I just read the article...it was straight to the important points.
I'm sick of hearing "from the position of the society, from the position of the neurologists"........WHAT ABOUT OUR POSITION OF CHRONIC PAIN & POOR QUALITY OF LIFE????
OF COURSE THERE WILL BE A STRONG SUPPORT OF CCSVI TREATMENT FROM OUR POSITION OF SUFFERING. (yes I am yelling).
Ok I'm calm now.
If there are 50,000 to 75,000 ms sufferers in Canada alone, that is a strong voice if CCSVI treatment research is demanded here. I'm also certain we all contribute financially to the cause and have brought awareness to friends and family who have also donated. I wonder what the ratio is between fundraising/donations to drug sponsorship/commissions?
The issue of the pharmaceutical involvement is a double edged sword. Some medication does work, some money has contributed to an awareness, yes the companies make a profit, but money has been allotted to many good things for our benefit. We also know when money is involved, there is competition.
The response of the society is a responsible one. It is the lack of enthusiasm for an amazing new FACT that disappoints me. It may or may not be a cause or fix, but stenosis in ms is still a new valid discovery.
The society is correct, people should not abandon treatment until more is known. From reading our dear folks who have received the CCSVI treatiment, it appears some symptoms have disappeared and some have reduced. This means, yes some of us will still need some drugs even with the treatment. In the long run wouldn't that make everyone happy?
Sorry for the ranting, I'm still learning and very hopeful. I think CCSVI treatment could have strong financial support independently as more people learn of the procedure. But it is good to hear the society is accepting proposals, as they should be.