Welcome to New Visitors from Facebook!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Welcome to New Visitors from Facebook!

Postby cheerleader » Sun Nov 22, 2009 10:56 am

This is the place to come discuss, learn, share and encourage. We have people from all over the world who have been tested and treated using Dr. Zamboni's CCSVI protocol. Use the search function to find the topics you are interested. The search button is up above, and you can search one word or many (make sure to click "search all words" if using more than one term)

Many of your questions may be answered already. Check out the "stickies" at the top of this forum. Read from the first page.

Yes, there's alot of info on here, and yes, it can get confusing....but we are all here to help each other-

cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
User avatar
cheerleader
Family Elder
 
Posts: 4939
Joined: Mon Sep 10, 2007 3:00 pm
Location: southern California

Advertisement

Postby radeck » Sun Nov 22, 2009 11:05 am

Oh, and you may want to chose "Display results as POSTS" instead of "TOPICS" when searching. Depending on how much time you have.
radeck
Family Elder
 
Posts: 398
Joined: Mon Feb 16, 2009 4:00 pm

Postby cheerleader » Sun Nov 22, 2009 11:08 am

note to "old timers" -that means anyone here since last week :)
CTV linked to the Facebook page, and we got 1,000 new members overnight. I am rerouting people here...lots of questions that have aleady been answered will be brought up again. We'll need to bring new folks up to speed, so patience, sense of humor and helpfulness are appreciated. If you see a question that's up your alley, go for it.
thanks!
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
User avatar
cheerleader
Family Elder
 
Posts: 4939
Joined: Mon Sep 10, 2007 3:00 pm
Location: southern California

Postby Ana » Sun Nov 22, 2009 11:15 am

cheerleader wrote:note to "old timers" -that means anyone here since last week :)
CTV linked to the Facebook page, and we got 1,000 new members overnight.
cheer


That's fantastic! Today I also wrote a mail to a critical journalist from a big German mag linking the Canadian TV report. So I hope that in Europe there will also be a push!
User avatar
Ana
Family Member
 
Posts: 93
Joined: Mon Sep 07, 2009 3:00 pm
Location: Germany

Postby whyRwehere » Sun Nov 22, 2009 11:28 am

I have trouble with the search tool on here, but actually read the directions the last time and it helped...you have to put "and" between each word searched. Another option might be to do a google search with this is ms and the term you are looking for. But I don't mind answering questions, either, if I have anything to say.
User avatar
whyRwehere
Family Elder
 
Posts: 907
Joined: Mon Oct 03, 2005 3:00 pm

Postby ozarkcanoer » Sun Nov 22, 2009 11:37 am

I'll do my best. I'm still learning too !!!
User avatar
ozarkcanoer
Family Elder
 
Posts: 1273
Joined: Thu Oct 15, 2009 3:00 pm
Location: St. Louis, Missouri

Postby chrishasms » Sun Nov 22, 2009 11:37 am

123
Last edited by chrishasms on Sat Dec 05, 2009 1:47 pm, edited 1 time in total.
chrishasms
Family Elder
 
Posts: 1161
Joined: Thu Sep 14, 2006 3:00 pm

Postby Rokkit » Sun Nov 22, 2009 1:51 pm

radeck wrote:Oh, and you may want to chose "Display results as POSTS" instead of "TOPICS" when searching. Depending on how much time you have.


Excellent tip. It only took me about 6 months to figure that out on my own. :-)
Rokkit
Family Elder
 
Posts: 669
Joined: Tue May 19, 2009 3:00 pm

Postby CRHInv » Sun Nov 22, 2009 2:23 pm

we got 1,000 new members overnight


This is amazing! Me and my newly clear brain are in!
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
User avatar
CRHInv
Family Elder
 
Posts: 402
Joined: Sun Aug 30, 2009 3:00 pm
Location: Chandler, AZ

Postby schnittke » Sun Nov 22, 2009 4:28 pm

I just saw a link to the Canadian broadcast on a stock trading board of all places. I thought the I was on this board for a sec. I hope this gets some media attention.
User avatar
schnittke
Family Member
 
Posts: 27
Joined: Sun Jan 06, 2008 4:00 pm

Postby Loobie » Sun Nov 22, 2009 6:54 pm

chrishasms wrote:I sent that news program to every TV station here in Denver and told them I knew someone locally who could talk to them about having it done and if it was worth it.

We'll see ;)


Chris,

I forwarded your facebook link to everyone I know!
User avatar
Loobie
Family Elder
 
Posts: 2196
Joined: Mon Sep 11, 2006 3:00 pm
Location: Dayton, Ohio USA

Any one know who are the biggest Stent Manufacturers?

Postby paulmur » Sun Nov 22, 2009 7:26 pm

That's why it was on a stock trading site. Bad news for pharma's good news for stent manufacturers.
User avatar
paulmur
Family Member
 
Posts: 52
Joined: Thu Mar 13, 2008 4:00 pm

Postby Ruthless67 » Sun Nov 22, 2009 7:48 pm

Palmur,
do you have a link to an article on the stock trading site? If it's an article, I'd love to read it. It tickles me that the market would get wind of it so fast!
Lora
User avatar
Ruthless67
Family Elder
 
Posts: 422
Joined: Tue Oct 27, 2009 4:00 pm
Location: Montana, USA

Postby cheerleader » Mon Nov 23, 2009 8:20 am

lots of new folks in the intro section...maybe pop up and say hi-
Over 2000 on Facebook this am (1500 new members in one full day!)
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
User avatar
cheerleader
Family Elder
 
Posts: 4939
Joined: Mon Sep 10, 2007 3:00 pm
Location: southern California

Postby LR1234 » Mon Nov 23, 2009 8:24 am

Cool:) word is spreading and that = Pressure on the neuros and societies plus maybe some new vascular dr's will take up the challenge of scanning MS Patients, I so hope so, the UK is in major need of some!!
LR1234
Family Elder
 
Posts: 1492
Joined: Wed Feb 11, 2009 4:00 pm
Location: California

Next

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users