What are the tests to ask for & is there a place in Toro

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

What are the tests to ask for & is there a place in Toro

Postby Rainbolt » Thu Nov 26, 2009 6:02 pm

Hi there,

I'm new to the forum and somewhat new to the CCSVI shtuff and I'd like some help please. I spoke with my GP today and told her I wanted to see a circulatory specialist so they could do or order the appropriate tests, I believe they're a doppler ultrasound and an MRV?MRI??? I'm a little lost... I live in Toronto, ON, Canada and would like to know if there's a doctor here & or testing location someone may suggest.

Thanks in advance,

Sarah
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Postby Rainbolt » Fri Nov 27, 2009 11:24 pm

I'm trying to make it through posts starting from the end, my mind gets fuzzy fast so I'm copying and pasting what I can and trying to keep things in my memory as well. Appears I was right to ask for the tests I did in particular an MRV now it's finding if there are other people in my area who are doing this or have done this? Are there any doctors doing this here?...

My neurologist says they are looking to do studies of their own on this and my names been taken as I'm interested but lord only knows how long all that will take and if in the end I make it into his studies...

I would really like to have this done, and there is no doubt in my mind that tests will show I need it!

I think I noticed in some thread someone mentioning acid reflux and I was wondering what that has to do with this as I've just been dxed with this and am taking even more meds because of it GRRR
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Postby Algis » Fri Nov 27, 2009 11:39 pm

Sarah: there is movement in Canada; I have seen in posts somewhere; but the threads are filling up so quickly that this is too much information for me.

Certainly someone will pop up here and help you :)

Meanwhile if not done yet read the stickies like:

http://www.thisisms.com/ftopict-7098.html
http://www.thisisms.com/ftopict-8778.html
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Postby Rainbolt » Sun Nov 29, 2009 8:47 pm

Thank you Algis I'll read those right away :)

It does seem the whole CCSVI thang is being nicely received here, I have never seen a hokey thing gain interest so this obviously isn't a thing to just push to the side!

Not to mention it makes so much sense to me esp. with the majority of my sensation symptoms feeling like circulation issues!!! I just hope they can move studies on this along and get something fast tracked like they fast tracked Tysabri!!!
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