Personal experiences with Vitamin D, exercise & Mononucl

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Personal experiences with Vitamin D, exercise & Mononucl

Postby Ruthless67 » Sun Nov 22, 2009 10:28 am

When my grandmother was pregnant with my mom, she was on bed rest and my grandfather, being too proud to ask for help, fed her mostly potatoes. She must have had a lack of Vit D and other nutrients because of diet and bed rest. My mother had many physical problems through her life and later when she gave birth to my older brother, she had to stay in the hospital and have one kidney removed. Once she got home, she got pregnant with me and I was born 13 months later in February. (spring) Again probably a lack of vit D as she wouldn’t have been all that strong or healthy during her pregnancy with me.

I remember as a little girl crying at night because my legs hurt (ached) and I couldn‘t sleep. My mom would make me hot water bottles to use. I also was a bed wetter. (I don’t know if there is any MS thoughts on that? I kind of wonder if it isn‘t an indication of a future over active bladder, which I do have now.)

Also when I was a little girl till now I have never liked to run. I was active, but just didn’t like running. We lived in Southern California where I was born. When I was fourteen we went to the Grand canyon and though my family hiked in the mountains near our home nearly every weekend, it’s nothing like GC, anyway, my brother and I hiked way down, then when we turned around to come back up, I had a really hard time. My face & head became really red and adults who passed us on their way down thought I might have sun stroke. Quite a few gave me water from their canteens. I’m ashamed to say now to those generous folks that what I had was Mononucleosis, which is contagious. Some theories think Mono might be a trigger for MS.

In 1997 I was going through a very emotional and stressful time and decided to lose weight so I started using a treadmill and get my heart rate up. It was hard work for me and I really had to push myself to get the heart rate up, remember I don’t like to run. Anyway, that didn’t go well because a week or two into the exercise and I developed Optic Neuritis in my right eye and a diagnosis from my Ophthalmologist of Multiple Sclerosis.

This might be too much personal information, but I wonder if other MS'ers have simular stories.
User avatar
Family Elder
Posts: 422
Joined: Tue Oct 27, 2009 3:00 pm
Location: Montana, USA


Postby ozarkcanoer » Sun Nov 22, 2009 10:35 am

Ruthless... I am glad you posted your story ! It is our stories that mean the most. My story is very long. My journey to an MS diagnosis was distressing and confusing. Some day we can all get together and share our stories.
User avatar
Family Elder
Posts: 1273
Joined: Thu Oct 15, 2009 2:00 pm
Location: St. Louis, Missouri

Postby mrhodes40 » Sun Nov 22, 2009 10:36 am

My story is different in that my Mom was a hiker as a girl and lived in Louisiana when pregnant with me. I was pushed about outside in my pram for fresh air. I do not think she was d deficient. I lived on a farm and was outside much of every day doing chores, but we lived in Washington state by then so not super sunny.

My d levels were good/OK when checked..........

It is not everyone who has a vitamin d issue which is something I think is important.
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you... This is my regimen thread Read my book published by McFarland Health topics
User avatar
Family Elder
Posts: 2067
Joined: Thu Sep 23, 2004 2:00 pm
Location: USA

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)


  • Related topics
    Last post

Who is online

Users browsing this forum: No registered users

Contact us | Terms of Service