checking in

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

checking in

Postby scorpion » Tue Nov 17, 2009 1:31 pm

Any new breakthroughs/progress in the last couple of months to report? I know, I could go through the threads but I thought this would be easier and quicker!!!
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Postby LR1234 » Tue Nov 17, 2009 1:37 pm

They are now treating us Europeans in Poland:)

People seem to still be doing well after the procedure but no miracle recoveries to report yet:)

L
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Postby whyRwehere » Tue Nov 17, 2009 1:42 pm

a documentary on a canadian station 21st November and another paper out the 24th Nov.
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Postby cheerleader » Tue Nov 17, 2009 1:46 pm

Hey scorp-
I do a greatest hits kind of posting on the Facebook page I started. Click on the blue CCSVI in MS letters under my sig to get there. The latest news is at the top, but you can scroll down and read the notes for all the updates. We've got the Canadian news piece on air this weekend, the Globe and Mail feature on Sat., the Liberation paper and the Jacobs research next week. Like Leanne said, not one biggie to point to, just more procedures at Stanford, new ones in Poland, more news, more research coming in.
Hope you're well!
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Needled » Tue Nov 17, 2009 1:46 pm

And Jacobs releasing initial results of their CTEVD study before the end of the month. Don't know if I've seen a specific date for that anywhere.

EDIT: Cross-posted with Cheer. I should have waited another minute!
Last edited by Needled on Tue Nov 17, 2009 1:50 pm, edited 1 time in total.
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Postby Loobie » Tue Nov 17, 2009 1:46 pm

Check my blog out at http://myhopefuljourneyintoactualmsreco ... ogspot.com I've been doing pretty well and that's good news at least to me!
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Postby Ruthless67 » Tue Nov 17, 2009 3:21 pm

Cheer,

I swear, I'm such a Newbie when it comes to forums, facebook, etc.....I went to what I believe is your CCSVI Facebook.

http://fi-fi.facebook.com/pages/CCSVI-i ... 0796282297

But I can't find the Click on the blue CCSVI in MS letters under my sig to get there. The latest news is at the top, but you can scroll down and read the notes for all the updates.

Can you help?
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Postby cheerleader » Tue Nov 17, 2009 3:39 pm

You're on the right page...I made a direct link, that's all.
look below this writing and you'll see
"CCSVI in MS" in blue
If a person clicks on those letters, it takes them directly to the Facebook page- that's all...but you're there already.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby CRHInv » Tue Nov 17, 2009 5:07 pm

Marie posted a pretty exciting update today!
http://www.thisisms.com/ftopic-7318-days0-orderasc-maries-105.html
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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