This Is MS Multiple Sclerosis Community: Knowledge & Support

It's all happening, perhaps.
Yesterday I emailed the fabulous w5 news report to lots of British news organisations and reporters. Today I was contacted by the BBC who had loads of questions for me about CCSVI and my imminent treatment.. It's about time CCSVI caused an avalanche of interest this side of the pond.
Fingers crossed.

That's great wonky, good work! I'll be watching with interest.

Mark.

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Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5

good for you wonk

Well Done Wonky!! I am so pleased you got a response!

I did that too yesterday but no one got back to me:( You obviously write a better e-mail than me:))
I did get an automated response from Sky news but I don't think that counts lol!

I contacted Case Notes and the Health Editors of the BBC news site AGES ago and Case Notes at least acknowledged the information, but that was it.

I contacted Case notes too (on the advice of my friend who listens to it) I have never heard it before. I sent them the link to the W5 programme, I have not got a response yet.

If anyone does contact me back I am only going to pass it on to one of the other UKers as I have not had the procedure yet and am still in the "hiding my MS" phase

Hi,

Any news about Zamboni's last publication? (has it been released? Tomorrow?...)



Jean

Yes, tomorrow I think

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Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5

O.K. Following my chat yesterday with Michelle Roberts the BBC health correspondent. She has written a story about CCSVI and my trip to see Dr Simka tomorrow. It will be published online on the BBC news site, I guess it will be in the health bit. It's available from midnight GMT (English time)
Unfortunately I'm gonna miss it because I'm off to bed soon, early flight.
Hope it's cool.

wonkey1... That's greate !!

That's brilliant Wonky1. Good luck with the trip tomorrow, keep us posted.

All the best!

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Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5

Nice one Wonky! I am looking forward to hearing of your Poland experience...keep us posted xx

Well done, Wonky!!! Best wishes!!!

Good luck Wonky! Hope you can immediately update the BBC website with improvements!

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3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,

Hi all
Does anybody know which French media would be interested in this? I know that France has a great medical system and I feel they would be very qualified for this, but we also definitely need the French speaking world to be aware of the news...And they are great fighters, so it would harder for the Big Pharma to hide anything:-)