to approach people.

Good afternoon :D
Myself & Anna shed a good few tears this morning,durning & after watching the video,all positive :D Anna also put a translation on the Polish forum
http://www.biegusy.zgora.pl/modules/pro ... uid=%20228
http://www.biegusy.zgora.pl/modules/new ... 6&start=20
Slainte Mo Chara
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Never judge a Book by it's cover.
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Edss After Procedure:4
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Postby Needled » Sun Nov 22, 2009 8:09 am

They did a great job! Very well presented and researched. The website has a lot of good additional information also. They deserve the scoop.
Michelle posted links to the two newspaper articles yesterday, but did they actually appear in today's papers? I'd love to see them.
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Postby catfreak » Sun Nov 22, 2009 9:04 am

Just watched online!!

Me and my husband both became emotional knowing I have already been blessed by the stent procedure at Stanford!!

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby mrhodes40 » Sun Nov 22, 2009 9:06 am

Cat I hear you! We are so lucky to have been treated already... I think it is going to be a lot of people suffering from anxiety as they look for the opportunity to be seen and evaluated.
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby Arcee » Sun Nov 22, 2009 9:21 am

Same here. We cried at the story, with relief at having had the procedure done, and in solidarity with those who want it done. It truly is reprehensible that not enough places had stepped forward for the SWI-MRI testing prior to yesterday. Will be interesting to see who will now.
And maybe it really is time to approach the stent manufacturers and US insurance companies - - they could make the clinical trials happen to bust this wide open.
A couple of points from the documentary that captured our attention:
- the re-stenoses seemed to happen in precisely the same spot as the original stenoses. That is comforting.
- since so many re-stenoses happened with the angioplasty, it almost is like its own control group in a sense. I mean, we have learned so much from those do-overs that we wouldn't have with the stents.

Congratulations to Ctv! What an impressive and meaningful job you have done.
And as always, sincere gratitude to Joan and Jeff.
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
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Postby skydog » Sun Nov 22, 2009 10:49 am

Wow! Lots of tears of Joy for all. Cheer Thank you! Your our guardian angel We love You!
Plant a BIG Garden Live in the Moment
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Postby flipflopper » Sun Nov 22, 2009 11:37 am

I don’t think I have thanked you cheerleader for all your work. Thank you!!!
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CTEVD Study

Postby rayfirak » Sun Nov 22, 2009 11:58 am

Hi all, here is the Canadian link to that article.

http://www.ctv.ca/servlet/ArticleNews/s ... ?s_name=W5

:lol:
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Postby Pepe » Sun Nov 22, 2009 11:59 am

I don’t think I have congratulated Jeff for the great woman he has at home... Jeff you are a lucky man !!!
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Im wondering..

Postby rayfirak » Sun Nov 22, 2009 12:04 pm

Has anyone out there on this forum actually gone through the procedure??? I am new on this site and appologize if I missed that info. I just watched the CTV special last night! It was brilliant. I too have MS and have been on a drug trial for 3 years. It sure would be nice if this was helpful solution! If anyone has been through the procedure...please tell me how it went so I can make a more informed decision.

Thanks!

:)
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Postby LR1234 » Sun Nov 22, 2009 12:05 pm

Yes Ray, many people have had the procedure, check the tracking post (its a sticky)

Many more are about to have it done and may others who have had it done have not yet posted their experiences...hopefully now they will!!!
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Postby AndrewKFletcher » Sun Nov 22, 2009 12:49 pm

The videos were fantastic. Professor Zamboni et al have done a great job of getting around the obstacles imposed by the medical profession.

Thoroughly enjoyed the way the interviewer handles the conversation affording Zamboni to get his main points across. Couldn't ask for more from a TV crew

Very professional indeed.

Andrew
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Re: Im wondering..

Postby CureIous » Sun Nov 22, 2009 12:55 pm

rayfirak wrote:Has anyone out there on this forum actually gone through the procedure??? I am new on this site and appologize if I missed that info. I just watched the CTV special last night! It was brilliant. I too have MS and have been on a drug trial for 3 years. It sure would be nice if this was helpful solution! If anyone has been through the procedure...please tell me how it went so I can make a more informed decision.

Thanks!

:)


What LR said, plus you can see a great list MaggieMae put together:

http://www.thisisms.com/ftopict-8368.html

I haven't posted to the tracking post yet but will very shortly or Radeck is gonna rap my knuckles lol.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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