goddles wrote:Obvoiusly you are very angry either with Dr Cooperberg or False Creek for services we are providing.
Your opinion is not factual, and you are creating a great deal of stress and damage to the hopes and aspirations of people suffering with MS by posting these types of destructive messages.
Thank you for your comments.
I am not angry with false creek or yourself but I am disappointed how a medical professional has taken advantage of desperate patients. This is the result of what your radiologist had performed to screen for CCSVI by January 27, 2010:
goddles wrote:Out of 45 patients scanned to date:
6 patients have significant narrowing of the Internal Jugulars on MRV.
15 patients have other venous abnormalities that may or may not be pathologically significant.
So we are finding abnormalities.
Your stats (assuming accurate) show that only 1/3 of the patients (15 out of 45) had some venous abnormalities that your radiologist reported "may not be pathologically significant
". That means your sensitivity of identifying CCSVI is so poor that flipping a coin is more accurate than your results. It just shows the fact that your radiologist did not know what to look for or he did not want to follow the work done by Zamboni or other reliable researchers. That information is available to everyone on the web (just go to MS website, you don't need to meet Zamboni for that). If your radiologist was really passionated about MS patients and he wanted to train himself to learn how to screen for CCSVI, you should not have charged these patients in the first place. And ethically and professionally, once you saw the poor stats, you should have refunded the patients and send your radiologist to learn how to do them properly.
BTW, you mentioned you have done about 100 patients so far, what are the stats after Jan 27th?
goddles wrote:He retired from the public healthcare system after providing years of teaching and services to thousands of patients during his career in the public system.
He was actually asked by the Providence Health Care who runs St. Paul's Hospital to resign in 2007. BTW, he did not teach CCSVI or MS.
goddles wrote:He continues to provide educational conferences to Radiologists from around the world
If so, he should have made the arrangements for Dr. Zamboni and other researchers who have done serious work on CCSVI to come to Vancouver to share their knowledge with locals. The truth is that he is no longer setting up educational conference that he used to do in Whistler. I bet you didn't know that!
goddles wrote:I have personally met with Prof Zamboni, his team, Dr Simka from Poland and many others.
"Meeting" is good but you will also need to respect the valuable work these researchers have performed and ask your radiologist to read that in order to perform the exams properly.
goddles wrote:We have invested considerable amount of time and resources in CCSVI. We all understood how difficult this process was going to be right from the get go.
Research and development is expensive and you, as a business developer, should know that better. You could factor in the cost of developing this exam in your R&D budget, but you decided to charge the desperate MS patients directly while your facility did not have any established reliable protocol in place to screen for CCSVI.
goddles wrote:As I go along on this journey, I draw myself deeply and passionately into finding a treatment for CCSVI. We are graced with our technology and resources without need for the public healthcare system.
Just do the honorable thing, refund those patients who did not receive a proper ultrasound exam for CCSVI and stop doing them until you can provide some reliable results to MS patients.