julu wrote:I was just reading the posts from another newbie who is primary progressive. There is no way in the world I could live with myself if I took a spot in Dake's schedule that could have been used to help someone like that.
bestadmom wrote:I admire your selflessness. I'm SP, in a wheelchair. I want the stents to stop progression (sounds strange since there''s not much left to go).
I think people who are newly diagnosed and RR will have the most to benefit. It will stop the silent attacks and hopefully you'll never get to the point of disability. In the long run, it's better for you personally, and society as a whole.
But heck, I'm selfish and I'm going to call Dr. Dake again on Dec. 3rd. I have an appointment with Dr. Coyle on the 2nd and unless SUNY Stony Brook is starting the surgery in the very near future, I'm not waiting anymore. Dr. Coyle announced at a staff meeting a month ago that they were going to start diagnostic testing and the surgeries - they are related to the Buffalo team.
bestadmom wrote:I admire your selflessness.
But heck, I'm selfish and I'm going to call Dr. Dake again
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