neurologique !!!! EVERYONE READ THIS

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

neurologique !!!! EVERYONE READ THIS

Postby ozarkcanoer » Wed Nov 25, 2009 5:27 pm

please go to this link !!!!!!! Does it sound familiar ???


http://neurologique.blogspot.com/2009/11/going-to-other-side.html
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Postby Rokkit » Wed Nov 25, 2009 5:41 pm

Can't believe you guys posted the same link at the same time. This board is freakin hilarious these days. I thought it might slow down some on the eve of Thanksgiving, but not so far.

I thought it was a pretty reasonable post. Although some of his questions could have easily been answered with a more careful reading of Zamboni, all in all I thought it was encouraging.
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Postby ozarkcanoer » Wed Nov 25, 2009 5:45 pm

I followed Neurologique's blog when he went to ECTRIMS. He didn't say one word about CCSVI then. It's like he just heard about it !!! I get twitters from him all about nonsense... and then this ??? The wording is almost a rewrite from the information under the "just the facts ma'm thread".
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Postby ozarkcanoer » Wed Nov 25, 2009 5:48 pm

And he hasn't paid attention to the Buffalo study or Dr Dake's work. Darn it I think he sounds preachy.
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Postby mrhodes40 » Wed Nov 25, 2009 6:04 pm

Well, the iron is part of the a person's own blood and if the immune system attacks the iron, can't this be called autoimmune?


Dr Zamboni was asked is this autoimmune and he responded YES. He meant it in the same way I believe.

I thought it was pretty positive writing.
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby ozarkcanoer » Wed Nov 25, 2009 6:07 pm

mrhodes, Sorry I get so bummed out by some of the neuro's responses. I guess it must be the headaches and fatigue, LOLOL.
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Postby Ruthless67 » Wed Nov 25, 2009 6:14 pm

Gosh I hope you get scheduled soon ozarkcanoer and get some friggin relief! It's so hard for me to function when my head hurts so bad, and you if I remember your previous posts correctly are 24/7. Erika has seemed to have had problems with headaches. I believe she now says thier better, since getting Liberated, but recently she has been experimenting with IBT and changing between sleeping flat and sleeping inclined. I believe she said sleeping inclined helped her headaches & nausea.
Lora
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Postby cheerleader » Wed Nov 25, 2009 6:16 pm

He's a private practice neurologist in Florida, rehashing my words from an online website 8O
We're gonna see alot of this, folks. Pretty funny-
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby ozarkcanoer » Wed Nov 25, 2009 6:18 pm

Ruthless.... I seem to have 24/7 problems with my head, LOL. Just 10 minutes ago I was debating with myself whether to break down and take some prescription pain meds. Yes, I broke down.. :( :(

On a better note, my hubby ordered a queen sized foam wedge for our bed. So I will be doing the IBT thing too !! :D :D
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Postby mrhodes40 » Wed Nov 25, 2009 8:19 pm

thought it was pretty positive writing

mrhodes, Sorry I get so bummed out by some of the neuro's responses. I guess it must be the headaches and fatigue, LOLOL.


Oh my, I didn't mean you were out of line at all I just was grateful he wasn't like that Colin rose dude!!! 8)
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby MS_mama » Wed Nov 25, 2009 9:33 pm

he's saying we need more research and challenging American researchers to step to the plate. Sounds good in my book. Better than those who throw the baby out with the bathwater and say "this cannot be." Pretty reasonable post, although I do agree that a closer reading of Zamboni's research would have answered some of his questions (hate it when people pontificate about stuff they have not read thoroughly :roll: )
dx RRMS Jun. 2009...on Copaxone and LDN and waiting for my turn to be "liberated"<br />
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Postby ErikaSlovakia » Wed Nov 25, 2009 11:53 pm

Ruthless67 wrote: Erika has seemed to have had problems with headaches. I believe she now says thier better, since getting Liberated, but recently she has been experimenting with IBT and changing between sleeping flat and sleeping inclined. I believe she said sleeping inclined helped her headaches & nausea.
Lora

Hi Lora,
oh, I am in a little trouble :D
Thanks God I sleep inclined again but the trouble is I did not even have time for my dinner last night, my e-mail box is FULL! I spend too much time just sitting and replying the e-mails especially from Slovak and Czech people - I do not complain I am happy to do that but they prefer to talk individually to me instead of using slovak and czech forums. So I woke up at 5:00 - which is not normal for me at all and I just was thinking what to do, of course I had strong headache because I was hungry - I took the headache pill - it creates me nausea ALWAYS.
At least I had the breakfast. So I will have to ask people to use some forum and ask me questions there. They have the same questions anyway.
So I have strong headache right now - but this time it is for sure because of beeing hungry and stress from my full e-mail box.
I am so sorry for all people. They are so desperate. Most of them do not understand English so they do not even have enough information.
Well, I simply must manage, but I promise to eat regularly and to go at lest for a short walk. I swear I drink enough and I do take all my pills. I go to inject Clexane right now. I can walk even 30 minutes with the cane.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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