I fully understand the frustration that comes with PPMS.
I too have PPMS and was at first reluctant to raise my hopes, just in case they were dashed yet again.
However I have decided to see Dr Simka and get scanned and if anything is found, have it "liberated".
This quote from GiCi is hard to disagree with.
GiCi wrote:Hi Wonky1,
I do not think that anybody could answer your questions, not even Zamboni.
It is true that improvements following the liberation procedure have been observed, but the evidence is still being accumulated. If you decide to have the procedure you should do that on the basis that a normal drainage of blood from the brain is very likely to be better than a faulty one.
So I've decided that I would be better of with correct drainage.
Anything else is a bonus.
Of course, I'm sure a positive attitude (again) will I'm sure help, even if improvements do take a lot longer than in RRMS people, I've nothing to loose and the possibility of huge gains. Given time of course.