julu wrote:I was just reading the posts from another newbie who is primary progressive. There is no way in the world I could live with myself if I took a spot in Dake's schedule that could have been used to help someone like that.
I think I'm the newbie you refer to in your post. I really appreciate your kindness. You raise a good point. If tomorrow the entire world suddenly found a cure for MS, and lets say it is repair of venous stenosis, then we might need to come up with criteria for who gets the treatment first. But right now it seems that everyone who is willing to let Dr. Dake give it a try is able to get to him within months.
And personally I'm not in a super, super hurry. If I can get scheduled sometime this winter I'll be happy. Sure, I'll have some irreversible progression (at least until someone figures out how to repair axons and myelin) between now and then, but I'm still digesting all of this. I'm anxious, but I'm also cautious. Additional info is coming out every day, and I'm getting more and more comfortable all the time.
If Zamboni releases an incredible paper soon, my attitude may change and I'll start calling Alex every day!
I find your attitude and selflessness refreshing. I see so much of this type of empathy from friends, relatives, and the online MS community. It's one of the few silver linings of having MS- I become so much more aware of the kindness and strength of others.
So, as far as I'm concerned there is room for everyone with Dr. Dake. I suggest you don't let any feelings of guilt affect your decisions now. You have enough other factors to consider already.