Mark -- so you decided to do the surgery even though you have mild MS symptoms? Or as you said "it's not an emergency?" What made you do it? Or was it after seeing the MRI/MRV pictures you thought -- wow, this is really messed up and I need to get it fixed. I'm still wondering what I will decide -- I have thoughts of just getting the testing and then coming back in 6 months during the summer to get the surgery. We should know even more about CCSVI by that point. I can afford to wait 6 months. BUT...maybe things will look bad and I will want to get it fixed now. My only concern is the neck nerve problems and the whooshing/tinnitus that some people seem to be experiencing after the surgery.
Having MS made me do it. There is no medical book in the world that would characterize my symptoms as anything other than "mild". So "even though" I have "mild" symptoms, those mild symptoms left me unable to do a whole lot of nothing, or close to a portion thereof.
I for one wasn't willing to waffle and wait until the line got to around the block, IF I thought there was something there, why wait? Couldn't think of a good reason to not do it. Sure there will be some minor improvements or more knowledge in 5, 6 months maybe years. But the bell curve on this is peaking rapidly insofar as treatment modalities, so why wait?
I had my tinnitus before my surgery and now afterwards, don't even know if it's MS related anyways. This is why I don't compare anyone else's experience to my own, it's like reading the list of side effects on a drug insert before taking, if we assumed all that stuff we wouldn't take any drugs at all!
So yes, compared to someone in a wheelchair, my MS is mild. Compared to what I was 5 years ago, it is not. I look back, then extrapolate into the future, and it wasn't looking too bright and cheery. When one is in a physically demanding job, fatigue takes on a whole new importance.