This Is MS Multiple Sclerosis Community: Knowledge & Support

Thought he was Italian?

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Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5

I have noticed that many news posts have the facts wrong about CCSVI. Why can't these people be more careful ??

You ARE talking about the media aren't you?

Well we DO have Avis Favaro and CTV W5, LOL.

We quickly became spoiled by W5.

Here's an interesting column by the Washington Post Health bloggers on the media and health news:Rx: Take health news with a grain of salt

Even better, since Zamboni's eagerly awaited journal article should be out tomorrow (per Cheer) the column has a link to Explaining Study Findings by The Dartmouth Institute for Health Policy and Clinical Practice and from there, these links:

Number Glossary

Statistics Glossary

Questions to Guide Reporting

How to Highlight Study Cautions

I'm never quite able to grasp all the "ins and outs" of study data and I think the info in those links will be helpful as we encounter various reports about the CCSVI research. For example, there's this quote from Dr. John Richert, executive vice president for research and clinical programs at the NMSS, about Zamboni's study results: Radical MS Theory Stirs Interest
I would love to see the changes in placebo groups in major drug trials, maybe the NMSS could post that info on their site.

Richert also noted
Ok, enough alright already--I think we need to be informed advocates and I for one am not too informed on analzying data.

Take care all--oh yeah, Jennifer Huget from the Post (one of their health bloggers) has MS so I'm eagerly waiting her take on Zamboni's study and CCSVI.

Sharon