by cheerleader » Mon Dec 21, 2009 8:10 pm
Michelle-
since you are an RN, I encourage you to take the research to your medical contacts. Whether you know doctors at the university level or in private practice, this is the only way we are finding locations to test. I know, this seems absurd, but CCSVI is not in the mainstream medical lexicon, and patients need to explain what they are looking for to interventional radiologists, neuroradiologists and endovascular doctors. This is how we've gotten doctors involved at Duke, Stanford, Poland and elsewhere...patients and caregivers looking for answers. It was only last spring I got the research to Stanford. This is new, and we need many hands to make light work- good luck,
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com