If you have been screened and have evidence of a vascular problem, and are not getting the further screening and treatment that you feel you should be getting from the health care system in Canada you should let Health Canada know.
The Director of the Office of Consumer and Public Involvement was at the First Canadian Patient Summit. She was intelligent, interested and respectful. She listened carefully to information regarding CCSVI and the barriers we are experiencing in getting screening and treatment, so she is aware of the issue.
They deal with concerns from people not getting the care they need. You could address it to:
Ms. Lucie Desforges,
Office of Consumer and Public Involvement,
Health Products and Food Branch, Health Canada.
11 Holland Avenue, Holland Cross
Tower A, Suite 513 A.L 3005A
or email lucie_desforges@hc_sc.gc.ca