Circulation problems, anyone?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Circulation problems, anyone?

Postby elizabwill » Mon Nov 30, 2009 1:18 am

Hi there, This is my first post!

I have 'mild' MS, and bad circulation in my feet and hands; they are always cold. I read somewhere that a woman who had the vein surgery had the unexpected side effect of getting warm hands and feet for the first time in years.
It all seems to me to be adding up...
Also, I almost always set off the metal detectors when going through security checks at airports, even if I am wearing no metal at all.

Does anyone else have these things? Cold hands?

Kind regards,
Lizzy
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Postby whyRwehere » Mon Nov 30, 2009 2:32 am

The bad circulation, is why this idea makes so much sense. I don't know that MRhodes was surprised to see her hands warm up, etc., probably just so surprised it happened so quickly and that it was such a relief. My husband has white toes...and his feet are always cold...I look forward to getting rid of that!
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Postby Algis » Mon Nov 30, 2009 2:50 am

My feet are always very cold. I brought it up with doctors years ago (I could still walk) but they said it has no relation. They may change their mind now :?
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Postby Mutley » Mon Nov 30, 2009 3:31 am

I definately suffer with cold hands, feet and legs. My posture also seems to influence the amount of numbness I get in my hands and legs too.
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
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cold hands and feet

Postby crocky » Mon Nov 30, 2009 3:57 am

Yes, I have terrible circulation in my hands and feet - they totally freeze up if they get too cold.
I was well aware of this long before ms diagnosis, and now I think it definately makes the numbness in my feet worse - I'm sure this theory makes a huge amount of sense and really want to go for this treatment.
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Postby TFau » Mon Nov 30, 2009 6:51 am

Hi, my husband only has symptoms on his left side, and his left hand and foot are noticably colder than his right hand and foot.
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Postby Arcee » Mon Nov 30, 2009 6:59 am

I agree that issues with our veins and circulation could well extend beyond the jugulars and azygous. I truly feel benefits from the stenting, e.g. increased stamina, but it's also true that it hasn't changed everything, e.g. my hands and feet still get cold at times. Then again, many of my friends' hands and feet get cold a lot of the time too and they don't have CCSVI or MS :D More data will help with these kinds of questions.
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
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Postby tzootsi » Mon Nov 30, 2009 8:11 am

My wife, who also has a mild case of ms, almost always has a cold right hand and foot. Although I believe CCSVI is a major factor in ms, I'm not sure if a partially blocked jugular could cause cold extremities. My guess is the condition is caused by the nerves not firing 100%, causing slight constriction, which leads to cold extremities.
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Postby Sharon » Mon Nov 30, 2009 8:55 am

Arcee wrote
I agree that issues with our veins and circulation could well extend beyond the jugulars and azygous. I truly feel benefits from the stenting, e.g. increased stamina, but it's also true that it hasn't changed everything, e.g. my hands and feet still get cold at times. Then again, many of my friends' hands and feet get cold a lot of the time too and they don't have CCSVI or MS


I also have felt many subtle benefits from the stenting, i.e. muscle improvement, but relief from a cold hand and cold leg on the left side is not one of them. What I am realizing is, I really do not know what physical symptoms I can attribute to MS. Maybe the cold left extremeties would be as normal for me as it would be for someone without MS. We assume that everything wrong with us is MS related --- I am finding this to not be the case.


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Postby Luvsadonut » Mon Nov 30, 2009 11:57 am

I suffer from cold hands and feet aswell as walking problems and other smaller symptoms. I was told by the nuero that the cold hands and feet were due to nerve damage to the 'body thermometers' hence when the extremeties get cold the signal which tells the body to warm up doesn't get to the brain. However lets keep hoping that the old theories are incorrect.
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Postby strayinma » Tue Dec 01, 2009 8:47 am

I have a mild case and am a furnace. I rarely get cold hands or feet. But, my girlfriend - who does not have MS - is always freezing and jams her icy feet and hands on me.

Knew my heat had to do with circulation - I thought it was related to CCSVI insulating my head. Another odd thing that doesn't fit for me. Perhaps my body's always just got a signal on to keep heating up.
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Postby zap » Tue Dec 01, 2009 8:49 am

I also run hot. Too hot sometimes. Had night sweats something awful a couple of years back ... yet I don't really sweat normally, even when it seems I should be.
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Postby radeck » Tue Dec 01, 2009 9:53 am

Opposite for me, cold/clammy hands that always fall asleep right post stents that I've never had before (plus a strong sensation of my heartbeat in my head that makes it hard to sleep). But then I also had open heart surgery at the same time, so maybe it's because of that.
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Postby Sharon » Tue Dec 01, 2009 11:26 am

Radeck - how are you?

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