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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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Jamie
PostPosted: Mon Nov 23, 2009 6:11 pm 
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http://www.mssociety.ca/en/default.htm

Front page is an announcement about CCSVI!!

http://www.mssociety.ca/en/releases/nr_20091123.htm

Well done Canada!!
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ozarkcanoer
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PostPosted: Mon Nov 23, 2009 6:16 pm 
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:D :D Absolutely fantastic !!! This is what we like to hear !!
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Ruthless67
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PostPosted: Mon Nov 23, 2009 6:16 pm 
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Oh............my................gosh.............This is almost surreal!!!!!!
Thanks everyone for making this go forward!!!!!!!!!
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vendredi5h
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PostPosted: Mon Nov 23, 2009 6:18 pm 
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Wow! I cannot beleive that! Much more appropriate and positive reaction.

Thanks to let us know Jamie!

Yannick
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Rokkit
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PostPosted: Mon Nov 23, 2009 6:48 pm 
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Now that's leadership! Bravo!
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Lyon
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PostPosted: Mon Nov 23, 2009 6:49 pm 
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.


Last edited by Lyon on Thu Nov 24, 2011 10:42 am, edited 3 times in total.

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bestadmom
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PostPosted: Mon Nov 23, 2009 6:50 pm 
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I bet their phones and emails were off the hook and they had to publish a response or else their members would revolt. This is very positive. I hope someone can apply for research $$ by12/9 -that's not much time.

Dr .Haacke, I hope you'r preparing your application!
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jimmylegs
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PostPosted: Mon Nov 23, 2009 6:59 pm 
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ha good work canadians :)
and, "the deadline for applications will be January 22, 2010"
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Needled
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PostPosted: Mon Nov 23, 2009 7:02 pm 
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I had just sent an email to the Connecticut chapter of the MS society. When I saw the Canadian website, I copied the link and resent my email, adding a line and asking if the CT/NMSS could perhaps follow Canada's lead?
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prof8
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PostPosted: Mon Nov 23, 2009 7:27 pm 
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I talked to Alex in Dr. Dake's office today and she said she came in this morning and her voice mail was overflowing with calls from Canadians!! Looks like she will have even more work ahead of her--not just the States.
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bestadmom
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PostPosted: Mon Nov 23, 2009 8:06 pm 
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Was today's Alex's first day as a full-timer? Coincedence?
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BBE
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PostPosted: Tue Nov 24, 2009 12:28 am 
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1. Does the MS Society recommend people travel to get potential treatments related to this new idea?
The MS Society believes that this is a question to be addressed by the individual to their neurologist/physician. It is noteworthy that the treatment ideas in question are very new and not scientifically established.

2. I have MS. Should I be tested for signs of CCSVI?
Please consult your neurologist/physician for medical advice on this topic.

That`s the way they should react and not that dismissive like NMSS did before...
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ErikaSlovakia
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PostPosted: Tue Nov 24, 2009 12:31 am 
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Congratulation, Canada!
Erika

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Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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mrhodes40
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PostPosted: Tue Nov 24, 2009 9:39 am 
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Quote:
The MS Society believes that this is a question to be addressed by the individual to their neurologist/physician


right on! some people have no options at all via standard materials. They SHOULD be allowed to entertain the thought at least.

:D :D

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I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics


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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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