What is the best way to contact Dr Simka?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

What is the best way to contact Dr Simka?

Postby Mutley » Mon Nov 16, 2009 10:15 am

Hi, the subject says it all really.

Thanks to the good people on TIMS I have learnt a great deal about CCSVI and I would like to start the ball rolling to get tested (and hopefully treated).

Is there a proper way to engage with Dr Simka? I have found his email address via this forum but I'm wondering if there is a formal way or process that I should follow to get his help? I'm not sure if it's the right thing to do, but I'm planning on just sending him an email asking for his help.


Thanks!

Mark.
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Postby LR1234 » Mon Nov 16, 2009 10:21 am

Dr Simka is a good guy, and I am sure he would not mind you e-mailing him.
Thats what I did and am due to see him in Dec.

Good Luck!
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Re: What is the best way to contact Dr Simka?

Postby ErikaSlovakia » Mon Nov 16, 2009 10:45 am

Mutley wrote:Is there a proper way to engage with Dr Simka?
Mark.


Hi, Mark,
this is web site of Dr. Simka: http://strona.simka.nazwa.pl/
Of course, before I made his e-mail address public, I checked if it is really public. You will find the same E-mail as you already know.
I advise not to call him. He is so busy.
I know it is simple for me, because I understand a lot in Polish.
It was Joan who gave me his address in the beginning.
Do not worry, just send him an e-mail.

Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby Mutley » Mon Nov 16, 2009 12:50 pm

Thank you LR, and thank you Erika too.

I have sent Dr Simka an email so I will wait to see what happens next. I’ll keep you posted!
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Postby Edser » Mon Nov 16, 2009 1:28 pm

:D Best of luck :D
Slainte Mo Chara
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Postby Pepe » Tue Nov 17, 2009 3:11 am

Hi Mutley,

:lol: Welcome to the "Poland Club" :lol:

Go to Topic "Going to Poland!!!" Page 2 and you will find some practical information about ... GOING TO POLAND...

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Postby Mutley » Tue Nov 17, 2009 3:35 am

Good news, Dr. Simka has replied to my email and is willing to see me!! :D

I’m really excited now as this is potentially the first time in over 10 years that I might benefit from anything substantial to help my MS. It would be great if the procedure took a few points off my EDS score, but I’d still be thrilled if this only stopped my score from sliding any further and halted progress for a while. Anything else is a bonus.

There’s also a part of me that’s quite nervous too. I’m not good with hospitals lol.

Thanks Edser & Anna, and also Pepe. Have you been through this already then?

Mutley.
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
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Postby Pepe » Tue Nov 17, 2009 7:13 am

Mutley,

As you can see in the topic Going to Poland!!! Page 2 there is a list with the appointments to Dr. Simka and I will be there on December, 8th.
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Postby Mutley » Tue Nov 17, 2009 8:41 am

Pepe,

Yes, that is a great topic and one that will prove very useful for so many people. Thank you for your contribution. I look forward to adding my name to the list once I have some dates and I wish you well for your trip on the 8th.

All the best.

Mutley.
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
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Postby ErikaSlovakia » Tue Nov 17, 2009 8:54 am

Mutley wrote:Good news, Dr. Simka has replied to my email and is willing to see me!! :D

There’s also a part of me that’s quite nervous too. I’m not good with hospitals lol.

Thanks Edser & Anna, and also Pepe. Have you been through this already then?

Mutley.

Wow, that was fast! Congratulations!
I did not feel like being in hospital. It is very small and you spend only 2 nights there. As I sometimes mention it here. I miss it. It was really more holiday.
Do not worry, moreover you will think about the fact that it is really finally something in more than 10 years that make sense. I was thinking the same way.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby Mutley » Tue Nov 17, 2009 9:03 am

Thanks Erika, its early days so I’m trying not to get too excited just yet. I’ll just see what the tests reveal first I suppose.

Where in Poland do you have the tests and procedures done? I see some people talk about Katowice, and others about Pszczyna. Does it depend on what you are having done?
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
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Postby ErikaSlovakia » Tue Nov 17, 2009 9:12 am

Mutley wrote:Where in Poland do you have the tests and procedures done? I see some people talk about Katowice, and others about Pszczyna. Does it depend on what you are having done?

1. my Doppler was done by Dr. Simka in hospital in Tychy - it is not far from Katowice, it was on Aug. the 7th
2. my MRV was done in hospital in Zabrze - again not far from Katowice
3. my procedure was done by Dr. Ludyga and team in Katowice, name of the street is Bartosza Glowaciego 10, http://www.zozmswia.internetdsl.pl/

I do not know how they organize it in your case. As you know I was only the second.
It is also very possible they start to do the procedure in hospital in Tychy in December.

Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Joined: Wed Jul 29, 2009 2:00 pm
Location: Slovakia, Europe

Postby Mutley » Wed Nov 18, 2009 11:41 am

Thank you Erika, much appreciated!
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
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