UK MS Society

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby LR1234 » Tue Nov 24, 2009 12:50 pm

I have just applied too:)
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Postby MSUK » Tue Nov 24, 2009 11:50 pm

mrhodes40 wrote:Are all of your articles available online? I am an American so not eligible for the free subscription.

The first book I ever had after I got MS in 91 was Judy Graham's Self Help book.... :D


Hi, all the past issues of New Pathways Magazine are available online, but only up to 2 editions before the currently published one, at any time - http://tinyurl.com/yh35q8w.

We are happy to offer the one year free sub offer to people overseas (as long as you haven't subscribed before) for postage costs only. Currently around £12.50 for Europe and £21.00 for rest of the world.

Please note we can also send New Pathways as an Audio CD in addition to the printed copy for those people where sight is a problem.

Hope that helps.

squiffs :D
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Postby AndrewKFletcher » Wed Nov 25, 2009 6:56 am

Hi Squiffy

Hi HellenMRSC


Could you ask the Editor of New Pathways and the Management of the MSRC why they never published the Raised Bed Survey conducted by John and Jean Simkins in 1997? http://curezone.com/upload/Members/New0 ... SURVEY.rtf

Could you also ask them why they went back on their word and failed to put in place the controlled study they promised?

Could you ask why my many attempts to post about Inclined Bed Therapy on the MSRC forum are prevented?

I am still a member but you will not find my posts or any mention of my research on your forum. Why is this?

If you watch the TV News article on Youtube relating to Inclined Therapy, you will hear Lawrence state “If it works then let’s get everybody trying it”

Clearly from the Raised Bed Survey Report, they already knew it works for people with MS.

http://www.thisisms.com/ftopic-6755-day ... hn-45.html more letters



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Postby HelenMSRC » Wed Nov 25, 2009 7:35 am

Dear Andrew,

Just to be clear from the outset, I am the Chief Executive of MSRC now. I have been in post for 2 1/2 years but have worked for the charity since 1999.

Unfortunately the dates you have given for this work pre-date my arrival at MSRC so I am unable to comment with any surety on the whys and wherefores of this situation you have raised. I am also, of course, unable to speak of the state of mind of any other person you have referred to.

I can comment on your statement about the MSRC forum - we have NEVER deleted or moderated posts, it is a principle under which we have acted from the start. The only time this is not the case is if we are being spammed with commercial advertising (happens occsasionally) or if someone is being offensive and personal (very rare on our boards). I am therefore bemused by your statement that your posts were/are being prevented. Interesting that you use the word "prevented" which suggests we are somehow stopping them before they get on the boards which would suggest that we premoderate posts, which we don't! The only likely explanation is that we moved messageboards some years ago.


So perhaps you would like to email me directly with the information you would like in New Pathways (I am sure we will publish it, I just can't give a guarantee on which issue). I am also sure that you can post whatever you want to in our forum and I am sure that if you send the relevant information to our website manager Squiffy, he can put something up on the website itself.

Best wishes

Helen
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