FCSC in Vancouver doing the MR imaging

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby PCakes » Tue Mar 16, 2010 8:56 pm

I'm with Rokkit.. we need all the help we can get here in Canada. I whole heartedly appreciate and will do all that i can to support FCSC's progress.
Any expectations that scans should be free are unreasonable. I/we are told that research is stalled in funding.. as long as a facility is doing their utmost to learn, train and track results.. to me.. this is a great chance to donate to the cause. Bonus.. we might get some CCSVI ammunition to carry into our healthcare system!
Dr Godley..Dr Cooperberg and everyone at FCSC ..thank you!
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Postby Brightspot » Sun Apr 04, 2010 1:07 pm

If you have been screened and have evidence of a vascular problem, and are not getting the further screening and treatment that you feel you should be getting from the health care system in Canada you should let Health Canada know.

The Director of the Office of Consumer and Public Involvement was at the First Canadian Patient Summit. She was intelligent, interested and respectful. She listened carefully to information regarding CCSVI and the barriers we are experiencing in getting screening and treatment, so she is aware of the issue.

They deal with concerns from people not getting the care they need. You could address it to:

Ms. Lucie Desforges,
Office of Consumer and Public Involvement,
Health Products and Food Branch, Health Canada.

address is
11 Holland Avenue, Holland Cross
Tower A, Suite 513 A.L 3005A
Ottawa, Ontario
K1A 0K9

or email lucie_desforges@hc_sc.gc.ca
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Postby melinda2010 » Mon Nov 08, 2010 9:58 pm

Thank you so much for posting this. I just had a talk with my husband about traveling to Poland and get tested/treated. We decided to give it a try after the winter Olympics. The news about False Creek is very exciting. I’m just a bit skeptical about false negatives. But it looks like a new beginning of a new direction.

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