Woohoo CCSVI

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Woohoo CCSVI

Postby Miss_Feisty » Sat Nov 21, 2009 11:12 am

I have been so preoccupied this year, I have missed this discovery completely. Boy oh boy, do I have catching up to do and I plan to read every post on this topic.

Thank you to those of you who are posting your CCSVI journey so we can share in the process almost first hand.

I had 3 or 4 phone calls about the W5 special yesterday which brought it to my attention or else I would have missed this crucial new information. The good thing....it has caught the attention of those who do not have ms too!

Without missing a beat, my fingers ran to TIMS to see what you all have been saying about it! I have a billion questions, but I'll read through the posts first before bombarding this thread.

Whether this procedure works or not, it is still a new road to explore. I'm certain there will be politics behind it and we are still a while away from accessing "trained" professionals who do the tests, but it is something to look forward to.

I'll be watching tonight....did anyone make a "general" thread announcement, in case this one hasn't been followed by everyone?

Take care everyone.
User avatar
Miss_Feisty
Family Member
 
Posts: 93
Joined: Sat Oct 04, 2008 3:00 pm

Advertisement

Postby radeck » Sat Nov 21, 2009 11:20 am

The general thread announcement is a very good idea. I believe cheer is away from the computer today. Who wants to make it?
radeck
Family Elder
 
Posts: 398
Joined: Mon Feb 16, 2009 4:00 pm

Postby Arcee » Sat Nov 21, 2009 11:40 am

Radeck, you should! You've been so thoughtful about helping everyone with their images, checking the accuracy of the documentary announcements, etc. that you should have the honor of sharing this news with a broader audience. No doubt you will change someone's life.
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
User avatar
Arcee
Family Elder
 
Posts: 338
Joined: Wed Jan 05, 2005 4:00 pm
Location: Massachusetts, USA

Postby Miss_Feisty » Sat Nov 21, 2009 4:57 pm

Go for it.....
User avatar
Miss_Feisty
Family Member
 
Posts: 93
Joined: Sat Oct 04, 2008 3:00 pm

Postby CureIous » Sat Nov 21, 2009 5:53 pm

I second that emotion for Radeck our in house work horse lol.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
User avatar
CureIous
Family Elder
 
Posts: 1189
Joined: Tue Jul 14, 2009 3:00 pm
Location: Riverside, CA

Postby radeck » Sat Nov 21, 2009 8:40 pm

I just posted it in the general forum: http://www.thisisms.com/ftopicp-75436.html#75436
radeck
Family Elder
 
Posts: 398
Joined: Mon Feb 16, 2009 4:00 pm


Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: melko321