Welcome, mazza !!! I'm trying to stir things up here in St Louis, Missouri, USA. I'm glad you came here all the way from Sydney.
I am making some headway. I am participating in Dr Haacke's study, and I have an appointment with a fabulous neuroradiologist. My scans will be on Dec 7 in Detroit and my neuroradiologist appointment is December 9 at 8 AM in St Louis. I just today got the appointment with the neuroradiologist and about an hour ago I emailed his assistant the information on CCSVI.