There's something going on in Italy: Zamboni blocked

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby cheerleader » Mon Nov 30, 2009 9:07 am

sorry, guys. I've been getting letters/e-mails in Italian from folks, and haven't had time to translate and figure out what's been going on over there. I'll try to look into it today, do some translating and figure out how we can help them.

My Italian is food and opera...not really helpful in this situation, but we'll figure it out....
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Boreas » Mon Nov 30, 2009 9:21 am

tzootsi wrote:Here's the same woman speaking in English:

http://www.youtube.com/watch?v=Bnx5m6hispY


Yeah thanks, pretty Itlalian though even if she speaks English, isn't it? :P

At 6:45 she starts adressing the point and that doesn't sound very dramatic. Nice talk, anyway :D
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Postby ikulo » Mon Nov 30, 2009 9:31 am

Boreas wrote:
tzootsi wrote: doesn't sound very dramatic.


hah, sounds like its much ado about nothing.
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Postby Loobie » Mon Nov 30, 2009 9:43 am

There are too many people out here with MS who know about this. You can't hide the truth. If it turns out to be the truth it will come out. Informed patients is all we've ever been. Joan took this to Stanford and started a wildfire. If everyone did that, it will eventually come out. Every time someone takes a swipe at CCSVI we just need to calm down and let it play out. Just because he couldn't publish when he wants to doesn't mean that Wayne State and SUNY and others aren't still working on this.

Did we all expect the community at large to just take this at face value and not take any shots? Not me anyway. This has a long way to go as our Doc, GiCi whose had the procedure, often reminds us.
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Postby mrhodes40 » Mon Nov 30, 2009 11:01 am

did you see this thread?

http://www.thisisms.com/ftopict-9021.html

Someone called Elesevier and asked, they said it was coming out this week.

It is easy to get concerned about blocked research, but maybe someone jumped to a conclusion?

I mean to buy this paper--I'd like to think that to do so rewards the publisher for doing new potentially controversial work. Think so?
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby TFau » Mon Nov 30, 2009 11:06 am

I think it's good to support the publisher, but I don't see how they would publish it if they thought the science wasn't sound. I don't mean "sound" as in "proof", but as in a sound scientifically-designed preliminary study. If they felt it was contraversial but wanted to publish it anyway, they'd probably have a disclaimer.

Just my two cents..
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Postby Loobie » Mon Nov 30, 2009 11:33 am

Plus,

I hear that all over the internet people are going to start charging more and more. Maybe not true, but I've read articles that allude to that.
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Postby mrhodes40 » Mon Nov 30, 2009 11:58 am

wrong thread :oops:
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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