Oh, Radeck?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Lyon » Tue Dec 01, 2009 6:15 am

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Last edited by Lyon on Wed Nov 23, 2011 1:47 pm, edited 1 time in total.
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If you want to help...

Postby radeck » Tue Dec 01, 2009 7:09 am

I don't know exactly whether the stents used in us can be collapsed once they have been expanded. Maybe somebody knows??

I'm interested in this because I've been looking for ways to have at some of the stents removed. I have inquired about surgical removal, though endovascular removal might be safer. The best would be if the stents could be collapsed in their current location, then simply pulled back out through the groin. But I don't know how they could be collapsed. Alternatively if one could raise the pressure in the vein briefly, the stent would come lose as well and one could collapse it with a tourniquet. Even if it can't be collapsed, it (8mm) would easily fit through the lower (12mm) stent If one of you can think of a endo-vascular specialist could contact, or a vascular surgeon, please let me know.

Two questions on complications. I have a very uncomfortable pulling sensation in the area of the two lower jugular stents when I bend my head, no pain, but simply like the vein segments around it are being nearly torn apart. Is this simply because the stent is much more rigid then the vein, and because the stent is so long, overall dynamics of the vein is affected by a proportionally huge amount? I wonder if this will make the vein segments just outside of the stent un-elastic and dis-functional like an old rubber band.

Also, I still have the pounding in my head, shoulder, and a bit the left arm. I was now told this is probably not because of the heart surgery. In that case it has to be because of the stents. One thing I thought is that maybe the stents press on my carotid arteries somewhere and make it harder to get blood to the brain so that the heart has to pump harder?

Anyway, the removal question above is most important. If you have any inspiration or can think of an endovascular specialist or vascular surgeon I could contact anywhere in the world that might be willing to take this on, please let me know via this board or pm.
Last edited by radeck on Thu Dec 17, 2009 2:58 pm, edited 1 time in total.
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Postby Algis » Tue Dec 01, 2009 7:21 am

@Lyon: please understand I know you intent to have a close interpretation of the 'in-situ' procedure; but it could lead to false representation of the true problem.

For cysts and bony structures "pushing/pinching" the vein; the graphic is even worse; since the stent would have to modify the path of the vein because it cannot modify that cyst/bony structure; reduce it; or eliminate it.
It is probably in those cases that some people have a nerve that is irritated for the time the vein "sit" in the new place.

Congenital anomaly is subjective tho; and therefore can only be representative as such.

Be well :)
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Postby Rokkit » Tue Dec 01, 2009 10:19 am

Radeck, are you concerned it may come lose or are you thinking you may not need it since the vein may have opened some on it's own like the other side?

Sorry I don't have any thoughts on where to go to get it removed.
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Postby chrishasms » Tue Dec 01, 2009 11:02 am

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Postby zap » Tue Dec 01, 2009 11:30 am

"A sensation of pulling or tugging in the stent area is caused by tissue swelling or muscle spasm, but not directly caused by the stent. This is generally harmless."
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Postby Rose2 » Tue Dec 01, 2009 12:09 pm

Hi Radeck!
I am happy to see you posting. I hope you are resting!
I cannot compare my treatment to yours in anyway, but are you having headaches?
I had a horrific headache for a few weeks from my upper stent and I also felt like each heatbeat was blowing off my head, neck and shoulder.
They have subsided and I do not have headaches anymore.
Just a thought.
Sincerely, Rose

I am sorry I do not know anything about removal of stents. Can Dr. Dake remove what he put in?
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Re: If you want to help...

Postby Lyon » Tue Dec 01, 2009 3:27 pm

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Last edited by Lyon on Wed Nov 23, 2011 1:46 pm, edited 1 time in total.
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Postby zap » Tue Dec 01, 2009 4:14 pm

I sent Radeck some other info, but in case anyone else is wondering - yes, it does appear that stents can at least in theory be removed percutaneously:

http://www.ajronline.org/cgi/content/ab ... 176/6/1509
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Postby Lyon » Tue Dec 01, 2009 4:33 pm

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Postby zap » Tue Dec 01, 2009 4:42 pm

Oops, here's a better link, thanks Lyon:

http://www.ajronline.org/cgi/content/full/176/6/1509
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Postby mrhodes40 » Tue Dec 01, 2009 6:16 pm

dang wrong thread sorry Rad!

good links guys!
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby Jeff_wMS » Wed Dec 02, 2009 11:40 am

Radeck, I was so sorry to hear about this complication and invasive emergency procedure with your stent. I just wanted to let you know, you are in my thoughts and prayers, and I wish you good recovery. I'm so sorry you obviously have much more to recover from than what you went into expecting.

It's important for us all to be aware of the risks involved, and your candidness to us here is so valuable and appreciated.
much love and healing thoughts from cheerleader and me-
Jeff
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Postby Ruthless67 » Thu Dec 03, 2009 9:05 pm

Bump!

Just checking in, you doing well?

Lora
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Postby Algis » Thu Dec 03, 2009 10:13 pm

Right; wave a bit Buddy; wish you are better :)
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