Need info ASAP!!
venogram tomorrow!! I am frightened...
I used a connection and got an appointment with a leading Vascular guy in the area. He hadn't heard of the Liberation procedure. I brought him every article and even downloaded Pubmed research by Dr. Zamboni. He sat down with us for over an hour, looked through research...said he would call Dr Dake and check with his team of surgeons. Was going to really research this and make sure it was safe for my husband to do. He was very excited about this "new frontier". My husband had an ultrasound while in the office which was normal. He also went two weeks ago for his brain and neck MRV which, I believe were read as normal although some of the area was not well visualized. I am seeing so many people's successes on this panel and am so hopeful, but I fear that I will have pushed my husband into a procedure that will reveal nothing.....
I have faith, I do. But I'm so scared right now that our hopes will come down crashing....please tell me that someone out there has had a normal workup! The vascular doc says that the true test is the Venogram.....
I have faith, I do. But I'm so scared right now that our hopes will come down crashing....please tell me that someone out there has had a normal workup! The vascular doc says that the true test is the Venogram.....
- cheerleader
- Family Elder
- Posts: 5361
- Joined: Mon Sep 10, 2007 2:00 pm
- Location: southern California
hey Kacey-
hang in there. You did the heavy lifting, you got your husband an appointment for a venogram with a vascular surgeon who is interested in seeing if this is part of your husband's illness.
My fear, as we were flying up to Stanford, was the exact same as yours...I felt like I was wasting my husband's time and limited energy looking for crazy answers. But it worked out.
Whatever tomorrow brings, I wish you and your husband well.
Keep us posted,
cheer
hang in there. You did the heavy lifting, you got your husband an appointment for a venogram with a vascular surgeon who is interested in seeing if this is part of your husband's illness.
My fear, as we were flying up to Stanford, was the exact same as yours...I felt like I was wasting my husband's time and limited energy looking for crazy answers. But it worked out.
Whatever tomorrow brings, I wish you and your husband well.
Keep us posted,
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
Incredible!!! Blocked jugular!
So we went today for the venogram. Before the procedure, Dr.Mehta came to talk with us, told us that his buddy is Dr. Dake!!! I asked if he had called him about the procedure since he was unfamiliar. He did one better. He actually flew out to Cali 3 weeks ago and had him show him what to look for!!!!!
He did the venogram. Michael's left jugular vein was blocked 70%. He underwent angioplasty.
Of course, I cried like a blubbering fool! We were all really dumbfounded, truly. But there it was, that lovely blocked jugular!
Michael is exhausted! Snoring away on the couch, sore groin and neck/shoulder, but I am anxious to see if there will be any improvement in his symptoms....
Praise the Lord! Thanks to Dr Mehta, Dr Dake and all the pioneers out there. Thank you thank you thank you......Can't say it enough!!
He did the venogram. Michael's left jugular vein was blocked 70%. He underwent angioplasty.
Of course, I cried like a blubbering fool! We were all really dumbfounded, truly. But there it was, that lovely blocked jugular!
Michael is exhausted! Snoring away on the couch, sore groin and neck/shoulder, but I am anxious to see if there will be any improvement in his symptoms....
Praise the Lord! Thanks to Dr Mehta, Dr Dake and all the pioneers out there. Thank you thank you thank you......Can't say it enough!!
- cheerleader
- Family Elder
- Posts: 5361
- Joined: Mon Sep 10, 2007 2:00 pm
- Location: southern California
Kacey-
I am so happy for you. Really. I hope the recovery goes smoothly, and your husband's jugular flows freely. You found another doc to treat CCSVI! Good for you!!!! One by one, the doctors are showing each other what to look for, and how to address this.
Happy New Year, Kacey. Please keep us posted.
continued blessings-
cheer
I am so happy for you. Really. I hope the recovery goes smoothly, and your husband's jugular flows freely. You found another doc to treat CCSVI! Good for you!!!! One by one, the doctors are showing each other what to look for, and how to address this.
Happy New Year, Kacey. Please keep us posted.
continued blessings-
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
Wow Kacey!!! You have made some amazing progress! I am hopeful you and your husband will be celebrating his liberation soon! Your husband is one lucky guy! Keep us posted:)
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
- ozarkcanoer
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- Joined: Thu Oct 15, 2009 2:00 pm
- Location: St. Louis, Missouri
- Contact:
Very proud of what you have done. Another caregiver goes to bat, and hits a home run! Isn't it great when Dr's do that "flying cross-country to make sure I get it right" thing. WOW.
You are a pioneer in your own rite. Let this be an inspiration to others, DON'T GIVE UP.
So happy for you guys, keep us posted, please!!
Mark.
You are a pioneer in your own rite. Let this be an inspiration to others, DON'T GIVE UP.
So happy for you guys, keep us posted, please!!
Mark.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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