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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby EnjoyingTheRide » Sun Nov 15, 2009 6:10 am

CureIous,

Mark, you look strangely like a beautiful little girl in your photo. Love your shades, lol. Thanks for the well wishes. I sure hope this works for all types of MS, all stages of MS.

Bestadmom,

If my insurance declines, I'll be in the same boat as you - have too much money to qualify for help, have too many expenses to afford $50K or so. It appears that you are getting creative though. Keep working multiple angles. I bet you'll come up with the funds.

Daisyduck,

Wow, MS for 30 years. Makes my 8 years seem short. Glad to hear that this is working for you. I love those success stories.

ErikaSlovakia,

I've been reading your posts all over the board. What an incredible person you are. Your offer to help Michelle seems typical of you.
Mitch
Please visit my blog at www.enjoyingtheride.com
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Postby Sharon » Sun Nov 15, 2009 7:09 am

DaisyD - it is good to hear from you.
Right after surgery I noticed I was picking up my left leg/foot much better. After we went back for the two months checkup Dr. Dake prescribed PT, and I got lucky in that I got a therapist who cared. I walk much better now and hope to travel overseas next year. Would have never occurred to me to even plan on before.

The small subtle differences we experience, begin to accumulate - it is a great feeling, right? Isn't it wonderful to be able to plan something in the future?

Sharon
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Postby whyRwehere » Sun Nov 15, 2009 7:15 am

I loved your story on your blog about having to make adaptations to your car and taking your driver's test again. It was true quality...and funny. I think you should submit it to the New Yorker (of course coming from Mass/Maine, you probably lovingly hate New York, like I do, but I like that mag's kinda writing).
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Postby bestadmom » Sun Nov 15, 2009 8:38 am

Thank you Ozark and Erika. I have some really wealthy clients. I am an ad advertising director for a magazine for the North American menswear industry.

One of my clients rides the train with me and I was telling him about the surgery. We got into a discussion about US insurance, the whoe stinky system. When I mentioned that it would probably cost me $85,000, he said, "Oh, that's doable. " I said, "maybe for you, but not for me." Anyway, he is in business with one of the most famous US "designers" (it's really a brand with the guys name on it). Between the two of them, they could pay for this.

Michelle
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Postby cheerleader » Sun Nov 15, 2009 9:57 am

bestadmom wrote:Thank you Ozark and Erika. I have some really wealthy clients. I am an ad advertising director for a magazine for the North American menswear industry.

One of my clients rides the train with me and I was telling him about the surgery. We got into a discussion about US insurance, the whoe stinky system. When I mentioned that it would probably cost me $85,000, he said, "Oh, that's doable. " I said, "maybe for you, but not for me." Anyway, he is in business with one of the most famous US "designers" (it's really a brand with the guys name on it). Between the two of them, they could pay for this.

Michelle


this is really good to read, Michelle. Call, get things moving at Stanford and get your angels on board. You'll be kind enough to provide them with a nice tax deduction. "Doable" is a good word :)
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
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