This Is MS Multiple Sclerosis Community: Knowledge & Support

Radeck,

This was one of my big concerns -- a stent getting loose and floating about before it endothelialized in the vein. And, I know that you gave quite a bit of thought in regards to your high stenosis. I'm sorry for this unbelievable "complication" -- calling it that makes it sound trivial. What you're going through is a big, big deal. I too had a highly invasive surgery last year (brain) and recovery from these sorts of things is a slow process. Please take care and rest, rest, rest. We'll be here later.

Donna

radek... I sit at my keyboard speechless... you've got some good doctors at Stanford and you seem like a fighter. You know we are out here thinking about you and hoping for the very best outcome. I am looking forward to you next post.

sincerely,

ozark

speedy recovery thoughts sent your way. Now I know why I preferred the Angio procedure over stenting. Looks likely Dr. D will go back to large diameter stents .

This is not a setback . It is a huge advancement .

you are a brave pioneer .....





Mr. Success

wishing you a speedy recovery--this must be rough, so unexpected and suddenly so invasive of a procedure now. I suppose this is the "migration" that Zamboni was talking about re: stents, perhaps why he wants to develop dissolvable stents (is my understanding correct? If not someone please correct me). You are definitely a pioneer and really taking one for all of us MSers. Be well...

_________________
dx RRMS Jun. 2009...on Copaxone and LDN and waiting for my turn to be "liberated"<br />

Radeck,

I am sorry to hear of this unfortunate turn of events, but know you are in great hands and am so glad they caught the stent quickly. Here's to a full recovery from the surgery and MS. I'm thinking of you.

Michelle

Oliver,

Holy shit. I am praying for you and sending good mojo as we speak. I got a text while driving home from family thanksgiving and pushed down the gas to find out. Man I hope you recover quickly and have minimal problems with your other stents. Here's to you man, you've been through the wringer man.

Dear Oliver,

Turn the computer off and get some rest! This was a serious operation, as it's not everyday you go in for a "normal" procedure and the next day, your chest is broken into and cut up to fish around for lost stent. Visualize getting better!

Best,
phoxychocolat

Man I can't even believe what I'm reading. Don't even know what to say. I remember you weren't even planning on getting the stents. Then apparently you decide to go for it and this happens. I had no idea something like this was a possibility. Get well soon, bro, better days are ahead.

What a difficult time. So sorry that you are going through this. My sincerest well wishes to you as you rally all your resources and strengths to see yourself through.

_________________
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri

I'm so sorry,Radeck-hope You will be better soon.I'm wishing You quick recovery without further complications.Oh,God,open heart surgery

This reminded me of this quote from the Ceneculum thread, where Cheer reported that:

"Dr. Zamboni has been quoted as saying he was waiting to develop an appropriately shaped stent (with a lip) to use in the lower jugular, to avoid migration."

... I don't know if any such anti-migration designed stent might work out in the upper jugular, but I'd guess that if it's at all possible it's going to be looked at now.

Absolute horror and shock. Obviously a huge amount of guilt and sadness. And a sense of incredulity for not even realizing this could happen. I truly had no idea. Radeck, please know that my family's prayers are with you and we'll do what we can to be there for you during recovery. I am so, so sorry. Please keep us posted-

(We had thought the lipped stent referred to lower stents, to avoid migration.)
Joan

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Hopefully they can find some safe compromise with the blood thinners - I read that after certain types of open heart surgery (such as valve replacement) blood thinners are always used:

ie http://surgery.about.com/od/aftersurger ... inners.htm

Thank you all very much for your support.

I think we would all love to be able to do something more to help you than simply write a few words on this site Radeck. Again, I wish you the best in your recovery.

We’re all thinking about you!