hang in there. You did the heavy lifting, you got your husband an appointment for a venogram with a vascular surgeon who is interested in seeing if this is part of your husband's illness.
My fear, as we were flying up to Stanford, was the exact same as yours...I felt like I was wasting my husband's time and limited energy looking for crazy answers. But it worked out.
Whatever tomorrow brings, I wish you and your husband well.
Keep us posted,
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09