Visible effects of CCSVI, simple at home test

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Does you head get redder than your body when you exercise?

Yes-my head turns red, and I have MS
51
60%
No-my head doesn't turn red, and I have MS
26
31%
Yes-my head turns red, and I do NOT have MS
6
7%
No-my head doesn't turn red, and I do NOT have MS
2
2%
 
Total votes : 85

Postby lilsis » Tue Feb 16, 2010 12:15 pm

tmj? that applies to me as well. hmmm....

i wonder if the buffalo study posed the diabetes question to it's participants, it would be very interesting to see (if any) the correlation between ccsvi and personal/familial diabetes.
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Postby Cece » Tue Feb 16, 2010 1:43 pm

CureIous wrote:Sorry, couldn't resist resurrecting this thread to correlate with this tidbit from Dr. Simka's prelim results:

Some interesting findings
•Within one hour postop patients’hands became warm (if cold before treatment) and faces pink (if pale before)



As I sit here with ice cold hands & feet and my usual pale face this is good to read!

In at least half seriousness, the angioplasty could be worth it just to get the warm feet. Perhaps that should be the diagnostic code? Reynauds syndrome, treatable by jugular angioplasty? My cold feet/hands can be really painful. And if it's an imediate effect, as it seems to be, that should be easier to scientifically verify.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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red face

Postby BalsaBoy » Tue Feb 16, 2010 6:52 pm

I always thought that there must be something wrong because when I played football at school or partook in any running type activity my face lit up like a big red tomato. I also noticed it when I was a regular at the gym. None of my schoolmates or friends had the same problem although most had the same skin type (fair). I've also been told recently that I had the BP of a 20 year old. Weird but interesting.
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Postby CureIous » Tue Feb 16, 2010 11:44 pm

Cece wrote:
CureIous wrote:Sorry, couldn't resist resurrecting this thread to correlate with this tidbit from Dr. Simka's prelim results:

Some interesting findings
•Within one hour postop patients’hands became warm (if cold before treatment) and faces pink (if pale before)



As I sit here with ice cold hands & feet and my usual pale face this is good to read!

In at least half seriousness, the angioplasty could be worth it just to get the warm feet. Perhaps that should be the diagnostic code? Reynauds syndrome, treatable by jugular angioplasty? My cold feet/hands can be really painful. And if it's an imediate effect, as it seems to be, that should be easier to scientifically verify.


I know when Dr. Dake opened up the stents on my left side that was really narrow and stenosed in three places and had a bunch of collaterals, I thought they had put something cool in the IV or I was imagining things because I felt a cool flow going through my head, without expecting it or even understanding much what was going on or that my left side was so bad.

That's when the lights when on, birds starting singing and I got my brain back.... :)

I've talked to others that were cold in head/feet and not hot, and to dumb pipefitter here, who's spent years moving heat in and out of stuff, it's a flip side of the same coin... Put heat in a pipe, blow air over it, you have a heater. Put cold refrigerant in tubing, blow air over it, you have A/C, BUT, the heat is actually taken outside and blown away, nothing is cooled, it's just the heat is moved somewhere else!!

M.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby Cece » Wed Feb 17, 2010 12:42 pm

Makes sense to me, CUREious! I would never have connected hot brain to cold feet in a million years...but it's all one (vascular) system.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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