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I was thinking about Oliver (Radeck) just last evening and wondering if he was getting stronger from his heart surgery and how he is now feeling about his stents.
Of the 4 that are left, are you comfortable enough to let them stay where they are now or are you still exploring having them removed?
Some of the prior pioneers had shoulder issues and the improvments they got from the procedure were sometimes slow to present themselves. So in Radeck's case I can only image it's an odd sort of recovery vs any improvements in MS symptoms since the procedure.
Probably Radeck will need PT for a variety of reasons for awhile yet.
I hope you return to pre-surgery condition soon, Oliver and then are able to make gains in your strength and health and begin to notice improvements in your MS symptoms.
What a relief to hear (read) from you, Oliver! Though I'm very curious about what "developments in both your health and otherwise" are, I won't bother you with another PM as I think you will get (more than) enough of them. Just know that my hopes and prayers are with you!
"There is only one good, knowledge, and one evil, ignorance." Socrates
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS, - Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs - Jan. 19, 11: control venography in Katowice - negative but I feel worse
for those who live on the eastcoast, there is a neurologist surgeoned at columbia presp. hospital in manhattan, who would send a stent with ballon in the jugular vein, he has done it for another reason. but he is waiting to see a trial happening.
paulmur wrote:BEZALEL, my ms specialist is at Columbia Pres. Can I get the name of the one you are speaking of? Maybe I could get them to work together.
Bezalel and Paulmur,
You are both off topic, you'd be better off creating a new topic specifically to discuss this issue, those of us who are very interested in following radeck's recovery and healing are pulled back here to read your posts, which have nothing to do with the topic at hand.
CCSVI Procedure 9/16/2009 at Stanford Stent in left and right IJVs SPMS Copaxone Former Ampyra User Regular Botox Bladder Injections 300mg d-Biotin / day
odd sx? no dx? check w/ dietitian DRI=MINIMUM eg bit.ly/1vgQclQ 99% don't meet these. meds/lifestyle can affect levels status can be low in ms & other cond'ns 'but my results are normal'. typical panels don't test all deficits occur in 'normal' range
Yes, JL, I have a couple of weeks ago and the news is not good. I'll PM you later..............Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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