Oh, Radeck?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby bibliotekaren » Thu Nov 26, 2009 4:24 pm

Radeck,

This was one of my big concerns -- a stent getting loose and floating about before it endothelialized in the vein. And, I know that you gave quite a bit of thought in regards to your high stenosis. I'm sorry for this unbelievable "complication" -- calling it that makes it sound trivial. What you're going through is a big, big deal. I too had a highly invasive surgery last year (brain) and recovery from these sorts of things is a slow process. Please take care and rest, rest, rest. We'll be here later.

Donna
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Postby ozarkcanoer » Thu Nov 26, 2009 4:58 pm

radek... I sit at my keyboard speechless... you've got some good doctors at Stanford and you seem like a fighter. You know we are out here thinking about you and hoping for the very best outcome. I am looking forward to you next post.

sincerely,

ozark
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Postby MrSuccess » Thu Nov 26, 2009 5:05 pm

speedy recovery thoughts sent your way. Now I know why I preferred the Angio procedure over stenting. Looks likely Dr. D will go back to large diameter stents .

This is not a setback . It is a huge advancement .

you are a brave pioneer .....





Mr. Success
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Postby MS_mama » Thu Nov 26, 2009 5:13 pm

wishing you a speedy recovery--this must be rough, so unexpected and suddenly so invasive of a procedure now. I suppose this is the "migration" that Zamboni was talking about re: stents, perhaps why he wants to develop dissolvable stents (is my understanding correct? If not someone please correct me). You are definitely a pioneer and really taking one for all of us MSers. Be well...
dx RRMS Jun. 2009...on Copaxone and LDN and waiting for my turn to be "liberated"<br />
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Postby bestadmom » Thu Nov 26, 2009 5:15 pm

Radeck,

I am sorry to hear of this unfortunate turn of events, but know you are in great hands and am so glad they caught the stent quickly. Here's to a full recovery from the surgery and MS. I'm thinking of you.

Michelle
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Postby Loobie » Thu Nov 26, 2009 5:17 pm

Oliver,

Holy shit. I am praying for you and sending good mojo as we speak. I got a text while driving home from family thanksgiving and pushed down the gas to find out. Man I hope you recover quickly and have minimal problems with your other stents. Here's to you man, you've been through the wringer man.
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turn the computer off and get some rest!

Postby phoxychocolat » Thu Nov 26, 2009 5:41 pm

Dear Oliver,

Turn the computer off and get some rest! This was a serious operation, as it's not everyday you go in for a "normal" procedure and the next day, your chest is broken into and cut up to fish around for lost stent. Visualize getting better!

Best,
phoxychocolat
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Postby Rokkit » Thu Nov 26, 2009 6:17 pm

Man I can't even believe what I'm reading. Don't even know what to say. I remember you weren't even planning on getting the stents. Then apparently you decide to go for it and this happens. I had no idea something like this was a possibility. Get well soon, bro, better days are ahead.
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Postby Arcee » Thu Nov 26, 2009 7:02 pm

What a difficult time. So sorry that you are going through this. My sincerest well wishes to you as you rally all your resources and strengths to see yourself through.
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
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Postby kinga » Thu Nov 26, 2009 7:13 pm

I'm so sorry,Radeck-hope You will be better soon.I'm wishing You quick recovery without further complications.Oh,God,open heart surgery :(
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Postby zap » Thu Nov 26, 2009 7:19 pm

This reminded me of this quote from the Ceneculum thread, where Cheer reported that:

"Dr. Zamboni has been quoted as saying he was waiting to develop an appropriately shaped stent (with a lip) to use in the lower jugular, to avoid migration."

... I don't know if any such anti-migration designed stent might work out in the upper jugular, but I'd guess that if it's at all possible it's going to be looked at now.
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Postby cheerleader » Thu Nov 26, 2009 7:43 pm

Absolute horror and shock. Obviously a huge amount of guilt and sadness. And a sense of incredulity for not even realizing this could happen. I truly had no idea. Radeck, please know that my family's prayers are with you and we'll do what we can to be there for you during recovery. I am so, so sorry. Please keep us posted-

(We had thought the lipped stent referred to lower stents, to avoid migration.)
Joan
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby zap » Thu Nov 26, 2009 8:36 pm

Hopefully they can find some safe compromise with the blood thinners - I read that after certain types of open heart surgery (such as valve replacement) blood thinners are always used:

ie http://surgery.about.com/od/aftersurger ... inners.htm
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Postby radeck » Thu Nov 26, 2009 9:26 pm

Thank you all very much for your support.
Last edited by radeck on Sat Jan 16, 2010 5:32 pm, edited 1 time in total.
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Postby flipflopper » Thu Nov 26, 2009 9:55 pm

I think we would all love to be able to do something more to help you than simply write a few words on this site Radeck. Again, I wish you the best in your recovery.

We’re all thinking about you!
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