Back from Poland

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

D Mannose

Postby Dovechick » Mon Dec 14, 2009 1:50 pm

She has had the waterfall stuff, but it is very expensive and to be quite honest no better (in terms of effect) than the one we buy from iherb in the states. We buy most of the supplements she takes at iherb because in spite of the cost of transport and the VAT we pay as an import tax it is still cheaper than anything we can get in the UK.

iherb D-Mannose
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
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Postby whyRwehere » Tue Dec 15, 2009 4:47 am

Thanks for the link. I know about iherb, but they don't ship to France. That's okay, I'll get someone to send it to me.
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Iherb

Postby Dovechick » Tue Dec 15, 2009 9:39 am

Quel domage, je me demande pourquoi....
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
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Postby whyRwehere » Tue Dec 15, 2009 2:51 pm

Turns out they do ship to France, now. Ordered it and waiting impatiently for it to get here. Hope it helps!
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Postby Richardk » Thu Dec 31, 2009 5:27 pm

Wonky

I hope improvements will continue for you...a method I have of dealing w/ UTI is cranberry juice, preferably w/out added sugar...I used to have constant infections, since drinking a glass of cranberry juice daily, have not had an infection in the past 6 months...I am slated to see Dr S. next August and it's great to read experiences of the pioneers
Richard

dx'd SPMS 1996, EDSS 7.5
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back from poland

Postby effi » Mon Jan 04, 2010 4:37 am

Hi Wonky,
Im a newie representing my sister who has ppms and will be eagerly
awaiting your progress day by day. im from australia and want to get my hands on a vascular surgeon who would do the procedure here as travelling so far away is ahard option . cmon aussies we need to scream and shout. :D :D
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Effie motivating Aussies

Postby Dovechick » Mon Jan 04, 2010 6:43 am

Hi Effie, How about starting a new thread, not to say that you can't post on here, but I don't think you are the only Aussie here and it might catch the eye of other Oz people. It is difficult to get things started on your own, not impossible as Cheerleader has proven, because she started the ball rolling on her own, but easier.
Things that we have done in the UK:
written to the MS societies
started a petition to the prime minister
written to medical universities and researchers forwarding Prof Zamboni's papers
written in MS magazines
been in touch with doppler equipment manufacturers
been in touch with private vascular specialists.
passed on information to our doctors
posted on our facebook profiles, your could try using the OZ MS facebook forum: http://www.facebook.com/group.php?gid=85614993047

What we have not done yet but hope to achieve in the near future is
Create a pressure group
Interest major newspapers in the story
Create a UK website for information and lobbying.
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
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travel insurance

Postby xia » Fri Jan 22, 2010 3:43 am

Hi wonky,
I hope you are well.
I have finally managed to find travel insurance!
They are covering my pre existing condition (ms) but not procedure.
I guess its better than nothing, as the ms society wouldnt cover me at all!
I found that you need to search for Medical Tourist Insurance Brokers in google.
I hope this helps for next time you need to travel and for anyone else who is struggling to get cover.
Take care
xia
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