Good morning Torcan,
India was also an option to me. I am balancing further damages by MS vs risks of surgery and postoepratively complications, in particular, how do I get postoperative care should problems arise, say, 6 months after surgery. Can you tell me what plan you have prepared for this latter consideration ?
My major problem is that I have no access to a venous surgeon specialized in neck and upper chest so that I can ask he or she the surgical risks. I do however have access to a vein doctor who specialized in ugly veins in the legs, but he gave me the standard answers, for examples, veins in the neck are different, there are surgical risks, etc. I am seeing this "leg veins" doctor again later this month and I am going to bring the False Creek MRV CD with me with the hope that he knows how to read the MRV of the venous restriction at the C1 level, and with the MRV information, be more prepared to offer details, such as what stent to use for the vein, how secure is the stent, how long would the stent last, how long do I need to be on the blood thinner medicine, what happens if the stent gets loose, etc etc.
If you don't mind I would like to ask you the following questions:
(1) what questions would you ask the venous doctor ?
(2) When you say the procedure is not approved in Canada, do you mean venous surgery in the neck and upper chest ? How do you know it is not approved ? or do you mean no surgeon knows how to perform the procedure ?
(2) Please let me know how do I keep track of the clinic development in the Buffalo area.
(3) I read in this website of another thread which follows individual patients who has had the surgery at Stanford. I did not read all the patients' cases ( I will this weekend ) but it seems patients who have had surgery reported improvement and minor complications exactly the way Zamboni reported in his paper. Do you know why Stanford is not doing the surgery any longer ?