nicko wrote:I know how everyone feels, I'm classified as RRMS, but I'm starting to have some slow progression between attacks. Which scares the living daylights out of me. Not to mention my balance and feeling in my legs. It feels like i'm walking on squishly ground even if its cement. If i try to stand still I sway like being on a boat in the ocean. I'm pretty sure another couple years and I won't be walking.
MS or not, if we have these vascular problems, they should be fixed should they not? Why do they need to run trials on this... If someone doesn't have ms and they found the same thing in legs or arms etc. They would fix them without issue. Just because we have MS they want to run trials to see how effective the procedure is. Even if they had no effect on MS they should still be fixed.... Them running long trials is just plain wrong in my opinion. Basically they are playing with our lives. The increased risk of stroke alone. I'm sure MSers have a much higher risk of stroke. But because of a pre-existing condition they consider us sickly and don't pay much attention to the numbers.
If MS clinics and dr's really cared. They would be testing us all right now to see if we all really have these defects in our necks and spine. IF most of us do have it, we should be in line to get fixed up.
Like others have said we need to push this issue now. We need to make it heard. We need to make such a fuss that they just fix us so we will shut the h*** up. We can't let this get dragged on and give the drug companies time to shut this up. So they won't lose the billions they suck off of us every year with very in-effective drugs.
Getting politicians involved might help though. As the government here in Canada pays for all our MS drugs, besides Tysabri. One procedure to help us out and the probability of getting off these expensive drugs. Should be a big opportunity to save alot of $$.
I know I know, I rant.... But it feels good
jimmylegs wrote:heard a rumour there's something stirring in toronto.. can't confirm just yet.
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