Oh, Radeck?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby VailKin » Fri Jan 08, 2010 10:49 am

Anyone know where Radek is? Some of us are thinking about him and praying that he is ok.
Dxd 1994 RRMS, 2008 SPMS
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Postby LR1234 » Fri Jan 08, 2010 10:50 am

I sent Rad an IM yesterday, not heard anything back yet. I am slightly worried. Rad hope you are ok????
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Postby Ruthless67 » Fri Jan 08, 2010 11:04 am

Ditto Valkin,

I was thinking about Oliver (Radeck) just last evening and wondering if he was getting stronger from his heart surgery and how he is now feeling about his stents.
Of the 4 that are left, are you comfortable enough to let them stay where they are now or are you still exploring having them removed?
Some of the prior pioneers had shoulder issues and the improvments they got from the procedure were sometimes slow to present themselves. So in Radeck's case I can only image it's an odd sort of recovery vs any improvements in MS symptoms since the procedure.
Probably Radeck will need PT for a variety of reasons for awhile yet.
I hope you return to pre-surgery condition soon, Oliver and then are able to make gains in your strength and health and begin to notice improvements in your MS symptoms.
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Postby radeck » Fri Jan 08, 2010 11:24 am

Thanks to you who're inquiring about me. I'm alive and will respond to your inquires when I'm able to.
Last edited by radeck on Mon Feb 08, 2010 6:34 pm, edited 1 time in total.
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Postby cah » Fri Jan 08, 2010 12:38 pm

What a relief to hear (read) from you, Oliver! Though I'm very curious about what "developments in both your health and otherwise" are, I won't bother you with another PM as I think you will get (more than) enough of them. Just know that my hopes and prayers are with you!

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Postby ErikaSlovakia » Fri Jan 08, 2010 1:35 pm

Nice to hear from you Radeck! :D
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby shye » Wed Jan 13, 2010 8:58 pm

Nice to hear from you Radeck--sending light and well-wishes!
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Postby BEZALEL » Thu Jan 14, 2010 8:04 pm


for those who live on the eastcoast, there is a neurologist surgeoned at columbia presp. hospital in manhattan, who would send a stent with ballon in the jugular vein, he has done it for another reason. but he is waiting to see a trial happening.
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Postby paulmur » Fri Jan 15, 2010 2:14 pm

BEZALEL, my ms specialist is at Columbia Pres. Can I get the name of the one you are speaking of? Maybe I could get them to work together.
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Postby Quest56 » Fri Jan 15, 2010 2:26 pm

paulmur wrote:BEZALEL, my ms specialist is at Columbia Pres. Can I get the name of the one you are speaking of? Maybe I could get them to work together.

Bezalel and Paulmur,
You are both off topic, you'd be better off creating a new topic specifically to discuss this issue, those of us who are very interested in following radeck's recovery and healing are pulled back here to read your posts, which have nothing to do with the topic at hand.


CCSVI Procedure 9/16/2009 at Stanford
Stent in left and right IJVs
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Postby BEZALEL » Fri Jan 15, 2010 5:42 pm

hi questor, don't worry, someone mentioned they need an angio doc, on the eastcoast in this forum, so here was an answer....
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Postby jimmylegs » Thu Apr 08, 2010 4:34 am

anyone heard from radeck lately?
odd sx? no dx? check w/ dietitian
DRI=MINIMUM eg bit.ly/1vgQclQ
99% don't meet these. meds/lifestyle can affect levels
status can be low in ms & other cond'ns
'but my results are normal'. typical panels don't test all
deficits occur in 'normal' range
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Postby SarahLonglands » Thu Apr 08, 2010 5:27 am

Yes, JL, I have a couple of weeks ago and the news is not good. I'll PM you later..............Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Postby costumenastional » Thu Apr 08, 2010 5:40 am

Sorry to hear that...
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Postby Algis » Thu Apr 08, 2010 5:51 am

That is maybe too much or too little of a news for all of us who care.

Please PM me with news too - Thanks.
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