This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi folks,
would anyone care to comment?

http://medicalmyths.wordpress.com/2009/ ... boni-myth/

I've put my 2 cents as a comment at the bottom of the page.

Cheers,
..Adolfo

this guy is dangerous. Better he sticks to feeding potatoe chips to rats.






Mr. Success

"and demanded funding from MS charities and government to make this available to all MS patients"

Working for the other side perhaps?

Even if the theory in the end proves to be untrue (which of course we don't believe) I don't see why any theory should be ignored especially when it concerns an incurable disease that only some can be treated for.

This guy really angers me, not because he doesn't believe in the theory but because he is out ruling it before giving it a chance.

i don't even care about naysayers at all, the fact that some people may believe them is not a cause of concern for me. the author(s) are probably gratified by spurring outraged retorts ... i have my own healthy skepticism about new developments but i don't have to slam things and that is because i have no vested interest in the status quo and no interest in pissing ppl off just for the sake of it. ppl like that get blocked from TIMS and that is part of the reason this is the only forum in which i participate.

I have only been aware of CCSVI for a month or so and I see a couple of incorrect statements. Is it worth posting a point by point response here? There are members here that know the ins and outs very well. Certainly there is truth there as well. I guess that would be the reason for the studies. To answer for sure and quiet the naysayers.

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Chuck

I dont even see the point in criticizing any theory when it comes to diseases that defeat all treatments available right now.

Poor-minded people have poor opinions, let's move on

What worries me is that a lie told often enough becomes the truth. I'd hate to see incorrect statements be held as truth or the source of additional criticism. I just want to truth whatever that turns out to be.

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Chuck

I've just left a comment on the site too. Nice to see that so far everyone is debunking his claims.

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Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5

Very well put. This guy is bursting with hypocrisy. He insists on getting all the research before making any conclusions, yet he concludes that this can't possibly be the answer because not enough research has been done. I smell a contradiction. What kind of a scientist is this? If he is really concerned about this matter his position should be a cautious uncertainty, not an outright denial. A subtle difference, but surely he should understand it. In conclusion, what a tool.

Looking at the site, I don't pick up any sense of compassion or altruism at all, which I would look for in a doctor who actually cares about people and doesn't have some sort of personal agenda. Posting photos of obese people and citing them as "examples" of everything that's wrong is pretty low. It smacks of judgementalism, as does his jab at Cheerleader.

I certainly don't know what qualifies him to be in a position of judgement on the issue of CCSVI.

What a jerk. Since when did emerging medical research immediately become labeled "myth"?? And for the record, no one ever claimed this to be a cure. Nice--NOT--that he requires people to log in before they can comment, effectively limiting the number of replies people will submit.

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dx RRMS Jun. 2009...on Copaxone and LDN and waiting for my turn to be "liberated"<br />

Most doctors that help patients and are curious about this theory don't have time to blog or to attack wives of MS patients. They're busy practicing medicine and publishing papers in medical journals. A new one coming from Stanford on the first CCSVI patients treated has just been accepted. Details to come.
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

cheer... that's great that a scientific paper is coming from Stanford. The people from Stanford have the highest scientific standing. I am so glad you and Jeff went to Stanford.

Ozark

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