This Is MS Multiple Sclerosis Community: Knowledge & Support

A well written blog by a US Neurologist, Dr. Daniel Kantor about CCSVI.

http://www.neurologique.org/

Click on blogs.

Entry dated November 25, 2009 entitled Going to the other side.

Erin

Chilicotin... you owe me a coke, LOLOLOL

That sure was funny, we posted the same link at the same time.

Do you want me to remove mine because you were three minutes faster?

Erin

That's OK chilcotin we will just battle it out

Chilcotin.... I thought the blog was a little.... preachy ??? and nitpicking about the definition of CDMS !!!!! It's not like Dr Salvi, an MS neurologist, hasn't been working with Dr Zamboni for years.... grrrrrrr

ozark - I think he was just suggesting that to gain mainstream attention Dr. Z should work with mainstream drs in the US. To me it looks like Neurologique is some type of consulting service and assists with running trials, not sure though. So, to me it sounded more like a sales pitch than anything else, but I appreciate the attention this is all getting.

Ozark,

Perhaps the definitions were "lost in translation" from Italian to English.

At least US neuros are talking about it.

Time for me to leave the boards and go make dinner :)

Erin

Dr. Zamboni already has relationships with many mainstream American neurologists, including the neurology dept. at Jacobs Neurological Institute, Dr. Patricia Coyle of State University of New York Stony Brook and Dr. Elliot Frohman, distinguished professor of neurology at Southwestern.

These are academic heavy weights, all have been published in major medical journals.

Whereas Dr. Kantor is a private practice neurologist in Florida and has an online presence as a blogger. People are going to start trying to merchandise this discovery. Just be on the look out-

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Joan,

I know Dr. Kantor personally, and while he may not be quite up to speed on CCSVI , he is a caring and compassionate advocate for the MS cause. For years he has been the only neurologist in Jacksonville willing to prescribe anything but the CRAB drugs. We need neurologists like him willing to think outside the box. Yes he has questions, but so will all neurologists, as they grapple with this new paradigm.

As this is my first post, I would like to express how fortunate we who have MS are to have the logical and rational analysis of you, Marie, and many others available to us on this site. I have been following this thread since July and I am indeed, impressed. Thank you.

Don[/quote]

w-Don... I apologize for my over reaction to Dr Kantor's blog. I have received his twitters and blog postings since the ECTRIMS meeting. I receive twitters that don't seem to be about MS. Since I became aware of CCSVI I keep looking for information about CCSVI from him. I actually sent him an email/question about CCSVI.

Plus, you must know about this if you have MS, I am fatigued, headachey, in pain, can't sleep, on antidepressants, etc etc. With all these pressures and the excitement about CCSVI I just over reacted. I hope Dr Kantor helps us by doing his own research... reading all the scientific papers etc.



ozark

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Let's all hope Dr Kantor is one of our heros. We need these guys! I read a opinion paper one time that suggested when 30% of the people buy a new paradigm it reaches a tipping point.

Don said

Exactly. It took me a long time to really get up to speed on this and genuinely understand it from a model point of view, and I already believed ahead of the work that MS is not autoimmune! Bob will attest that I have been on that boat for some years now.

BTW, I realize Dr Zamboni says this is autoimmune--a reaction to this damage that is self damaging as a side effect, and I absolutely go along with that...

_________________
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics

I thought that was a nice blog post. Cheers to Dr. Kantor.

Don- apologies. I am glad you know the man, and I'm sorry for being judgmental. Uncalled for. I guess my fear is that people will blog/write without understanding the research or all of the doctors behind it. Perhaps you could direct Dr. Kantor to Dr. Zamboni's website, with all the doctors and publications:
http://www.fondazionehilarescere.org/eng/index.html

thanks,
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS