This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi, the subject says it all really.

Thanks to the good people on TIMS I have learnt a great deal about CCSVI and I would like to start the ball rolling to get tested (and hopefully treated).

Is there a proper way to engage with Dr Simka? I have found his email address via this forum but I'm wondering if there is a formal way or process that I should follow to get his help? I'm not sure if it's the right thing to do, but I'm planning on just sending him an email asking for his help.


Thanks!

Mark.

Dr Simka is a good guy, and I am sure he would not mind you e-mailing him.
Thats what I did and am due to see him in Dec.

Good Luck!

Hi, Mark,
this is web site of Dr. Simka: http://strona.simka.nazwa.pl/
Of course, before I made his e-mail address public, I checked if it is really public. You will find the same E-mail as you already know.
I advise not to call him. He is so busy.
I know it is simple for me, because I understand a lot in Polish.
It was Joan who gave me his address in the beginning.
Do not worry, just send him an e-mail.

Erika

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Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

Thank you LR, and thank you Erika too.

I have sent Dr Simka an email so I will wait to see what happens next. I’ll keep you posted!

Best of luck
Slainte Mo Chara
Edser & Anna

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Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4

Hi Mutley,

Welcome to the "Poland Club"

Go to Topic "Going to Poland!!!" Page 2 and you will find some practical information about ... GOING TO POLAND...

Pepe

Good news, Dr. Simka has replied to my email and is willing to see me!!

I’m really excited now as this is potentially the first time in over 10 years that I might benefit from anything substantial to help my MS. It would be great if the procedure took a few points off my EDS score, but I’d still be thrilled if this only stopped my score from sliding any further and halted progress for a while. Anything else is a bonus.

There’s also a part of me that’s quite nervous too. I’m not good with hospitals lol.

Thanks Edser & Anna, and also Pepe. Have you been through this already then?

Mutley.

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Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5

Mutley,

As you can see in the topic Going to Poland!!! Page 2 there is a list with the appointments to Dr. Simka and I will be there on December, 8th.
Pepe.

Pepe,

Yes, that is a great topic and one that will prove very useful for so many people. Thank you for your contribution. I look forward to adding my name to the list once I have some dates and I wish you well for your trip on the 8th.

All the best.

Mutley.

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Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5

Wow, that was fast! Congratulations!
I did not feel like being in hospital. It is very small and you spend only 2 nights there. As I sometimes mention it here. I miss it. It was really more holiday.
Do not worry, moreover you will think about the fact that it is really finally something in more than 10 years that make sense. I was thinking the same way.
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

Thanks Erika, its early days so I’m trying not to get too excited just yet. I’ll just see what the tests reveal first I suppose.

Where in Poland do you have the tests and procedures done? I see some people talk about Katowice, and others about Pszczyna. Does it depend on what you are having done?

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Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5

1. my Doppler was done by Dr. Simka in hospital in Tychy - it is not far from Katowice, it was on Aug. the 7th
2. my MRV was done in hospital in Zabrze - again not far from Katowice
3. my procedure was done by Dr. Ludyga and team in Katowice, name of the street is Bartosza Glowaciego 10, http://www.zozmswia.internetdsl.pl/

I do not know how they organize it in your case. As you know I was only the second.
It is also very possible they start to do the procedure in hospital in Tychy in December.

Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

Thank you Erika, much appreciated!

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Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5