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I bet their phones and emails were off the hook and they had to publish a response or else their members would revolt. This is very positive. I hope someone can apply for research $$ by12/9 -that's not much time.
Dr .Haacke, I hope you'r preparing your application!
I had just sent an email to the Connecticut chapter of the MS society. When I saw the Canadian website, I copied the link and resent my email, adding a line and asking if the CT/NMSS could perhaps follow Canada's lead?
I talked to Alex in Dr. Dake's office today and she said she came in this morning and her voice mail was overflowing with calls from Canadians!! Looks like she will have even more work ahead of her--not just the States.
1. Does the MS Society recommend people travel to get potential treatments related to this new idea? The MS Society believes that this is a question to be addressed by the individual to their neurologist/physician. It is noteworthy that the treatment ideas in question are very new and not scientifically established.
2. I have MS. Should I be tested for signs of CCSVI? Please consult your neurologist/physician for medical advice on this topic.
That`s the way they should react and not that dismissive like NMSS did before...
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS, - Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs - Jan. 19, 11: control venography in Katowice - negative but I feel worse
The MS Society believes that this is a question to be addressed by the individual to their neurologist/physician
right on! some people have no options at all via standard materials. They SHOULD be allowed to entertain the thought at least.
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you... http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread http://www.ccsvibook.com Read my book published by McFarland Health topics