I have mentioned it to two of my neuros, and have been pestering them about it for the past 12 months (both of whom are well connected in MS, worldwide).
I have had another neuro who specialised in stroke actually perform the Doppler tests as described in Zamboni's paper of 2008. They found a reflux in the IJV, but not a second item as described; and he quickly returned to his main field (MS was not his speciality).
One of my neuro's has recently agreed to perform the SWI & MRV as per Dr Haake's web site.
I have had an MRV performed, but it was only of my head and upper neck. It did not show any specific stenosis, but did indicate an asymmetry in my jugulars. I am guessing (almost hoping) that my issue will be FOUND somewhere lower down, below my neck.
I have also made the Australian MS Society aware of Zamboni's work, and am in contact with one of their head research neuros. Today I received an email from him, with an attached memo addressed to MS Australia, informing them of "CCSVI". He is very interested in this research, but obviously I am guessing he has to remain professional and expect full scientific methodo0logy to be followed. I searched their web site and did not find the document, so I am guessing its an internal document, even though it has a QA at the end obviously aimed at patients. Or maybe it will be published soon. But they are aware of it.
As soon as Zamboni's treatment paper is available, I will be chasing up my second neuro regarding the SWI & MRV.
I have also spoke to a local vascular surgeon who is a friend of Zamboni, was on the committee for the conference in Monaco, and has also spoken directly with the neuro that will be organising the SWI & MRV. From my understanding he is also cautiously following this.