I got 'nonsense' form my neurologist, so I tried my GP. After at first being told no specialists know how to run a test for CCSVI, after the second request she gave me a referral to the Westmount Square one in Montreal. The guy was fairly good and knowledgeable. But we were an hour late due to hockey traffic and he wanted to go to the game! So it was cursory. I need the gold standard. He didn't see anything, but he wasn't stopping to explain anything either. He said he had found it in only 30% of the people he'd seen.
My GP has the report. I didn't get any picture, because they were extra, and would have cost more time, and he said they didn't show anything. It was the last such appointment due to the order from the association.
So Dr. Rose had his way. But due to the intervention of a doctor friend, I had already seen both jugulars with severe narrowings, on a different machine, with a 5 MHz probe.
The other thing I was wondering if anyone can tell me, he kept asking me to do a valsalva, blow out all my breath, and presumably he looked for something at that poiint. Then he would say: 'breathe normally'. What is expected to happen here? I have never heard of this.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience